Melike
Mood:
Studious
Last Activity:
Aug 19, 2019 at 10:38 AM
Joined:
Jun 15, 2017
Messages:
182
Trophy Points:
216

Post Ratings

Received: Given:
Like 224 87
Agree 57 69
Helpful 5 3
Hug 32 25
Good Question 7 1
Genius 1 2
Funny 2 9
Winner 1 3
Informative 10 5
Friendly 5 19
Useful 1 2
Optimistic 4 12
Creative 3 0
Gender:
Female
Location:
Istanbul, Turkey

Share This Page

Melike

Member, Female, from Istanbul, Turkey

I am at a point where the head/ear rumbling annoys me more than my T itself. Jun 20, 2019

Melike was last seen:
Aug 19, 2019 at 10:38 AM
    1. Melike
      Melike
      I am at a point where the head/ear rumbling annoys me more than my T itself.
    2. Melike
      Melike
      I have graduated from college and got a pretty awesome full time job! Things are good besides T. I aim to be a benefactor with my first pay
      1. Lynny, jeas, Agrajag364 and 10 others like this.
      2. Cojackb
        Cojackb
        Congratulations on graduating AND scoring a job!!
        Jun 17, 2019
        Melike likes this.
      3. TheDanishGirl
        TheDanishGirl
        Congratulations! And very nice that you want to be a benefactor ;)
        Jun 17, 2019
        Melike likes this.
      4. Melike
        Melike
        Jun 20, 2019
        Cojackb likes this.
    3. Melike
      Melike
      Any advice on how to sleep at other people's houses with other people in the same room? I can't sleep without masking (earphones uncomfy )
      1. Lilah likes this.
      2. View previous comments...
      3. Melike
        Melike
        Thanks Lilah. But it might be hard for me to carry my own pillow to the places I have to stay at. Besides I think we don't have these in Turkey. @Lilah
        Apr 22, 2019
      4. Melike
        Melike
        Oh and the sound it makes can be heard by other people in the room, right?
        Apr 22, 2019
      5. Lilah
        Lilah
        Not sure. I think you hear it when you put your head to the pillow.
        Apr 22, 2019
    4. Melike
      Melike
      After a few arguments where he repeatedly accused me of being disrespectful to science just bcs I questioned his methods HE BLOCKED ME lol
    5. Melike
      Melike
      His therapy is basically somewhere between notchrd therapy and TRT and he was on the news like it was some kind of revolution.
      1. SugarMagnolia and Autumnly like this.
      2. View previous comments...
      3. Autumnly
        Autumnly
        Sorry to hear you had such a bad interaction! Just goes to show what horrible person he is. A German network of ENTs ridiculed me on twitter saying I don't know "what tinnitus is about" because I said CBT can help but we nonetheless need medical treatments. These people know exactly what they're doing.
        Apr 14, 2019
        MBH, SugarMagnolia and Melike like this.
      4. Melike
        Melike
        Also ENTs are not aware of the fact that we tinnitus patients are one of the most educated patient groups out there because we have to be educated to fucking help ourselves. Like, you forced us to be this educated with doing absolutely nothing on your part for this ailment(not all ofc) , now it makes you uncomfortable.
        Apr 14, 2019
      5. Melike
        Melike
        Uh, so annoying. Even contributing an idea like you did makes them sick. You have to be 100% agree with them and pay all that you have. Otherwise you are uneducated and absolutely have zero idea about what you are saying.
        Apr 14, 2019
    6. Melike
      Melike
      There is a new ENT scammer in TR trying to convince people that can reduce the volume with a music therapy called "tinimizer". Absolute shit
      1. Mert, Bill Bauer, Contrast and 2 others like this.
      2. Mert
        Mert
        Selam Melike, kim bu arkadaş?
        Apr 15, 2019
      3. Melike
        Melike
        Raşit cevizci sanırım. Beni engellediği için göremiyorum. @Mert. Kullandıkları cihazın adı tinimizer.
        Apr 15, 2019
        Mert likes this.
    7. Melike
      Melike
      A new diagnosis : visible deformative changes on both TMJ & misalignment & inflammation. Will start the treatment at the end of April.
      1. View previous comments...
      2. Bob den Hartog
        Bob den Hartog
        For example, when I swallow, that can change the sound of my T. And drinking water can change the crackling and feeling in my ears. When I press a spot below my ear, can sometimes reduce the volume of T, to immediately return when I release it. A shower (steam?) used to give longer lasting relief. That doesn't seem to be just an acoustic trauma thing...
        Apr 15, 2019
      3. Melike
        Melike
        Apr 21, 2019
      4. Bob den Hartog
        Bob den Hartog
        Hey, well, I got a bit too confident there - I figured I saw those improvements after noise exposure, so I should work on getting used to more noise (we're talking everyday traffic here, or taking a shower). That was a bit much, so it threw me back a while. When I woke up tomorrow, I was a bit better than the last days, though, so hopefully I'm recovering again :).
