Low Frequency Tinnitus

Discussion in 'Support' started by Rachel Murray, Jul 17, 2014.

    1. Della
      Creative

      Della Member Benefactor

      Location:
      Austin, Texas USA
      Tinnitus Since:
      04/2014
      Hi @OnceUponaTime ... I'm so sorry you're going through a bad spell, but I really believe that's what it is, and that it will subside at some point. No one can say when though, which means you have to find a way to cope with it day in & day out while it's bad. Believe me, MANY people here (including me) have had it as bad as you do, with the horrible vibrations and loud engine noises and all of it. I would often wonder how it was even possible to have all that noise and what seemed like *motion* going on in my head! Early on I also had headaches, lots of sinus pressure, and stopped-up ears. Those symptoms were what made my allergist start giving me allergy shots, and he sent me to a couple of different ENT specialists. They didn't know squat, and I didn't go to them for long. I'm still on the allergy shots, because central Texas is a very bad place for allergies, but I don't know that that's connected to the tinnitus. Doesn't seem to be.

      One thing that did help with the pressure (which I figured was sinus pressure) was the NeilMed sinus wash. You can get the kit over the counter at any drug store ... basically you just mix warm salt water in a squeeze bottle and squirt it into your nostrils, either hanging over a sink or in the shower. It's important to use distilled or bottled water, since tap water can have who-knows-what in it. I did that 3 or 4 times a day when it was bad, and gradually it soothed and opened up the passages. It took a long time for my ears to feel open ... like months. The doctors would peer in there and say they saw no obstruction, so it was just a feeling I guess.

      Keep looking for masking sounds ... there are so many out there now! And maybe you'll find something that may not actually mask your sounds, but something you like and can be distracted by. It's so important to try to keep doing things you enjoy. I know that seems impossible right now.

      I too pray for everyone here, and hope there is one day a cure. I feel so deeply for the people who still write in on this thread ... that's why I continue to reply. This was a lifeline for me when things were really awful, and I want to give some of that back to others.

      Big hugs,
      Della
       
      • Helpful Helpful x 1
    2. Della
      Creative

      Della Member Benefactor

      Location:
      Austin, Texas USA
      Tinnitus Since:
      04/2014
      @Mark London, AHA!! Another fibromyalgia sufferer! Did I know that? I'm too sleepy to read back through the posts to find out, but I don't remember it. Anyhow, I've had it for almost 30 years now. Some of us have all the fun, eh?

      Della
       
    3. OnceUponaTime
      Frustrated

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      @ Della Thank you Della for your lovely words. Can you tell me what, if anything helped you?

      @valeri

      Do you not hear the low drone/hum anymore? No more headaches?? How long did this all last?

      Just taking it one day at a time. Seven years now. Just praying for better days to come.
      Hope is a beautiful thing.

      @Robert44 Thank you for the hug Robert. How are you doing these days?

      @Mark London Thank you Mark for the link. I will take a look at it.

      Praying for you all.
      Once...
       
      • Hug Hug x 1
    4. Della
      Creative

      Della Member Benefactor

      Location:
      Austin, Texas USA
      Tinnitus Since:
      04/2014
      @OnceUponaTime, probably the best thing (if you haven't already) is to read back through the whole thread. I just read p. 1 & 2 for the first time in ages, and I had actually forgotten some of the things that helped me back then.

      I'm glad you're feeling up to interacting a bit more. I know what you mean about dropping off the forum ... we can't assume that means everybody is fine. All these years, and I still wonder about some of those folks and how they're doing.

      I think if I had to pick one thing that helped me the most overall, and still does, it would be the willingness to keep trying different stuff. I have a kind of dogged determination to live my life as well as possible, despite the boulders the universe keeps throwing at me. That doesn't mean I don't sometimes go down in a sobbing heap ... but I get back up and try something else.

      Della
       
      • Hug Hug x 1
    5. Audiophile_bg
      Inspired

      Audiophile_bg Member

      Tinnitus Since:
      08/2018
      Cause of Tinnitus:
      Olanzapine
      I have a question for people who have/had low pitched tinnitus.

