Melike
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Oct 21, 2018 at 9:11 AM
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Jun 15, 2017
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Gender:
Female
Location:
Istanbul, Turkey

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Melike

Member, Female, from Istanbul, Turkey

I got a middle ear infection in my T ear(due to flu).Regular T is not affected that much, but my intermittent morse code went thru the roof. Oct 15, 2018

Melike was last seen:
Oct 21, 2018 at 9:11 AM
    1. Melike
      Melike
      I got a middle ear infection in my T ear(due to flu).Regular T is not affected that much, but my intermittent morse code went thru the roof.
      1. khushbu likes this.
      2. Tinker Bell
        Tinker Bell
        Sorry to hear that! I hate how getting sick affects my ears more than it ever did before hearing loss. Hope you’re feeling better soon!
        Oct 16, 2018 at 5:27 AM
      3. Melike
        Melike
        Thank you so much @Tinker Bell! Actually I know how you got your T and you and your story were always on my mind this week. I have to take antibiotics but there is nothing else I can do to prevent a possible spread to inner ear.. :/
        Oct 16, 2018 at 8:08 AM
      4. Tinker Bell
        Tinker Bell
        It’s frightening. We worry so much about noise exposure but can overlook the danger of viruses. It sounds like you’re doing a great job of being proactive and doing what you can to quickly recover. I use Flonase and Claritin now at the first sign of a cold and they seem to help dry out my nasal passages. Eww, I know, but necessary for me. Keep me posted on your recovery!
        Oct 16, 2018 at 12:30 PM
    2. Layla23
      Layla23
      I used to have exploding head syndrome too. It sucked sooo bad. I’m always afraid it’ll come back but I try to not think about it.
    3. Layla23
      Layla23
      Hi! I have a lot of your symptoms. Did your visual snow/floaters/other visual stuff get better?
      1. Equalizer likes this.
      2. Melike
        Melike
        Hey @Layla23. I still don't know if I have VS or not. The only thing that I know is I see flickering when I focus on busy dark patterns like the surface of my carpet. But it is absolutely dark with zero texture when I close my eyes. So, I don't know about the VS
        Sep 26, 2018
      3. Melike
        Melike
        @Layla23 I still have lots of light floaters and blue field enthopthic phenomenon(which I believe almost everyone experiences). Exploding head sensation is gone for good thank god. It is so strange that here are lots of mysterious sensations that come with T, some of them leave some of them stay.
        Sep 26, 2018
    4. Melike
      Melike
      I think my T volume never went down for real. I just got better at masking it all the time with other sounds. Sad truth.
      1. View previous comments...
      2. Shera
        Shera
        Well at least you know masking works and can get some relief that way.
        Aug 1, 2018
        Melike likes this.
      3. Melike
        Melike
        Aug 1, 2018
      4. Shera
        Shera
        A little off. I thought I was starting to habituate, but I've been a bit off the rails lately. The intensity is killing me.
        Aug 2, 2018
    5. jjflyman
      jjflyman
      How is your T doing? I'm 21 months in and I had a little spike (small acoustic shock), but it went back to my baseline (mild T) in a couple days.
      So even after this long spikes can still happen. My overall T has decreased a lot, and I'm still hopeful for a full recovery,(it continues to SLOWLY fade) but it may take another 6-12 months
      1. View previous comments...
      2. Melike
        Melike
        @jjflyman Thanks ! I really hope it is a sign of full recovery :)
        Jun 29, 2018
      3. dpdx
        dpdx
        How are you Melike? is it better now?
        Jul 21, 2018
      4. Melike
        Melike
        @dpdx No, its been really spiky for a few weeks for some reason but I tell you what, nobody's T journey is the same so it is probably healthier for you to not check out for other people's progress and compare. I'm assuming you are doing this because I've been there too and it did not do any good. No offense please, just sharing my experience.
