My Journey to Silence

Discussion in 'Success Stories' started by Kara77, Jul 13, 2018.

    1. Shera
      Bookworm

      Shera Member

      Location:
      USA
      Tinnitus Since:
      12/9/2016
      Cause of Tinnitus:
      head trama caused TMJ/neck problems
      Sorry to hear about that, but it does give me comfort that maybe my systems will ease up then. I feel like everything says if you have ETD and it doesn't go away right away you're screwed. Even if it's TMJ related. My ETD definitely makes my T dance and spike.
       
    2. Adriel93

      Adriel93 Member

      Location:
      Chicago
      Tinnitus Since:
      10/22/2016
      Cause of Tinnitus:
      Allergies
      Hello @Kara77
      I truly believe that inflammation is causing my T&H because ever since I got H which was like 5 months ago, Ive been having pain and pressure need temples and jaw area. And when ever I clench my jay, my T gets louder. What do you recommend I should do? Do you think a mouth guard would help? The last time I saw my dentist she told me that she can tell I clench my jaw.
       
    3. Lane

      Lane Member

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug

      Hi @Adriel93,

      You may want to check out THIS POST in which I talked about DMSO being good for inflammation. -- Best!
       
    4. Adriel93

      Adriel93 Member

      Location:
      Chicago
      Tinnitus Since:
      10/22/2016
      Cause of Tinnitus:
      Allergies
      • Like Like x 1
    5. Melike
      Studious

      Melike Member

      Location:
      Istanbul, Turkey
      Tinnitus Since:
      17 / 03 /2017
      Cause of Tinnitus:
      Most probably TMJD and neck issues that came with it.
      Is there any way I can get prescribed for steroids? I am very curious about how much of my T issues is related to my TMJD.
       
    6. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      What do you mean your teeth no longer touch?
       
    7. ClaudiaT

      ClaudiaT Member

      Tinnitus Since:
      07/2018
      Cause of Tinnitus:
      firecracker
      @Kara77 How long did you take prednisone and at what dosage? At what point during the prednisone treatment did you go silent? It sounds like because your cheeks got chubby it might have been a longer course than my son was given (7 days x 60 mg). I am curious because my son definitely has a misaligned jaw. He had braces in two phases, they have been off for a year and our ortho just told us in a few years he will have to have ortho for a third time because his lower jaw is still growing and now his front teeth touch when he bites, not his molars. He's on his way back to his original underbite. He also grinds his teeth and hears popping sometimes when he moves his jaw. Yesterday was his last day of prednisone and his ringing did not improve (although his stress went through the roof so maybe that's why.)
       
    8. Shera
      Bookworm

      Shera Member

      Location:
      USA
      Tinnitus Since:
      12/9/2016
      Cause of Tinnitus:
      head trama caused TMJ/neck problems
      I'm curious when did your son get T?
       
    9. ClaudiaT

      ClaudiaT Member

      Tinnitus Since:
      07/2018
      Cause of Tinnitus:
      firecracker
      @Shera He got it July 6, 2018 - firecracker exploded next to his ear. If you click on my profile name, my original post (I think my only post), tells the full story. :-(
       
    10. Shera
      Bookworm

      Shera Member

      Location:
      USA
      Tinnitus Since:
      12/9/2016
      Cause of Tinnitus:
      head trama caused TMJ/neck problems
      Yikes!
       
    11. AUTHOR
      AUTHOR
      Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      A splint will absolutely help the T and inflammation. Also look into neuromuscular massage therapy. Your teeth should not clench!
       
    12. AUTHOR
      AUTHOR
      Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      Go to your general doctor and ask for steroids. Mine did because I explained the only thing that helped was steroids. But it’s a bandaid and it will come back once the steroids leave your system. But it’s immediate relief in my opinion.
       
      • Like Like x 1
    13. AUTHOR
      AUTHOR
      Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      Apparently my back teeth were touching for 23 years of my life... that is a big no no. Clenching = not good for tinnitus.
       
    14. AUTHOR
      AUTHOR
      Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      I took the prednisone 20 mg and tapered down for 2 weeks. My cheeks were puffy way before I took the steroids because of the misaligned jaw. Steroids is just temporary relief. Once the jaw is back in alignment, the inflammation will die down. It’s not immediate, but you will see slight improvement each day. Like I said, 2 friggin years!!!!! You have to be patient. The inflammatin didn’t build over night. I’ve literaly had 3 sets of braces, lol. It took forever for my teeth to be straight.
       
    15. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      Do they touch now when you close your mouth and bite down?
       
    16. AUTHOR
      AUTHOR
      Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      @kelpiemsp

      Not anymore!! :) The splint trained my jaw to relax :)
       
    17. Adriel93

      Adriel93 Member

      Location:
      Chicago
      Tinnitus Since:
      10/22/2016
      Cause of Tinnitus:
      Allergies
      @Kara77 did you have to wear the splint during the day? My dentist ordered me a mouth guard because I clench my jaw as well. Hopefully it works for me. I heard it works wonders
       
    18. Melike
      Studious

      Melike Member

      Location:
      Istanbul, Turkey
      Tinnitus Since:
      17 / 03 /2017
      Cause of Tinnitus:
      Most probably TMJD and neck issues that came with it.
      I have a question for those who are experienced with TMJ related T @Shera @Kara77 .

      Is ETD the only way that TMJD can cause Tinnitus?

      My jaw specialist said yes I have inflammation around my jaw joints and it can lead to ETD but he doesn't think my Tinnitus is coming from an ETD issue.

      I don't have any ear fullness or pressure issues normally, but when I am in higher altitudes, I don't feel fullness but something like aural pressure, like I can hear my blood stream working. Does not go away with pressure equalizing exercises or anything. It is a very uncomfortable feeling and prevents me from sleeping. Might that be also an indicator of maybe mild ETD?

