I'm Right Now Sitting in Silence

Discussion in 'Success Stories' started by JohnAdams, Sep 12, 2018.

    1. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Might be worth taking smaller doses that are "safe" and see if it works since you can take it long term?
       
    2. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Man my fingernails, clothes and carpet were turning yellow.
       
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    3. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Your wife must be pissed!
       
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    4. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      No I have a wonderful understanding wife.
       
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    5. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I'm glad to hear that you wife is understanding! Tinnitus can also be hard on our partners too.
       
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    6. Egg

      Egg Member

      Tinnitus Since:
      2/6/2018
      Cause of Tinnitus:
      Acoustic Trauma (Concert)
      so people do heal
       
    7. Kappdog

      Kappdog Member

      Tinnitus Since:
      07/2018
      Cause of Tinnitus:
      Unknown
      Hey John - Maybe the silence you experienced was due to curcumin increasing BDNF levels in the audiotory part of your brain, which made it possible for the brain to ignore the T?
       
      • Good Question Good Question x 1
    8. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Yeah maybe. It seems like my lowest tinnitus days involve that stuff.
       
    9. Kappdog

      Kappdog Member

      Tinnitus Since:
      07/2018
      Cause of Tinnitus:
      Unknown

      So maybe if we stack supplements that increases BNDF level at max safe dosage and use other natural ways to increase BNDF levels, we can sustain the silence or even cause a permanent change in the brain over time
       
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    10. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      I'm taking 7,8 dhf everyday. That's a bdnf mimicker.
       
      Last edited: Nov 1, 2018
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    11. Kappdog

      Kappdog Member

      Tinnitus Since:
      07/2018
      Cause of Tinnitus:
      Unknown
      Have you noticed any change? And do you stack it with anything from the BNDF list other than curcumin?
       
      • Good Question Good Question x 1
    12. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Yeah, vodka.
      Not really any permanent changes. I did just have 3 straight days of really low tinnitus. The high pitch hiss is back today. ever since my last acoustic trauma 5 weeks ago it doesnt go away when i sleep, and it used to. The 7,8 dhf just kinda helps me focus at work.
       
    13. Kappdog

      Kappdog Member

      Tinnitus Since:
      07/2018
      Cause of Tinnitus:
      Unknown
      I see - ill make a list and try it out, im not that into vodka
       
    14. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      On the weekend i drank a lot of wine but it made my tinnitus louder again:(. I should try different types of alcohol:D
       
    15. Teddy Westside

      Teddy Westside Member

      Location:
      USA
      Tinnitus Since:
      01/2011, Recent Spike 08/2018
      Cause of Tinnitus:
      Earwax Removal (Onset), Noise/Ototoxicity (Spike)
      @JohnAdams Curious about this curcumin thing. How long has it been since you quit taking it, and is your tinnitus coming back to baseline at all? I had a spike in August (noise related I believe, but possibly ototoxicity from Toradol injection) that took me from very mild, almost unnoticeable (to me) to moderate. I hesitate to call it severe since there isn't really a scale for this sort of thing.

      Anyway, I'm curious to try new things that might help bring it back down. Currently it seems it might just be getting worse, despite taking a break from noise. Other feel free to weigh in as well, and greetings. I'm a longtime reader here that finally decided to join up.
       
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    16. Kell

      Kell Member

      Tinnitus Since:
      March, 2018
      Cause of Tinnitus:
      front row indoor concert-in front of speaker
      I'm sorry, what does this mean?
      I'd be thrilled if I had really low tinnitus for days... if I could only figure out if there is a reason why it spikes for 2-3 days and then goes a little quieter other days.
       
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    17. Strife_84
      Energetic

      Strife_84 Member

      Location:
      Finland
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      Mixing music for long hours and too loud I guess.
      To me it has exact opposite effect. After a run my tinnitus goes crazy.
       