        Jul 22, 2018
        dpdx likes this.
    6. Melike
      Melike
      Hi all.Today is my 1 year anniversary with T and I am experiencing the most silent days of this year nowadays. It really gets better :)
      1. Keremsv, ozgeA, dpdx and 6 others like this.
      2. View previous comments...
      3. dpdx
        dpdx
        any update Melike?
        May 14, 2018
        Shera likes this.
      4. Melike
        Melike
        @dpdx unfortunately my T has been a little louder than its normal level for the past 2 months. Don't know why.
        May 16, 2018
        dpdx likes this.
      5. dpdx
        dpdx
        I been dealing with intrusive tinnitus since January, before that I had mild tinnitus. Hyperacusis is also bad. Life sucks now.
        May 18, 2018
        Shera likes this.
    7. Melike
      Melike
      I def feel better but considring the volume of T throughout 10 months.Maybe %10 decrease? :( Is it normal to see major imprvmnt after a year
      1. dpdx, Julien87 and Carlyi like this.
      2. View previous comments...
      3. Melike
        Melike
        @dpdx It is so sad that the song is all about misfortune, doom and gloom
        Jan 28, 2018
        dpdx likes this.
      4. dpdx
        dpdx
        that is why i chose it
        Jan 28, 2018
      5. Shera
        Shera
        @Melike I get what you mean. By my first 3 months my T was almost gone. Then when my jaw got reticked the T just kept getting worse and worse. I know there's been some improvement now, but it's still so intense. The healing/improvements seem so small. My brain is so exhausted.
        Feb 16, 2018
    8. Melike
      Melike
      Its 04.20 am here and cant sleep because of my loud screaming T plus morse code. I am exhausted.
      1. khushbu
        khushbu
        I feel you.
        Hold on.
        Jan 12, 2018
    9. Melike
      Melike
      I'm approaching my 10th monh mark. I am happy to say that I'm mostly out of darkness but sometimes it just makes me want to die. Today.
      1. TheDanishGirl
        TheDanishGirl
        Glad to hear you are doing better. I think bad days will still come sometimes, but as long as we can move forward, better days will come again
        Jan 10, 2018
    10. Melike
      Melike
      Despite the relatively rare occasions that T bothers me A LOT, like today, I am happy to say after 9 months, I am %90 back to my old life.
      1. View previous comments...
      2. Melike
        Melike
        @jjflyman But also I sometimes realize that I dont hear my tone in places where I previously would. I really don't know, it is quite hard to distinguish. Being T free would be too good to be true but I still believe that I will keep improving. 9 months is still the early stages for this monster, right?
        Dec 12, 2017
      3. jjflyman
        jjflyman
        @Melike Yes, 9 months is still early. Progress is so slow. I read someplace (from an ENT report) that 1-2 years is a typical time frame for recovery. IMO, we are both on track. I hope to see both our success stories here next year.
        Dec 13, 2017
      4. Shera
        Shera
        I'm glad to hear you're doing so well. I hope I get to where you are and keep making progress.
        Dec 22, 2017
    11. Melike
      Melike
      I had a major spike yesterday night. Seriously, it was horrifying. But it made me realize how much I've improved since the onset. A lot.
      1. Shera, dpdx, Julien87 and 1 other person like this.
      2. View previous comments...
      3. Melike
        Melike
        It still can subside. Hold on there. We are this >> . close to overcoming this shit. @Shera
        Nov 23, 2017
        Shera likes this.
      4. dpdx
        dpdx
        I hope you are doing well Melike?
        Nov 23, 2017
      5. Melike
        Melike
        @dpdx hey. I had better days, actually. My T is a bit loud for some reason nowadays but I'm coping better compared to the first few months after the onset.
        Nov 26, 2017
    12. Melike
      Melike
      It is so strange that first my boyfriend, then my sister and recently my mother developed T too. It all happened it just 2 months! So weird.
      1. View previous comments...
      2. Melike
        Melike
