Lenire — Bimodal Stimulation Treatment by Neuromod

I'm sorry but that's drivel. There are loads of reasons why someone could be rejected - this isn't because I know about Neuromod's policies or have any knowledge of audiology / tinnitus beyond anyone else on this forum, but come on, think man. Impacted earwax, otosclerosis, psychological trauma / crisis, acoustic neuroma, probably more.

 

Yes, that's the only reason I've heard of yet for rejecting someone, if you select less than 3 months in the questionnaire. I'm not saying that's the only criteria, just the only one I've read.

 

Wasn't this device supposed to be available in the USA in 2019?

 

I've been guessing that the US release would be offset a little less than a year from Europe. I have no basis to that guess, but it's just my hunch, as Neuromod hasn't issued any guidance that I'm aware of.

So when we were expecting the device to come out back in January it seemed reasonable to guesstimate that the US release would maybe squeak by right at the tail end of 2019.

Now that things have shifted forward by about six months it probably wouldn't be until this time next year. And how the office in Dublin is getting booked, some pessimists are saying more like 2021 or 2022.

Moral of the story is nobody really knows how this will scale out.

I am now just hoping that this fog of uncertainty will clear up by the fall.

 

I agree, I find it rather insulting that someone who became aware of a treatment because of Tinnitus Talk would then tell Tinnitus Talk to fuck off and not return the favor.

I don’t understand the anonymous reporting of their Neuromod experience. It makes zero sense to me why people don’t want to share their experience. Are people afraid Neuromod will be like, “Looky here! FartBubble69 said that Neuromod is slow to release and isn’t working hard. Well I’m going to send a WiFi signal to his device and make it less efficient.” Like for real? What could possible be the reason for people wanting secrecy.

I really hope this trend doesn’t catch on because it is stupid.

But that isn’t as bad as someone who just doesn’t report back. Instead of helping people and letting us know more about it, they would rather be selfish and lazy. For those people, I offer my sincerest “fuck you”.

I am not talking about anyone in particular, I’m talking about it in general.

 

@Jack Straw it's bizarre and you're right, it's selfish, Tinnitus Talk has been a saviour to me and to many others. If anything, I feel I owe it to the community here to post my experience. You are all warriors and I hope things work out for us all.

Anyway, I might chase up with Neuromod when we can expect the peer review paper to be out and of course I will be evaluating it to the best of my ability and sharing my thoughts with all to discuss.

Given the history of ‘tinnitus treatments’, it's very important going forward that these things are questioned by sufferers. Likewise, I wish Neuromod the best success if they are able to help us.

 

Hey, I have been keeping an eye on this thread for months. I, however, created an account only now, and it is to express my worries about the fact that some people appear not to be willing to share their experience.

Please keep in mind: your feedback will be the most credible reviews on which many of us will rely to make a decision that involves big money and potential undesired effects.

 

I think the concern is this:

Tinnitus is a complex condition with many potential causes. Neuromod may have a viable treatment for 5% of us.

They may know this but aren't disclosing it.

What if they are doing paid screenings because they know about their efficacy rate and are using interest in this as part of their profit model? That would perfectly explain their reluctance to disclose all data wouldn't it?

 

Don't worry about that. There might be a few people like that but based on my many years of hanging around Tinnitus Talk the vast majority here feels a deep kinship with their fellow sufferers and will do everything to report back, myself included. There will be no shortage of credible user reports.

 

FYI... I've not abandoned you. PM me if need be.

 

The people who have had their initial assessment have nothing to report yet. They would be bombarded by loads of questions that they cannot yet answer. I am sure we will all have more information when the device starts to be used.

 

@ruud1boy thanks for answering. Unfortunately Regensburg is an eight hour drive for me, Dublin is closer (I'm from the Netherlands).

Somewhere in this long thread I saw someone mentioning a clinic in Belgium opening around September. Fingers crossed then (disclaimer: this is all speculation!).

@frozenmist I sure will post my experience with the device over here and know for sure many more will do. If this treatment really works (a little, no miracles expected) we are going to hear it soon.

 

You think this is the concern or you're trying to manufacture the concern?

I suppose this FUD is going to be the running theme of the discussion here for the next few months?

 

You don’t half chat some shit you.

 

Why do I get the feeling participants don't want to crush people's hopes and dreams and that is why nothing is coming out.

 

God, don't even mention that! :O

 

No one has the device yet so there is nothing to report yet. Also once people start using it it may take many weeks/months for any change to occur so it’s going to be a while.

 

People in the trials signed NDAs.

No one has gotten the commercialized device yet.

 

This is why.

 

Though I respect people wanting to remain anonymous, I can’t help but cringe that people are refusing to post their experiences on their own accounts. The fact that they are afraid of Neuromod finding it or somehow jinxing themselves by talking about on an anonymous forum it is so cringe.

They don’t want to post themselves, but tell @Markku to post for them because apparently that cancels out the jinxing voodoo?

We are already anonymous on here, why are people going through two hoops? Soon people will be buying VPNs and creating new accounts to post.

This is actually funny / sad.

 

Why don't you concentrate on posting your audiograms and your history with PRP and Dr. Shim, which you have been teasing about for months. And stop "cock-blocking" our hopes over here!!

(This is me being lightly harassing, as you told me to be).

 

I'd love to share my experiences, however I'm in what appears to be a very long waiting line. I'm an hour's flight away, if that. Tad annoying but I can wait longer, only had this for 20 odd years

 

Aluminum foil hats don't even block EMF. You need a Faraday cage which has to be grounded.

 

Peer review not even started yet? OK, how long does a peer review take?

 

But hang on - you're the person who has been saying that any talk of Neuromod discouraging any public posting by members was nonsense. Yet the evidence is now pretty clear that several members who have decided to buy Lenire are reluctant to talk directly about their experiences for fear of "jeopardizing their relationship" with Neuromod.

Of course I would encourage them to talk directly about their experiences. But I can well understand that Neuromod - having done very well out of this thread so far - might be keen to prevent any potentially adverse publicity.

 

...or these people do not feel comfortable to post on a forum in general. Lots of people "lurk" on forums and don't post.

 

Not posting publicly because of a fear of Neuromod finding out or “jinxing” is illogical and irrational.

No one is currently posting positive or negative things about Neuromod who has gone to see them. These are just them talking about their experience.

Why would anyone be afraid to post about their experience? There is no rational logical reason since we are all anonymous and they would never find out who posted what.

 

Or it could be that it takes a week or two to take effect or for some up to 6 weeks.