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    18. Lesya

      Lesya Member

      Tinnitus Since:
      January 2019
      Cause of Tinnitus:
      Unnknow
      The reason it quiet down because you get a little used to it and it doesn't scare you as much .I got T in Jan, and it was loud. I don't know why, but it could be because: stress ( I had a lot) , neck pain, anxiety. I fricked out immediately, so my brain picked it up as a threat. Of course all doctors said... Nothing wrong, you have to live with it. I started research and found out a lot of information. First, I went to chiropractor and massage therapist to fix my neck ( I guess I had to get a nice kick from my T to do it :) ), then changed my diet ( intermittent fasting with no sugar at all) I added tumeric supplements, daily relaxation exercises in the morning.... And the major one -i started talking to my brain ....I am not afraid, it bothers me but it is not harmful, just annoying. I watch a lot of videos about neuroplasticity!!!! It is miracle. I started addressing my feelings to T, not T itself. Now, I hear T ( only if I really really try to find it) maybe two times a day for about 3 min....I immediately tell myself " oh shit, not you, I am too busy for you now, and you don't scare me, so stop annoying me... And it goes away. I literally just tell myself that it's not threat and unneeded :) also, I prepare myself for a spike. Something like : well I enjoy the silence, but if it comes back, I will kick it's a$$. I was so stressed and depressed about it in the beginning, I thought I am going crazy. Not now guys, not now.
       
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    19. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      That's so friggen weird. When I drink too much :( and have a hangover my tinnitus is always much lower.
       
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    20. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Also weird because my T goes down when I'm working out/running.
       
    21. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      BDNF is being investigated as a treatment to restore lost synapses involved in hidden hearing loss. 7,8 DHF has also been experimented with.
      https://www.news-medical.net/news/2...novel-approach-to-restoration-of-hearing.aspx
       
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    22. Strife_84
      Energetic

      Strife_84 Member

      Location:
      Finland
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      Mixing music for long hours and too loud I guess.
      Maybe blood sugar related?
       
    23. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      I can't even remember that weekend, but i can imagine it was just a normal fluctuation. The only REAL spike i got from alcohol was from Gin Tonic. Hell, that was terrible.
       
    24. Clint Azzopardi
      Woot

      Clint Azzopardi Member

      Tinnitus Since:
      October 2018
      Cause of Tinnitus:
      Not sure, Gentamicin or allaergy or both !
      Hi there @JohnAdams, does your tinnitus still come and go? i sometimes have days without tinnitus and then it comes back. I see what you said earlier on that when you are not hearing it you, you're dreading it to come back.

      Have you ever come across any literature as to why tinnitus comes and goes?
       
    25. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Alot has happened with me since I posted this. I was very early in and have since had another noise exposure, an experimental treatment, and another noise exposure. I have not read anything that adequately explains why it fluctuates.
       
    26. Clint Azzopardi
      Woot

      Clint Azzopardi Member

      Tinnitus Since:
      October 2018
      Cause of Tinnitus:
      Not sure, Gentamicin or allaergy or both !
      @JohnAdams: can I ask what experimental treatment you opted for, was it rTMS?
       
    27. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      bone marrow and blood platelets injected into my eardrums for 2 weeks.
       
      Last edited: Apr 19, 2019
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    28. Sevv

      Sevv Member Benefactor

      Tinnitus Since:
      14.04.2019
      Cause of Tinnitus:
      Loud concert
      Hello John
      Sorry, you made me very curious here. I really wonder: how much did this treatment help? Did it improve your T, and did it improve your hearing? I guess this was one of the early attempts at stem cell therapy, which probably aimed at regenerating lost hair cells and/or restore lost synapses to the nerve.
      Thanks a lot for your response. I'm incredibly curious where we will be in 5-10 years. Wondering in what kind of age I've been born into, what stuff we will be able to treat that was just considered permanent damage before. :D The only big surgery I've ever been through was apendectomy (removal of the appendix). 30 years ago that would have meant a cut like in caesarean delivery, about 15cm wide! That means you're not going anywhere for a month. Today they just use three tiny 1cm-diameter cuts, no problem to go home after 2 days! I also met a guy who has psoriasis with an arthritis component, which can also be very debilitating. Today they can create special antibody-medicine that suppresses psoriasis with little side effects. Unfortunately the medicine is quite expensive so it probably only works because Switzerland's NHS is still in a halfway decent state.
       
    29. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      I have had a significant improvement in all of my symptoms, hearing clarity, hyperacusis, and tinnitus level. The only thing I have not noticed any improvement in is my eye floaters.
       
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    30. Artemis2K
      Kick ass

      Artemis2K Member Benefactor

      Location:
      South Carolina
      Tinnitus Since:
      2012
      Cause of Tinnitus:
      I had tinnitus for as long as I can remember. Got bad later.
      I've had eye floaters for as long as I can remember. They have never gone away and are really bad. I think they have stayed the same shape for the most part. Got them from nearsightedness. Probably from the hearing loss too, if that stuff really is accurate. There isn't any cure for it. Sometimes you're lucky and they dissolve, sometimes not.
       
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