Lumbar Puncture Has Stopped My Pulsatile Tinnitus

Discussion in 'Support' started by Michelle Eales, Apr 20, 2016.

    1. Michelle Eales

      Michelle Eales Member

      Location:
      UK
      Tinnitus Since:
      11/2015
      Cause of Tinnitus:
      Stopped smoking and stopped drinking coffee.
      Hi all

      I posted on here a little while ago, looking for support from others with PT, I had suffered with a whooshing sound in my right ear very intense 24/7. My Doctor was pants and very unhelpful. I waited patiently for my specialist appointment and scans, MRI, MRV and MRA. The results showed CSF spaces along the optic nerves. They found Idiopathic Intracranial Pressure. I was booked in for a Lumbar Puncture (Spinal Tap) last Thursday. The pressure from my spine to my brain was 24, they drained it down to 10. Whilst draining the whooshing stopped immediate! However, it has been on and off but has now settled to silence!! I am due to have a follow up on Tuesday and I am going to request a shunt be fitted, as I never want to go through this again, it has been a living hell. It appears the build up of fluid was the cause and it could happen again, so I think if they can fit a shunt then I know I will never go through this again. The difference I feel now in myself is incredible and I so want moJo back. Just want to offer some hope to others suffering with this horrible condition, thoughts to all still suffering. Michelle :)
       
      • Like Like x 10
      • Winner Winner x 1
      Michelle Eales, Apr 20, 2016
      #1
    2. JohnnyMx
      Sunshine

      JohnnyMx Member

      Tinnitus Since:
      Apr/2013
      Great!!!
       
      • Like Like x 1
      JohnnyMx, Apr 20, 2016
      #2
    3. glynis
      Feminine

      glynis Manager Staff Benefactor Ambassador Hall of Fame Advocate

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Great news Michelle and a happy bright future ahead now....stay positive...lots of love glynis
       
      • Like Like x 1
      glynis, Apr 20, 2016
      #3
    4. jeannie
      Stressed

      jeannie Member

      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Noise-induced, Ear Infection, Medication... Who knows?
      Michelle,did you have any more symptoms or just tinnitus?and do you know which scan found cfs spaces?
       
      jeannie, Apr 21, 2016
      #4
    5. zombiechick
      Probing

      zombiechick Member

      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Medication and hearing loss
      Thats super awesome! Congrats!
       
      • Like Like x 1
      zombiechick, Apr 21, 2016
      #5
    6. mandi
      Wishful

      mandi Member Benefactor

      Location:
      West Michigan
      Tinnitus Since:
      4/4/16
      Cause of Tinnitus:
      ear infection
      mandi, May 27, 2016
      #6
    7. Lorac

      Lorac Member Benefactor

      Location:
      Michigan
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Sudden profound hearing loss in left ear.
      Great news, Michelle! I want you to have your mojo back too!
       
      Lorac, May 27, 2016
      #7
    8. Tetra
      Probing

      Tetra Member

      Tinnitus Since:
      01 1969
      Amazing , GREAT NEWS !!!
       
      Tetra, Jul 5, 2016
      #8
    9. Paromita
      Cool

      Paromita Member Benefactor

      Tinnitus Since:
      April 2016
      Cause of Tinnitus:
      Not sure, maybe dental and facial nerve
      Congratulations!!! Peace to you!
       
      Paromita, Jul 5, 2016
      #9
    10. suze

      suze Member

      Location:
      Seattle
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      unknown
      Pretty common to have pulsitile tinnitus from elevated ICP. Usually happens in overweight females (no reference to your personal situation intended). Did you have your shunt yet? Which test found the fluid? Wishing you the best of luck ♡.
       
      suze, Jul 25, 2016
      #10
    11. Richard zurowski

      Richard zurowski Member Benefactor

      Location:
      England
      Tinnitus Since:
      27/12/2012
      Cause of Tinnitus:
      Ear infection.
      Richard zurowski, Jul 25, 2016
      #11
    12. OnceUponaTime
      Facebooking

      OnceUponaTime Member Benefactor

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      Great news! So happy for you. :)
       
      OnceUponaTime, Jul 26, 2016
      #12
    13. Karen
      Talkative

      Karen Manager Staff Benefactor Ambassador Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Wonderful news, Michelle!! I'm so happy you found the cause, and are now PT-free!!
       
      Karen, Jul 26, 2016
      #13
    14. Codaz

      Codaz Member

      Enjoy. Please keep your ears protected and be aware of ototoxic stuff.
       
      Codaz, Jul 27, 2016
      #14
    15. SadMary

      SadMary Member

      Tinnitus Since:
      May 2015
      Hi,
      I just wondered before the lumbar puncuture, did you feel like you had fluid retention, even the slightest bit?
      Thanks
       
      SadMary, Aug 9, 2016
      #15
    16. Priscilla

      Priscilla Member

      Tinnitus Since:
      08/2016
      Cause of Tinnitus:
      unknown
      May the silence be with you!
       
      Priscilla, Jul 14, 2017
      #16
    17. ABakos
      Wishful

      ABakos Member Benefactor Advocate

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      ? neck injury/unknown
      @Michelle EalesCongratulations Michelle, do you know which test showed the ICP?
       
      ABakos, Jul 16, 2017
      #17
    18. Kendall
      No Mood

      Kendall Member

      Location:
      North Coast British Columbia, Canada
      Tinnitus Since:
      10/1994
      Cause of Tinnitus:
      ear infections from congenital cholesteatoma
      If you tap on her avatar you will notice she was last here april 20, 2016.
       
      Kendall, Jul 16, 2017
      #18
    19. ABakos
      Wishful

      ABakos Member Benefactor Advocate

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      ? neck injury/unknown
      @Kendall In other words I will unlikely hear from her?
       
      ABakos, Jul 16, 2017
      #19
    20. Kendall
      No Mood

      Kendall Member

      Location:
      North Coast British Columbia, Canada
      Tinnitus Since:
      10/1994
      Cause of Tinnitus:
      ear infections from congenital cholesteatoma
      Yes
       
      Kendall, Jul 18, 2017
      #20

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