Lumbar Puncture Has Stopped My Pulsatile Tinnitus

Discussion in 'Support' started by Michelle Eales, Apr 20, 2016.

    1. Michelle Eales

      Michelle Eales Member

      Location:
      UK
      Tinnitus Since:
      11/2015
      Cause of Tinnitus:
      Stopped smoking and stopped drinking coffee.
      Hi all

      I posted on here a little while ago, looking for support from others with PT, I had suffered with a whooshing sound in my right ear very intense 24/7. My Doctor was pants and very unhelpful. I waited patiently for my specialist appointment and scans, MRI, MRV and MRA. The results showed CSF spaces along the optic nerves. They found Idiopathic Intracranial Pressure. I was booked in for a Lumbar Puncture (Spinal Tap) last Thursday. The pressure from my spine to my brain was 24, they drained it down to 10. Whilst draining the whooshing stopped immediate! However, it has been on and off but has now settled to silence!! I am due to have a follow up on Tuesday and I am going to request a shunt be fitted, as I never want to go through this again, it has been a living hell. It appears the build up of fluid was the cause and it could happen again, so I think if they can fit a shunt then I know I will never go through this again. The difference I feel now in myself is incredible and I so want moJo back. Just want to offer some hope to others suffering with this horrible condition, thoughts to all still suffering. Michelle :)
       
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    2. JohnnyMx
      Sunshine

      JohnnyMx Member

      Tinnitus Since:
      Apr/2013
      Great!!!
       
      • Like Like x 1
    3. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England,
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Great news Michelle and a happy bright future ahead now....stay positive...lots of love glynis
       
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    4. jeannie
      Stressed

      jeannie Member

      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Noise-induced, Ear Infection, Medication... Who knows?
      Michelle,did you have any more symptoms or just tinnitus?and do you know which scan found cfs spaces?
       
    5. zombiechick
      Probing

      zombiechick Member

      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Medication and hearing loss
      Thats super awesome! Congrats!
       
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    6. mandi
      Wishful

      mandi Member Benefactor

      Location:
      West Michigan
      Tinnitus Since:
      4/4/16
      Cause of Tinnitus:
      ear infection
    7. Lorac

      Lorac Member Benefactor

      Location:
      Michigan
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Sudden profound hearing loss in left ear.
      Great news, Michelle! I want you to have your mojo back too!
       
    8. Tetra
      Probing

      Tetra Member

      Tinnitus Since:
      01 1969
      Amazing , GREAT NEWS !!!
       
    9. Paromita
      Cool

      Paromita Member Benefactor

      Tinnitus Since:
      April 2016
      Cause of Tinnitus:
      Not sure, maybe dental and facial nerve
      Congratulations!!! Peace to you!
       
    10. suze

      suze Member

      Location:
      Seattle
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      unknown
      Pretty common to have pulsitile tinnitus from elevated ICP. Usually happens in overweight females (no reference to your personal situation intended). Did you have your shunt yet? Which test found the fluid? Wishing you the best of luck ♡.
       
    11. Richard zurowski

      Richard zurowski Member Benefactor

      Location:
      England
      Tinnitus Since:
      27/12/2012
      Cause of Tinnitus:
      Ear infection.
    12. OnceUponaTime
      Busy

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      Great news! So happy for you. :)
       
    13. Karen
      Talkative

      Karen Manager Staff Benefactor Ambassador Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Wonderful news, Michelle!! I'm so happy you found the cause, and are now PT-free!!
       
    14. Codaz

      Codaz Member

      Enjoy. Please keep your ears protected and be aware of ototoxic stuff.
       
    15. SadMary

      SadMary Member

      Tinnitus Since:
      May 2015
      Hi,
      I just wondered before the lumbar puncuture, did you feel like you had fluid retention, even the slightest bit?
      Thanks
       
    16. Priscilla

      Priscilla Member

      Tinnitus Since:
      08/2016
      Cause of Tinnitus:
      unknown
      May the silence be with you!
       
    17. ABakos
      Wishful

      ABakos Member Benefactor

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      ? neck injury/unknown
      @Michelle EalesCongratulations Michelle, do you know which test showed the ICP?
       
    18. Kendall
      No Mood

      Kendall Member

      Location:
      North Coast British Columbia, Canada
      Tinnitus Since:
      10/1994
      Cause of Tinnitus:
      ear infections from congenital cholesteatoma
      If you tap on her avatar you will notice she was last here april 20, 2016.
       
    19. ABakos
      Wishful

      ABakos Member Benefactor

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      ? neck injury/unknown
      @Kendall In other words I will unlikely hear from her?
       
    20. Kendall
      No Mood

      Kendall Member

      Location:
      North Coast British Columbia, Canada
      Tinnitus Since:
      10/1994
      Cause of Tinnitus:
      ear infections from congenital cholesteatoma
      Yes
       
    21. Frédéric

      Frédéric Member Podcast Patron Benefactor Advocate

      Location:
      Marseille, France
      Tinnitus Since:
      11/19/2012
      Cause of Tinnitus:
      acoustic trauma
      Patients with pulse-synchronous tinnitus should be suspected to have elevated cerebrospinal fluid pressure
      https://doi.org/10.1177/0300060519857846

      Abstract
      Objective

      This study was performed to evaluate the prevalence and clinical importance of elevated cerebrospinal fluid (CSF) pressure among patients with pulse-synchronous tinnitus.

      Methods
      Nineteen patients underwent height and weight measurements, routine otologic examinations, ear computed tomography, brain magnetic resonance imaging, fundus examination, and tinnitus score assessment. We analyzed the data with Fisher’s exact test, the t-test, and Pearson’s correlation.

      Results
      The mean age of the 19 patients was 39.2 ± 8.1 years (range, 27–54 years), and the mean body mass index was 22.2 ± 1.6 kg/m2 (range, 19.9–24.6 kg/m2). The proportion of patients with elevated CSF pressure was 68%. No significant correlation between the severity of tinnitus and CSF pressure was found. Lumbar puncture and oral administration of diuretics resulted in significant improvement in tinnitus.

      Conclusions
      If detailed physical and imaging examinations fail to detect the definite cause of pulse-synchronous tinnitus, a routine lumbar puncture should be performed to measure the CSF pressure. Elevated CSF pressure should be suspected in patients with pulse-synchronous tinnitus.

      NB: in the other hand (I read it somewhere but I did not keep the link), lumbar punction can cause tinnitus (sudden depression of CSF).
       
    22. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      A decrease in cerebrospinal fluid pressure causes a decrease in intra-labyrinth pressure and this can cause functional inability in the ear in transmitting sounds. Administering an epidural blood patch without delay in the presence of auditory symptoms might reverse it.
       
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