Just Received Some BS News...

..so i changed my doc and visited the new one last week ,and it took me months to do it because of my bad T and H not letting me outside the house..so i went worst visit ever had me waiting for three hours in a noisy ass office and kept slamming doors after telling them how bad my ears are and were hurting because of the office. they talked so loud after telling them my sensitivity, i just wanted to leave. and then when he finally came in after my mom was arguing with them for the long wait and how im in bad pain waiting here. he finally came in and told me whats wrong i explained my cases and pointed out the Bad H and T as the main culprits as why i cant work especially the H..and he seemed to pay more attention to the anxiety and depression more than anything. like are u kidding me pay attention to the H. he didnt know what it was he even googled it on his laptop how great. so i tell him how i was getting my disability claim from my last doc and i tell him if he can continue the claim he says ok just to send him copies and a new form surprised he said yes after the crappy service he was giving but i somehow felt like he wasnt just by his mood. so i wait and they call me and tell me hes not signing it because he says im ok to work in my proffesion. i was stunned like are u kidding me are u sure he didnt get me confused with someone else, i even told my mom after the visit he acted like he didnt give a fuck about my situation. my mom told the lady his last doc and ent ruled him eniligable to work. he works outside going from house to house checking gas meters for gods sake. she said i know i feel bad but its this doctor hes not that good he never signs claims.. so know im here like wtf.. i have to call my work now and explain about this bullshit person dressed in a doctors coat. and now i have to try to change doctors again..this is the last thing i need right now..sorry for the long story i just needed to vent and for my Bad H friends to know how bad it is to work outside especially were i work with fkn barking dogs all day and loud vehicles passing me by and landscapers doing lawn work with loud machinery and the doc say your ok to work like get the fuck out of here..

 

Can you wear earplugs at work mate? Maybe get some good custom ones? I can't stand wearing them either. For the outsider this is hard to understand.

 

Ya Geo, I had the same treatment. H killing me ah you can go back to school. Im 55 you go back to school.
The ENT people are not up to snuff. Ive seen three, none of them had a clue as to what im going through.
What DRs can we see? To check for the 8th vertebra. For some more deployment of actual science. Instead of this your gonna have to learn to live with it dead end!

 

@Telis bro ive been off work since last july i cant work i use to wear earplug when working..bro i wore muffs to the ride to the doc and i was getting lightheaded from the traffic noise..i dont know what was up with this doc..now i have to change him and get a new one he was so unproffesional.. my ent and past doc told my work i physically cant work..so i meet this new doc the first time and says i can like wtf u dont know my history and he didnt even know what H was .

 

@Geo can't the ENT simply sign whatever you need? I'd think that as a doctor and specialist in ears, he'd not only be able to, but would have more expertise than a regular doctor.

@Telis i don't have H but I do understand because I have to wear ear plugs at my work and I hate them. I couldn't imagine having to wear them everywhere.

 

@MattK my ent is no help really before i had only one ear T and told me theres no way i can get it on the other ear and boom i have both now and strong..and the last time i visited him was when my h came back i was scared. and he wanted to put me in a mri for really no reason only because he had no idea what else to do and kowing i had bad H so that alone tells me he has no idea what its really about its hard to find a actual good ent. but the ent even told my work i cant work even he knew that much that i cant expose myself to loud noises. and that ent says he does not ever sign disability forms

 

Sorry to hear that man! I hope you can get rid of hyperacusis as I did, god I couldn't stand that! Some doctors only want to sell you anti-depressants sadly.

 

@Danny Boy yeah he didnt didnt pay attention to my H or T only to the little anxiety and depression i have which is slim i feel what you are saying i felt like he was like here take xanax and leave i dont want to deal with you..but was messed up is how can you diagnose me so awfuly and say im good to work again in my loud profession.. like wtf some balls on you man. the only reason i went was because my work needed an update on my condition which he refused to give he only gave a visit letter saying i was here now i have to call my work which i have my insurance from that how i picked a bad doc and said i can return which is bull..idk if theyll take his side now i cant afford for them to drop me that is were i have my insurance from and it is good insurance too.

 

Look man, I know I keep saying this but you need to do what I did.

 

@Danny Boy its not that simple man. you just cant go to your ent and ask for that and here its rare to find one that actually cares for you to even look it up and get info on it. i know mine and i doubt he'll do that for me...its funny though i have Bad H, severe T , depression and anxiety and possible asd and he still denied my claim and said i was fit to work that alone tells you he aint doing his job right.

 

Fit for work! What a joker! Are you suicidal at all?

 

@Danny Boy im not saying i am but im also not saying i havent gave it a thought like everybody else. i was working my job with t for almost 2 years bro that i can do but with this bad H its impossible as i told him..now i have to fix this mess now

 

And he wouldn't budge at all? You need to change doctors by the sounds of it...

 

@Danny Boy i aint going back to that noise fest of a office.i didnt go there to get diagnosed i know what i have i just went to get a update for my work and to reclaim my disability claim. i dont need him telling me what i have and dont have i know that already.. my mom is going to tomorrow to know why he put i was fit to work like is he deaf or what we need a good reasoning from his part..if not then yes ima change doctors.

 

I hope you can! Wish you all the best buddy! And gosh, how do doctors not listen? Why get into that profession if you do not want to help?

 

@Danny Boy exactly like you cant just not do your job right you are messing with a persons lively hood.

 

In the UK, one doctor told this woman to get out of his office and to kill herself...It can get pretty bad with some doctors, I've met some nice ones, but they are quite rare.

 

Is he disabled? Can't sign a form.. I wonder. Seriously though, next ENT. If that says the same punch the face.

 

Wow ... he must not want to practice anymore. In the States, that would turn into a lawsuit!

 

I'm guessing he has! Well, I can't believe how unsympathetic some doctors are...I mean, why get into a profession where you need to help people! Seems really odd...I bet for some it's the paycheque...

 

Danny Boy, this is what I was trying to say earlier. You said in Europe, Keppra is common and is used to treat H, but what about the rest of the world? Here in the U.S., it's not common. And even if it was, it'd be really hard to get a doctor to prescribe it to a patient, unless someone was lucky enough to find a doctor who was willing to think outside of the box and experiment. Same thing with retigabine/Trobalt. And then what if it doesn't work for him? I know of at least one person on here that I've communicated with privately who said that he tried retigabine and to his disappointment, it didn't help at all. These might have been the answer for you, but they are not a universal cure or treatment. Of course, it'd definitely be worth trying if someone is being driven insane by their T & H, but a lot of this I think is the lack of ability to get a prescription... and of course, there are no guarantees that they will work.

 

What was his dosage for trobalt? Look...I just want to help people get keppra...In spain you can get drugs freely, so why not take an awesome holiday and get some? Keppra has massive potential to help, Viking is h free as am I...Look, I can't say it will work on everyone, but it's worth a try is it not?

 

Sure but from the sounds of it, many of the people here with H are barely able to leave the house. Good luck with getting them to travel via plane. And that's not even considering the expense part of the equation.

What I'm saying is that as nice as it'd be for everyone to have access to any and all drugs they think will help, for many it's simply not an option. What else are they to do? I'm not sure but I think the reason your suggestion falls on deaf ears is because it's impractical for a lot of people.

If you've found yourself in the position where you can get drugs that work for you, then consider yourself very lucky.