        @Equalizer Can you just f-off? I am better. I don't talk about my T at all. Why the hell they keep telling me about their T then? why do they lie for no reason? Don't comment on my posts again.
        Nov 12, 2017
      3. Melike
        Melike
        @JurgenG I would say chronic stress. We all have been going through really difficult times in terms of financials, family issues etc. No, we all live in different cities but they spent a considerable time in my house of course.
        Nov 12, 2017
      4. Melike
        Melike
        @khushbu Thanks. No, it did not. It is strong as hell. Still can stop it by pressing my TMJ but I am not able to afford a treatment for my jaw at the moment. My T is not that loud, not noticeable during day time (%90), only annoying at home and night thankfully.
        Nov 12, 2017
    13. Melike
      Melike
      I now have a job ! A pretty good one indeed.
      1. dpdx and stacey like this.
      2. View previous comments...
      3. Melike
        Melike
        @victoria9273 thanks victoria :) I still have bad days where the volume of my T is pretty high, but I am so busy that I can't even think about it. Nighttimes become a torture at that times. On my good days, I don't hear my T during the daytime and I manage to sleep the whole night without waking up
        Nov 11, 2017
      4. Melike
        Melike
        Nov 11, 2017
      5. dpdx
        dpdx
        why not Melike?
        Nov 11, 2017
    14. Melike
      Melike
      In a much better place despite my loud new secondary tone. Thank you my dear over-demanding and merciless school.
      1. Carlyi likes this.
      2. TheDanishGirl
        TheDanishGirl
        Wow, how do you maintain such a calm demeanor? :P, Im envious of that....I would have been in great despair if I developed a loud new tone
        Oct 27, 2017
      3. Melike
        Melike
        @TheDanishGirlKD I am sick and tired of being a mess over and over again. I think I finally learnt how to say 'fuck you' to every trouble that comes with T. My sister, my boyfriend and recently my mother developed T in the last 2 months, that helped me to think that I am not alone, to be honest.
        Oct 29, 2017
        TheDanishGirl likes this.
      4. TheDanishGirl
        TheDanishGirl
        As much as I am sad that your family members has also developed T, I do understand you! It helps to be around people in the same situation, who understands you. I am beginning to become habiatuated but I am not quite their yet.
        Oct 29, 2017
    15. Melike
      Melike
      I need someone from Canada to get in touch with me asap.If you are currently in a job searching process, thats better. I have some questions
    16. sanj100
      sanj100
      Hey there. Hope you're well. I read that you had rTMS done and that it helped you, but from your recent messages it sounds like you are still suffering from tinnitus. Did the rTMS only work short term?
      1. Melike
        Melike
        @sanj100 hey, the short answer is yes. But it is still unclear if my T was brought by a disorder in my left TMJ. rTMS wouldn't work anyways if it was.
        Oct 18, 2017
    17. Melike
      Melike
      I feel like I've had 0 improvement overall for the last 7 months. I can't focus on my life goals. I don't know how to get out of this :I
      1. View previous comments...
      2. vermillion
        vermillion
        No we don't. It's hellish.
        Oct 11, 2017
      3. Melike
        Melike
        Oct 11, 2017
      4. Melike
        Melike
        @Equalizer So? It is the nature of this monster, what can I do?
        Oct 12, 2017
        Shera likes this.
    18. Melike
      Melike
      I am officially diagnosed with TMJD on my T side today. I don't know what to think.
      1. View previous comments...
      2. Casper
        Casper
        Hey @Melike, thanks for your reply. I hope this is the beginning of some real improvement for you. If you don't mind me asking, what kind of treatment is he suggesting?
        Oct 10, 2017
      3. Melike
        Melike
        @Casper he said that we need to get an MRI of my temporomandibular joint before we choose any kind of treatment method.
        Oct 10, 2017
        Casper likes this.
      4. Shera
        Shera
        Keep us posted! I'm very curious what he will have you do.

