I'm Right Now Sitting in Silence

Discussion in 'Success Stories' started by JohnAdams, Sep 12, 2018.

    1. JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      In my office. Ahhhhhh. Hope it lasts.
       
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    2. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      Me too:beeranimation:
       
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    3. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Really? What did you do to quiet your shitnitus?
       
    4. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      No idea if something helped or if it got better on its own.
      1. Osteopathic treatment 2 weeks ago, trapezius, facial muscles ecc.
      2. Nasal spray because i have some kind of allergy.
      3. Lots of cardio, walking, weightlifting and healthy eating (did that also before T)
      4. Supplements are Vitamin D3, Omega 3 and Zinc.
      5. No headphones, no club, no loud bars or concerts at the moment
      6. Musician earplugs whenever i‘m driving and foam ear plugs in the gym.
      My tinnitus is not a complete 0 all the time, but i need to be in a dead silent room to hear a trace of it. I hope it continues like this.
       
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    5. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      The curcumin is working??!!!:rockingbanana:
       
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    6. Huradozih
      Insomnious

      Huradozih Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      idiopathic
      Wow, congratulations! At least you can "hear" silence! :beeranimation:
       
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    7. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Curcumin is supposed to be good for tinnitus?
       
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    8. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
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    9. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Could be. He is doing an experiment with taking large doses of curcumin at the moment
       
    10. hoper
      Lonely

      hoper Member

      Tinnitus Since:
      -
      Cause of Tinnitus:
      -
      I can relate to that. Cardio training makes the tinnitus a little bit quieter for a while.
       
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    11. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Oh well. Silence is gone again.

      I will say that today was a spectacular improvement all together.
       
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    12. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      The only scientific link I was able to find between curcumin and tinnitus is this: https://www.ncbi.nlm.nih.gov/pubmed/?term=tinnitus+curcumin - which concludes with the following:
      "In rats, cisplatin ototoxicity can be prevented with curcumin or curcumin-vitamin E combination."​

      It's used to prevent ototoxicity during a cisplatin treatment (a chemo drug), not as a cure. And this was done on rats, not humans.
       
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    13. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      You are getting better.
       
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    14. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Alrighty then.

      1. ly411575 in a notch1 inhibitor
      2. It restored hearing in mice by regrowing their cochlear hair cells, orally and intratempanically. Orally caused toxic side effects, hence direct injection.
      3. It restored cochlear hair cells in vitro in a human cochlea explant.
      4. Ly411575 is the main ingredient in fx322, which is in phase2 trials to restore hearing.
      5. It has to be injected into the ear because ly411575 is toxic.
      6. Curcumin is a potent, non toxic notch1 inhibitor.
      7. It is worth exploring as a natural alternative to ly411575 for hearing restoration because it is a notch1 inhibitor that can be taken orally, which I am doing.

      The key is supression/inhibition of the notch1 signalling pathway.
       
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    15. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Not for me. It either spikes it or leaves it unchanged.
       
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    16. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      It may just be an immediate affect of the curcumin's anti-oxidant properties. My tinnitus is not gone. It was almost gone this morning though, pretty much all day until 3 hours ago. I am not expecting any real results for a couple of months, like the mouse experiments.
       
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    17. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Damnnnn...

      I just mowed my grass, with earplugs in. After I got done weed eating I still had my earplugs in and if you know anything about earplugs and shitty-nitus then you know that's earplugs are what you use to get up close and personal with your T sounds. as soon as I stopped the weed eater, with earplugs in, nothing. No shitty-nitus. WHAT IN THE WORLD!? Its there now. I'm day 5 into my experiment and my shitty-nitus is so crazy right now coming and going. It's quite an emotional roller coaster.
       
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    18. Red
      Crappy

      Red Member

      Location:
      Northeast USA
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Noise Exposure (Headphones)
      How loud has your T been in the past? Do you have any hyperacusis?
       
    19. DebInAustralia
      Fine

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13

      or habituation ....?
       