      Did you ever feel the vibrations/buzzing anywhere else in your body, besides your head? Neck, chest or something like that?

      Thanks.
       
      • Agree Agree x 1
    6. Artmuzz
      Scared

      Artmuzz Member

      I’ve just found out what causes the low bassy drone sound in my right ear. It’s after I’ve listened to music on headphones for a length of time at round about 70% volume. The low frequency bassy drone sound had disappeared for a while until this evening after listening to music on my headphones it came back.
       
    7. Della
      Creative

      Della Member Benefactor

      Location:
      Austin, Texas USA
      Tinnitus Since:
      04/2014
      @Audiophile_bg, yes on the vibrations ... when mine was at its worst, it sometimes felt like my whole body was vibrating.

      @Artmuzz , sounds like you have a reactive kind of tinnitus, where certain things you do can "turn it on". I'm sure you know to be very careful with headphones, for this very reason. That hasn't been my experience, but I've read posts by other people who are sensitive that way.

      Interestingly, there's actually a kind of therapy where you try to find as close a reproduction of your tinnitus sound(s) as you can, and listen to that with headphones for a period of time. Kind of like fighting fire with fire I guess. I tried it once, and it was really freaky. When I took the headphones off, my T was GONE ... it was the first time in ages I had experienced silence. But it was a weird kind of silence, kind of echoey like standing in the middle of an empty cathedral. Shortly after that I developed the worst case of hyperacusis I had ever had. That lasted for days, maybe a week, before it settled down, and my T came back, so I didn't try that again.
       
      • Like Like x 1
    8. OnceUponaTime
      Frustrated

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      Hi @Della. Wow that's scary. Glad the hyperacusis only lasted a short time.

      How are you these days?
      I've decided to go see Dr. Abraham Shulman in Brooklyn NY at the Martha Entenmans Tinnitus Research Center.
      I will report back on how that goes.

      I just keep trying. Im not giving up hope for at least relief. God knows I need a little bit at least. sigh
       
    9. Della
      Creative

      Della Member Benefactor

      Location:
      Austin, Texas USA
      Tinnitus Since:
      04/2014
      Hi @OnceUponaTime , and happy new year! I hope this will be a better year for you in every way. I'm delighted to know that you're going to see someone at an actual Tinnitus Research Center ... yay! Yes please do report back on how it goes. I'll be keeping my fingers & toes crossed. :)

      As for me, my tinnitus stayed at "normal" (manageable) levels during the holidays this year, which was nice. I had a fun visit with family the weekend before Christmas, but SOMEBODY there gave me a bad cold. I've spent the time since then piled up on the sofa with blankets & hot tea, etc., sleeping a lot. It's just now beginning to get better, but we're having lots of cold rainy days here right now, so I'm still staying in. Oh well ... at least we're cozy.

      Take good care,
      Della
       
      • Hug Hug x 1
    10. Bill_
      Insomnious

      Bill_ Member

      Location:
      Germany
      Tinnitus Since:
      04/1998
      Cause of Tinnitus:
      1. loud Concert | 2. loud club | 3. tympanometry
      Can anyone relate?:

      So since Sunday night I have this low drone sound which is FAR worse than everything I had before (high pitched hissing). It feels kinda like the sound of blood rushing through your head. Showering seems to mask it though (which unfortunately doesn’t help me at night when trying to sleep).

      What’s funny is that it seem to go away when I cover my ears no matter if with my hands or with ear muffs. Or maybe it’s just masked by the sound of my own blood rushing since it similar? Has anyone else a similar experience?
       
      • Hug Hug x 3
    11. Della
      Creative

      Della Member Benefactor

      Location:
      Austin, Texas USA
      Tinnitus Since:
      04/2014
      Hi @Bill ... I haven't had that particular symptom, but I know I've seen a lot of people talking in the forum about those kinds of sounds/feelings. Try searching the forum for "whooshing" and "pulsatile tinnitus" and see if that turns up anything helpful.