        Also, did he advise you to sleep on your back if you're a side sleeper?
        Oct 14, 2017
    19. Melike
      Melike
      Menstruation + a BIG HEAVY flu gave me the worst morse code+high pitch ever. Still waiting for it to fade a little bit.
    20. Melike
      Melike
      Lidocain eliminated my T almost completely. Silence is so beautiful.
      1. View previous comments...
      2. John G
        John G
        Maybe I will try some in my morning coffee haha
        @Melike curious if your T will completely go away after you get your wisdom teeth pulled.
        Oct 3, 2017
      3. ABakos
        ABakos
        So, you have Tinnitus due to an impacted wisdom tooth?
        Oct 4, 2017
      4. Melike
        Melike
        @John G hahah, me too !

        @ABakos we still don't know that. A dozen of dental expert think that they are not related. A neurologist on the other hand thinks that it is certainly because of that.
        Oct 8, 2017
        ABakos likes this.
    21. Melike
      Melike
      Now my boyfriend has a brand new tinnitus. We are the T family. YAAAAAAY.
      1. khushbu likes this.
      2. View previous comments...
      3. Melike
        Melike
        @jjflyman Thats unclear. Probably working with loud equipment without ear protection. He is a musician also. I warned him several times but....
        Sep 30, 2017
        jjflyman likes this.
      4. jjflyman
        jjflyman
        Hopefully he will protect his ears from now on, and his T will fade.
        Sep 30, 2017
        Core2Duo likes this.
      5. Doga
        Doga
        Congratz! I feel strangely awkward for saying that. Lol :)
        Oct 1, 2017
    22. Doga
      Doga
      Selam, benzer sorunları paylaşıyoruz. Hatta ben de Ahmet Şirin'e muayene oldum. Erken süreçte olduğu için bana r-TMS uygulamadı hatta FMRI'a bile girmedim ilaç tedavisiyle geçiceği yönünde umudu vardı ama 7 haftadır bir değişme olmadı malesef. Okuduğum bölüm yüzünden ilerleyen günlerde daha da kötü olacağına eminim hatta. Sana birkaç soru sorsam?
      1. Melike
        Melike
        Selam. Olur tabi. Ama mesaj atsan daha iyi sanki, atabiliyo musun?
        Sep 28, 2017
      2. Melike
        Melike
        yorumunu sildim ki mailin görülmesin :) @Doga
        Sep 28, 2017
        Doga likes this.
    23. Melike
      Melike
      Going through the same old hell again. Morse code + loud scream on the left. I hate these swings.
    24. Melike
      Melike
      That time of the month again. Screaming loud left ear <3
      1. Apocalypse77 likes this.
      2. TheDanishGirl
        TheDanishGirl
        Hugs to you :( I sure as hell hope my monthly friend is just on its way, cause my T is also somewhat worse today (hormones?)
        Sep 25, 2017
        Melike likes this.
      3. Melike
        Melike
        Oh, thanks TheDanishGirl. It is always the same story for me, screaming T which starts 3-4 days before my period until the 2nd-3rd day of my period.