      Thank you in advance.
       
    19. AUTHOR
      AUTHOR
      Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      @Adriel93

      Yes, I wore splint during the day and night, even at work. When I would answer the phone, I’d take it out. My boss was really cool about it and he said I looked like a bunny with it! But it really did work for me.
       
      • Helpful Helpful x 1
    20. AUTHOR
      AUTHOR
      Kara77

      Kara77 Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      05/2014
      @Melike

      Noooo, I think it’s the other way around for me. I think the ETD was caused from the TMJD. When my jaw started clicking, the allergies and ETD ensued. The inflammation, in my opnion, causes the ETD and allergies. Once you fix the jaw, all the other issues will go away.

      I only get ear ear fullness a handful of times. Just more pressure on my face where my sinuses are. Inflammation does cause tinnitus, so just keep on trying to reduce as much tightness and pressure around your jaw you can.
       
      • Helpful Helpful x 1
    21. Adriel93

      Adriel93 Member

      Location:
      Chicago
      Tinnitus Since:
      10/22/2016
      Cause of Tinnitus:
      Allergies
      @Kara77 did you have hyperacusis like that?
       
    22. Melike
      Studious

      Melike Member

      Location:
      Istanbul, Turkey
      Tinnitus Since:
      17 / 03 /2017
      Cause of Tinnitus:
      Most probably TMJD and neck issues that came with it.
      Hey thanks for the answer!

      The thing is my surgeon thinks TMJD only can cause Tinnitus through ETD. If you have TMJD but you did not end up with ETD, you are not likely to get T, thats what he thinks but I think inflammation around TMJ can certainly alter the nervous pathways out there and lead to tinnitus. I think this was also the case for you, it was not TMJD induced ETD causing your T, it was the inflammation around your hearing pathways. ETD was a side annoyance that came with it.

      The strange thing is, I never had allergies in my life but they suddenly came 5-6 months before the tinnitus onset and I was very surprised. I was basically congested like 3 straight months before T came in. Maybe it was indeed my TMJD causing all those allergies, pressure issues and tinnitus. My case is very similar to yours I think. I had horrible ear & head pressure when it came but all the doctors thought it was due to my anxiety.

      I'll get my splint in a few months. Like you said, I was clenching all my life and I had zero idea about the rule that back teeth should not touch. I try to keep my upper front teeth with the lower front right now and do some chewing muscle strengthening & relaxing exercises. I don't know if they have been helping because my tinnitus literally fluctuates between 0.1 to 10 every day and changes every friggin hour.
       
      • Informative Informative x 1
    23. Bob den Hartog

      Bob den Hartog Member

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Noice induced
      Wait, what? :wideyed:

      My back teeth always touch! That’s their natural state! They fit!

      ME TOO!
       
    24. Bob den Hartog

      Bob den Hartog Member

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Noice induced
      ME TOO!

      ME TOO! :wideyed:

      Well, that used to be the case, before my severe worsening and completely changing of T overnight.

      Which is when I clench my jaws, according to my dentist...

      (...)

      Wait a minute...
       
      • Like Like x 1
    25. Tanni
      Heartbroken

      Tanni Member Benefactor

      Tinnitus Since:
      October 2017
      Cause of Tinnitus:
      ???
      Hang on, me neither... Keeping my front teeth together feels unnatural, and I look like I'm gurning at people. Is this what I should have been doing all this time??
       
    26. Bob den Hartog

      Bob den Hartog Member

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Noice induced
      Yup, same! Also, I really have to actively push my lower jaw to the front in order to make these teeth touch (I have a bit of an overbite), and in order to have the back teeth to touch, the lower only has to go back a little. So they always touch in my resting state. Now, I have been told by my dentist that I clench my teeth - and I do sometimes during the day, but apparently I do so heavily at night.

      Anyhow, ever since I started reading this thread a few minutes ago I grabbed my new splint and started wearing it. :D
       
    27. Tanni
      Heartbroken

      Tanni Member Benefactor

      Tinnitus Since:
      October 2017
      Cause of Tinnitus:
      ???
      I have a splint too but I take it out in my sleep!! My body really does feel like my own worst enemy sometimes. :banghead:

      Might try wearing it during the day too, even though it does make me look like ridiculous :)
       
    28. Bob den Hartog

      Bob den Hartog Member

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Noice induced
      Haha, YES! I wore it the first time last week, but when I woke up, I saw it lying next to me in bed.

      Don’t remember which night I wore it, but last Friday was my quietest T-day in weeks. It can’t be thát easy, right...?
       
      • Helpful Helpful x 1
    29. Bob den Hartog

      Bob den Hartog Member

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Noice induced
      I also have Hyperacusis, but I just remembered that when this started a few months ago, it started with a weird, cool sensation flowing around my temple? The very first time this sensation started, was when I did a massaging-the-temples exercise off a YouTube video, which was apparently for releasing fluids from the Eustachian tubes (since I thought I had ETD after my ear syringing). Didn’t hurt, but that followed with once in a while a warm ear, and then a painfully warm ear... Would thát be inflammation?
       
      Last edited: Mar 31, 2019
    30. Tanni
      Heartbroken

      Tanni Member Benefactor

      Tinnitus Since:
      October 2017
      Cause of Tinnitus:
      ???
      Probably shouldn't admit this, but the first time it happened I Googled to see if it was possible to swallow it in your sleep, as I was sure this was what happened :confused:

      Thinking about it, the week I wore it every night was quite a quiet week for me. Maybe there is a little something to it.

      I'm thinking of seeing a specialist TMJ/Tinnitus dentist in my area soon. I'll let you know how I get on.
       
      • Like Like x 1

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