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    20. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      Depends what you mean by that. If you mean that i just habituated to the sound and notice it less, then no.

      I can say the volume dropped and sounds vanished. My left ear is 99% silent now, and in my right ear there is more or less just one tone left. Before there was a louder baseline tone and whistling over that. The whistling is now silent and the other tone fluctuates between complete silence and just audible in dead silent rooms.

      But i don´t know if anything helped or if it got better at its own. However i don´t believe its just habituation.
       
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    21. Kratos
      Dreaming

      Kratos Member

      Location:
      Spain
      Tinnitus Since:
      October 2016
      Cause of Tinnitus:
      Noise exposure + Stress
      Next nobel prize.
       
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    22. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      It has spiked before probably around 60db. Usually it hovers around 35db. I have very slight but noticable hyperacusis in very high ranges. It seems to go away at night and return when I wake up. Since I started this experiment it has came back at night time, but goes away when I wake up. Like right now, I woke up about 15 minutes ago and I cant hear it at all, just like yesterday.

      Lol. Even if this works it will probably be ignored by the tinnitus community at large and especially the medical industry.
       
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    23. Lane

      Lane Member

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug
      @JohnAdams, congratulations on recent curcumin discoveries and tinnitus improvement(s)! Regarding the "coming and going", I'd focus on the "going". To get tinnitus to even start changing is a huge development. I can understand the roller coaster effect however, but for the moment, you at least have hope. -- All the Best!
       
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    24. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      I have experienced periods of no tinnitus again today. I wish I could ask my brain what the heck is going on.
       
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    25. Lane

      Lane Member

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug
      I'm really happy for you. Enjoy it with every fiber of your being!
       
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    26. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      I wish. I'm getting my ass handed to me with this programming crap at work right now. Plus my tinnitus is back. Not as bad. But it is still back. That's the worst part of it being gone, or not noticable, at times I'm always just dreading for when it comes back. Over the last few days at work I've suddenly not had to use my masking sounds.
       
    27. Emster

      Emster Member

      Tinnitus Since:
      01/2013
      Cause of Tinnitus:
      Unknown
      Funny. Exercise makes mine louder.
       
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    28. Emster

      Emster Member

      Tinnitus Since:
      01/2013
      Cause of Tinnitus:
      Unknown
      How large and what brand?
       
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    29. AUTHOR
      AUTHOR
      JohnAdams
      In love

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Nasty Swamp
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      I have definitely experienced a change in my tinnitis symptoms. It is definitely not gone. I seem to be able to tolerate quiet environments better, because of an overall quiter T sound(s). I dont absolutely know if I'm delusional, experiencing the immediate antioxidant affects of curcumin, or genuinely recovering. It is almost impossible to be sure at this point. I have read that the dosage I'm at is safe for a few months, that's not absolutley proven either. I have found quite a few medical papers that make me feel like this is a worthy and safe experiment.

      I take 4-5 grams of curcumin mixed in a tablespoon of butter and a tablespoon of black pepper twice a day. I dont think the brand matters so long as you get it from a reputable store. I get mine at a neo hippy grocery store called Earthfare that is supposed to be legit when it comes to health food and supplements. Funny thing is that Wal-Mart sells the same brand, Jarrow. Detractors claim that curcumin cant be absorbed but that's dumb because the way I take it makes my hands and feet turn yellow, therefore it is in my bloodstream, in my cochleas. I also take CBD oil, which probably doesnt do anything for tinnitus, and ECGC, 2 times a day at 2x the recommended dosage and a concentrated omega 3 fish oil goo. That is what I do. Like I said, it is too early for me to make any claims, and my tinnitus is certainly not totally gone. As I write this, my tinnitus is certainly here with me. This is a hard thing to objectively quantify.

      20180916_095400.jpg
       
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    30. Striveon

      Striveon Member

      Tinnitus Since:
      08/2018
      Cause of Tinnitus:
      Unknown
      Would it have the same effect just taking the pill? I have acid reflux so I can't take black pepper :( is there an alternative you may know?
       

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