      For nighttime sound masking, I always recommend https://mynoise.net/
      It has a huge collections of sounds that are customizable, and it will play all night if you want. It's great.

      Good luck!
      Della
       
      • Agree Agree x 1
    12. Artmuzz
      Scared

      Artmuzz Member

      Yeah the low drone sound disappears with me too once I cover my ears with my hands. Another way the low drone sound disappears is when I shake my head which is very strange.

      The low drone sound sometimes appears in both my ears but usually my left ear. I’ve noticed that it gets louder after I’ve listened to music on my headphones. However, the loudness fades away several seconds later and goes back to the usual faint low drone in my right ear which sounds like a distant stationary truck with its engines still running or a gas boiler or an oil refinery in the distance. This is freaking me out as I suffer from anxiety and panic disorder.
       
      • Hug Hug x 1
    13. OnceUponaTime
      Frustrated

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      I suggest you stop using the headphones. Rest your ears.

      I understand. What are you taking to help with the anxiety?? I always suggest to take care of the anxiety first and then, hopefully the tinnitus may back down a bit.


      Once
       
      • Agree Agree x 1
    14. Mark London

      Mark London Member

      Using headphones is definitely not good for my ears. Meanwhile, I've been able to cope with having some sort of background noise during the day. If I wasn't able to do that, I probably would opt to get hearing aide that outputted a masking noise. Meanwhile, after many months, my brain has finally started to become accustomed to the noise. Or rather, I've accepted that the noise is always going to be there, so I've stopped concentrating on it.
       
      • Like Like x 2
    15. Artmuzz
      Scared

      Artmuzz Member

      I’m not taking any medication for my anxiety. The only thing that is helping me with anxiety is reading books by Dr Claire Weekes and watching YouTube anxiety self help videos.
       
    16. OnceUponaTime
      Frustrated

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      I see. Have you tried any medication for it?
      I know some people prefer the natural way.

      Taking a tsp of magnesium in my tea at bedtime helps me a bit.
      This is what I take:
      https://www.vitacost.com/vitacost-tranquility-magnesium-supplement-lemon

      Feel better soon ok. I'll pray for you.
      Once
       
      • Like Like x 1
    17. Artmuzz
      Scared

      Artmuzz Member

      Thanks for the advice.

      I prefer natural supplements. I’ve been taking magnesium citrate that I buy at my local Holland and Barrett over here in the UK. It does help a little bit as well as Omega 3. I find camomile tea with a slice of lemon helps too.
       
      • Like Like x 2
    18. OnceUponaTime
      Frustrated

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      I wish we could get rid of anxiety with the snap of our fingers. sigh
      I find it more troublesome than tinnitus, go figure.
      But, I am calm now, thank God.
      Once
       
      • Like Like x 1
    19. Artmuzz
      Scared

      Artmuzz Member

      I mentioned the low frequency tinnitus on another forum and I have been getting a couple of replys telling me that it could be very serious and I should see my doctor immediately. One poster told me that it could be acoustic neuroma which has freaked me out and put me into fight or flight mode with a panic attack.
       
      • Hug Hug x 1
    20. Mark London

      Mark London Member

      Acoustic neuroma is fairly uncommon. I.e., 1 per 100,000 per year diagnosed every year. If you have recently been seen by a hearing doctor, and had a full exam, the doctor would have recommended further tests, if they suspected that you had such a problem. Such tumors are usually slow growing, so there is no urgent need for you to see a doctor immediately.
       
      • Like Like x 1
    21. Dawna

      Dawna Member

      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Unknown
      Mark, I’m wondering how you are doing since your surgery? I’m contemplating getting my tensor tympani cut but terrified as well!
       
    22. Mark London

      Mark London Member

      Hi - Has a doctor definitely diagnosed you with myoclonus? Do you have a doctor willing to do the surgery?