        I hate PMS. Please hurry up my little ovarium. Come ooooon :( @TheDanishGirlKD
        Sep 26, 2017
      4. Shera
        Shera
        Mine is coming too and it's already amping things up. Hugs!
        Sep 28, 2017
        Melike likes this.
    25. Melike
      Melike
      I'll write an article about TT for my community management course homework LoL.
      1. Rubenslash, Ally Ev and Autumnly like this.
    26. Melike
      Melike
      I have attended 10 classes since Monday and I rarely heard the T . Feeling a bit normal was definitely what I need. Thank you TT.
      1. Autumnly, Tinker Bell, jimH and 2 others like this.
      2. jjflyman
        jjflyman
        Super happy for you! Mine is fading to the point I only notice it in quiet places too. I hope in another 6 months or so we can both post our success stories here.
        Sep 22, 2017
        Shera likes this.
      3. Melike
        Melike
        @jjflyman Yess ! I hope both of us a continued improvement. I can't wait to read your success story !
        Sep 23, 2017
        jjflyman likes this.
    27. Melike
      Melike
      I only experience visual snow when looking at busy patterns & darker objects. Also not all the time. Is that normal?
      1. View previous comments...
      2. Melike
        Melike
        No, I've started to notice it just after I learnt what exactly is VS. I am not quite sure if it is VS. I don't see little black/white dots, it looks like a jumping/bouncing vision or maybe VS with reaaaally large dots. Sky looks clear, also when I close my eyes, it is absolute darkness. I don't know. @Rubenslash
        Sep 13, 2017
      3. Melike
        Melike
        @Rubenslash It disappears when I look at objects from a closer distance. Maybe something to do with a focusing problem. My mother and BF also say they see it too, but I am not sure we see the same thing.
        Sep 13, 2017
      4. ABakos
        ABakos
        I have been getting flashes of light on the sides of my eyes for a few weeks. It might be visual snow? I thought it was maybe due to a med I was on. I did not know it could related to having Tinnitus.
        Oct 9, 2017
    28. Melike
      Melike
      Spending my days with lots of pickling activities for winter lol. Also preparing lots of tomato sauce. Fully organic !
      1. Julien87 and Rubenslash like this.
      2. View previous comments...
      3. Melike
        Melike
        @Michael Leigh Oh, that would be very lovely and I could also send you a sample of mixed pickle as a bonus :). They make me drool already now. But I have to wait until November to open the bottles :/

        Although I like hot sauces, I think I need my head to taste those delicious pickles. Lol.
        Sep 13, 2017
      4. Michael Leigh
        Michael Leigh
        lol Melike. We have a lot in common. Tinnitus, opera and classical music and now hot pickle. Where will this end lol? It is my birthday in November I’m a Saggi so looking forward to sampling your mixed pickle. If you don’t mind I’ll contact you by PM?
        Michael
        Sep 13, 2017
      5. Melike
        Melike
        Sep 13, 2017
        Michael Leigh likes this.
    29. Melike
      Melike
      I hate my family.
      1. View previous comments...
      2. Michael Leigh
        Michael Leigh
        For the last and final time the term is a saying a (euphemism) it does not mean to "skin a cat". I'm sorry if you don't understand I'm sure other people would. I have a pet cat and would never dream of skinning her I assure you. lol
        Sep 9, 2017
        Melike and Paulmanlike like this.
      3. Foncky
        Foncky
        I guess Paul is making fun of you Michael. British humour ! ;)
        Sep 10, 2017
        Michael Leigh and Paulmanlike like this.
      4. Michael Leigh
        Michael Leigh
        I did suspect Paul was making fun of me Foncky and I even telephoned Glynis as she's a brit and we had a really good laugh about it. I explained that it has nothing to do with skinning a cat, yet Paul was convinced otherwise which led me to believe he knew all along what I really meant. I just played along....Hope you are keeping well.
        Sep 10, 2017
        Paulmanlike likes this.
    30. Melike
      Melike
      Smth strange happened today. My tonal constant T turned into an intermittent faint buzzing for a short period of time while I was doing yoga
      1. Julien87 likes this.
      2. View previous comments...
      3. Michael Leigh
        Michael Leigh
        That's good Melike if music is played in the background. I hope that you find it helpful
        Take care.
        Michael
        Sep 8, 2017
      4. Melike
        Melike
        @Michael Leigh Thank you so much Michael ! Also we've started to practice some insanely difficult yoga poses these days,so most of the time I only try to breathe and not to die, I can't even hear my T LOL.
        Sep 8, 2017
      5. Michael Leigh
        Michael Leigh
        Just make sure you don't get too tangled up in those yoga poses, as you might not be able to get undone...lol Wish you the best of luck with it.
        Michael
        Sep 8, 2017
        Melike likes this.
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  • About

    Gender:
    Female
    Location:
    Istanbul, Turkey
    Tinnitus Since:
    17 / 03 /2017
    Cause of Tinnitus:
    Stress - anxiety? Noise exposure (rare)? TMJD? not sure