      In my case, I had a suspected case of stapedial myoclonus. I "think" that this form of myoclonus is harder to definitely diagnose. My doctor was still willing to do the surgery, because he considered it very low risk. He decided to use laser, and cut both the stapedius and tympani muscles. I did not experience any side effects from the surgery, and the packing in my ears for 2 weeks, was not that annoying. Maybe because I had often worn ear plugs for extended periods of times.

      On the other hand, while the surgery temporarily reduced my symptoms for about 1 1/2 months, the symptoms came back. Why? Who knows. Perhaps because I have some form of small fiber neuropathy, and my neurons are not normal. So I'm learning to live with my condition.

      It's really hard to have decide to have elective surgery or not! If you do decide to have the surgery, I wish you all the best.
       
    23. shasta0863

      shasta0863 Member

      Tinnitus Since:
      11/2007
      Was the post op sound the same? What did it originally sound like? Was it constant sometimes, intermittent other times? Was there a feeling of something vibrating and a sound to it too (like a 40-50 Hz bass like booming sound)? I know this isn't normal tinnitus for me, as I have regular high pitch tinnitus.
       
    24. Mikejl46

      Mikejl46 Member

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Not sure,
      I have high and low frequency tinnitus in the same ear. The low is like a truck running out side down the road or the furnace motor running down in the basement. I don't notice the low very much. I would take the low over the high any day.
       
      • Agree Agree x 1
    25. Della
      Creative

      Della Member Benefactor

      Location:
      Austin, Texas USA
      Tinnitus Since:
      04/2014
      Hi @Mikejl46

      I'm the opposite from you: I too have high and low frequency tinnitus (although mine is in stereo), but I will take the high over the low any day. The high frequency tinnitus is way above the range of speech, music, etc., so as long as it's not extremely loud I can ignore it. But for me the mid- and low freq sounds can totally drown out conversation, music, TV, etc.

      We drove up to Taos, New Mexico early last month, and my tinnitus had been pretty well under control for many months, but after about 4 days up there I woke up after a nap one day with a very loud mid-freq buzzing, and it lasted for weeks, long after we got back. I don't know if the altitude affected it (my ears popped a lot as we drove up & down through the mountains during the trip), and/or my allergies, which were awful the whole time. Back in February I had decided on a whim to stop my allergy shots because I didn't think they were doing any good. BAD decision! My allergies got worse & worse, and after we got home from the trip I went back to my allergist and repentantly started my shots again. After a couple of weeks both my allergies and the tinnitus began to settle back to "normal". Is all this related? I wish I knew. I won't be stopping my shots again though.

      Della
       
      • Like Like x 2
    26. Mister Muso
      Busy

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2007 / April 2019
      Cause of Tinnitus:
      Loud music
      Yes, I've had "the hum" since 2007, caused I believe by pyrotechnics at a rock concert. See my "introduce yourself" thread for more details.

      It sounds like a diesel engine running outside the building I'm in constantly, wherever I go. I only hear it when it's quiet enough, so I've habituated to it by now. My main problem is I've got a high-pitched "eeeeeeeee" sound which has increased in volume lately - I'll save that for another thread, but since getting this humming tinnitus I've resigned myself to the fact that I'll not hear silence anymore.

      However, I have had occasions when travelling/on holiday when I've had a day or two of blessed relief, i.e. very little/no hum and I do enjoy a brief remission. It always returns again on the 2nd or 3rd day though. I've wondered about this and if it's actually the brain manufacturing those sounds to compensate for something.

      Also I was living next to a busy road at the time this started so I've wondered if that has influenced the sound that my brain is constructing.

      Hopefully one day we'll know more and even find a cure - I live in hope for myself and my fellow sufferers. As I say I'm habituated to my low tinnitus now so don't give up hope, and be glad if you don't have the high squeal because for me that is much worse at the moment!
       
      • Hug Hug x 1
    27. Mister Muso
      Busy

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2007 / April 2019
      Cause of Tinnitus:
      Loud music
      I have the same, though I think my low frequency is in both ears, and the high only in one. I agree the high is much more annoying.
       
    28. shasta0863

      shasta0863 Member

      Tinnitus Since:
      11/2007
      I now have some low frequency viberating 60hz hum/viberating pulse for no reason. And my so-called expert Neuro-otologist said it's just T and it's brain sourced!!

      I don't get it! How can I have had this issue only intermittently in 2015 not have it at all for years outside 1-2 times briefly that I can maybe recall. Then get it back THE DAY AFTER my grandfather died, and specifically using a new earplug which I had to mold to outer ear that created a weird pressure feeling and bothered my ear. In which I pulled it out and the viberating pulse like sound was SUPER INTENSE and it's been high and low since.

      She says it's just T, and it's brain sourced. I don't believe it.

      How can just driving and coming back make the vibrating become super intense and more a continous type tone until it calms down. Thats just REGULAR tinnitus?? How can just plugging my ear with my finger for 20 seconds cause it to do the same thing, get way more intense and viberate more continously without pause. She says lack of stimulus to the ear, yet in the quiet sometimes it's the lowest and not there at night!

      How can just rubbing the freaking ear set off to vibrate more intensely! She thinks the pain in the ear is from H, I've never had H pain only sounds feel higher. And only have gotten ear soreness from ETD or when this vibration issue started. If this was H pain why did none of the thousand other loud incidents not cause the pain then!

      I can't believe it. I won't be able to live if this is truly just low freq. T thats in your brain. After battling for years for my normal T/H to get in a good place, to NOW have this. She said middle ear issues cause clicking or thumping so it's not that, and ETD can't do it.

      I'm so royally screwed. I feel like I'm going to throw up.
       
      • Hug Hug x 1
    29. Della
      Creative

      Della Member Benefactor

      Location:
      Austin, Texas USA
      Tinnitus Since:
      04/2014
      Hi @shasta0863 , I'm SO very sorry you're having to go through this setback! But really, try to think of it as just a setback ... a flare-up in a chronic illness, like any other, that can happen without warning and when you least expect it. It *might* have been brought on by stress (I'm sorry about your grandfather) or road noise while driving, or who knows what ... or by none of those. Since my own onset of low frequency T (in 2014), I've found that it cycles randomly on its own, gets worse and then better, and yes it's all T but it has its own diabolical mind.

      What I am sure of is that you CAN live with this, and you CAN get to a place again where this is just another part of your condition. It's maddening as hell, and frustrating and depressing when it gets worse, but try whatever works for you to relax and find your coping strategies. I recently took a long nap on the couch one afternoon, and when I woke up I had a really LOUD 60hz hum in my head. Out of nowhere. My own coping strategies when it gets bad are to wear my hearing aids every day and to listen to soothing sounds at night on mynoise.net. Sometimes it takes a week or longer, but this routine seems to eventually calm it back down to my "normal" level, which is tolerable.

      Please take care, and take heart, and best of luck to you.
      Della
       
    30. shasta0863

      shasta0863 Member

      Tinnitus Since:
      11/2007
      I appreciate it, but unless this gets better I don't think it's likely. I have pretty bad T and some H, I've suffered and gone through a lot. 2 months of this has been worse than years of T up and down. It's so bad I can't stomach it. And I can't be in silence when it's bad.

      Can you tell me, since you used the same 60hz I tend to hear, what else you experience? Originally I got this in 2015, but intermittent. It was triggered by awaking sometimes, but goes away with in 1 minute. Driving in car and coming back and turning off, it would be exacerbated. The viberation would be way more intense so you felt it in your ear, and it was a more continuous tone instead of a rhythm. Does your flare up like this?

      When I talk or hum it stops it and starts up right after I stop. When I had a cold last week, and my ears had a lot of pressure like if you're flying, the vibration was gone. 36 hours of peace even with a cold.

      To me, this isn't just brain T like she said. I don't understand how I can go 2016 to may of 2019 without it in this almost 24/7 state, and believe this neuro-otologist who just tells me irregardless of the reason it's just Tinnitus and brain sourced. I have regular T and it's nothing like this. There's no way she's right, it doesn't make any sense.
       

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