        Apr 23, 2019
    8. Bill Bauer
      Bill Bauer
      For some of us, hearing both at the same time is easier than having to listen to T alone.
    9. Melike
      Melike
      2 years today. Tinnitus is louder than ever, plus new and new morse codes. No, it does not get better.
      1. View previous comments...
      2. Bill Bauer
        Bill Bauer
        Hopefully your T is due to TMJ, and many people (e.g. threefirefour) got rid of their T once they got TMJ under control.
        Mar 22, 2019
        threefirefour likes this.
      3. Melike
        Melike
        Mar 23, 2019
        threefirefour likes this.
      4. Bill Bauer
        Bill Bauer
        He says he can still hear it in quiet rooms. He credits his TMJ treatment for his improvement.
        Mar 23, 2019
        Melike and threefirefour like this.
    10. Melike
      Melike
      Muscle relaxing lotion and 1 week of supplemental magnesium intake eliminated my 4 morse code tones. Tell me I don't have somatic T again.
      1. Mert likes this.
      2. View previous comments...
      3. Melike
        Melike
        Or muscoflex. Smth like that
        Mar 12, 2019
      4. Mert
        Mert
        Melike merhaba, sayfana yazdığım için şimdiden özür dilerim, şu sebeple buraya yazıyorum çünkü teknolojiden anlayan biri olarak bir türlü özel mesaja cevap vermeyi başaramadım, yardımcı olabilir misin? :)
        Mar 12, 2019
      5. Melike
        Melike
        Selam, yok ya sorun degil. Benim sana yazdigim mesajin altinda "write a reply" diye bir kisim olmasi lazim o yok mu? Yoksa benim profilimdeki information kisminda start a conversation diye bir bolum var. Oradan bir konusma da baslatabilirsin
        Mar 13, 2019
    11. Melike
      Melike
      Here is some positivity;I learnt how to milk a cow yesterday. Not metaphorically, literally. It was a very nice feeling. T is still EXTREME.
    12. Melike
      Melike
      Does anyone get a hum in their head when in higher altitudes? Not a sound, but like a pressure feeling.
    13. Melike
      Melike
      Do you think not committing suicide because of being afraid of hurting your loved ones is a hopeful sign?
      1. hurtingdream and Drone Draper like this.
      2. View previous comments...
      3. Melike
        Melike
        Sorry to hurt your feelings but this was my opinion. Because it is so easy to judge people for living for 'others' when you don't have the experience. There is a thin line between caring for someone so much as if he/she was your own self and living for 'him/her'. @TheDanishGirl
        Mar 3, 2019
      4. Melike
        Melike
        And you are so wrong about that not being able to be deeply felt love thing as I am one of the most love&care deprived child I've seen in my life. It is just luck & timing @TheDanishGirl
        Mar 3, 2019
      5. Melike
        Melike
        oh @OnceUponaTime sorry I somehow missed your comment ! Thanks for the uplifting words. I am currently at a very low point in my life and have little hope all will get better, but as you said, I'll hang on just for the little possibility of having more beautiful days with that man next to me.
        Mar 4, 2019
        OnceUponaTime likes this.
    14. Melike
      Melike
      Why isn't there a suicide line in Turkey? Even killing yourself is considered as 'luxury' here in this darn country.
      1. dpdx
        dpdx
        :(
        Mar 3, 2019
        Melike likes this.
      2. Mert
        Mert
        :/
        Mar 3, 2019
      3. Melike
        Melike
        @Mert Welcome to the forum fellow sufferer ! Don't feel depressed reading my status updates, I belong to the minority whose tinnitus has gotten worse over time.
        Mar 3, 2019
    15. Melike
      Melike
      Had a VERY traumatic wisdom teeth removal. The surgeon had to remove a small portion from my jaw bone bcs the tooth was behind my palate!
      1. Jack Straw likes this.
      2. Melike
        Melike
        Sadly lidocaine did not eliminate my T. Maybe reduced a little. But my morse code was nearly silent, then it came back.
        Mar 1, 2019
        Jack Straw likes this.
      3. Bill Bauer
        Bill Bauer
        At least it doesn't sound like your T got worse following the traumatic procedure...
        Mar 1, 2019
      4. Melike
        Melike
        @Bill Bauer yes, actually at least there is that. But impacted wisdom teeth removal is no joke if the tooth is located in a weird way. Swallowing feels like somebody is stabbing my tonsils, soft palate and eustachian tubes lol.
        Mar 1, 2019
        Jack Straw likes this.
    16. Melike
      Melike
      I am planning to travel abroad next year if I can find myself a reputable ENT or whatever doctor that might be able to understand my case.
      1. Gman
        Gman
        Good luck on that epic quest. Maybe you should try to make an appointment with brownbear from this forum who is an ENT with T. I'm sure it would make him one of the better ones out there.
        Feb 28, 2019
        Bill Bauer likes this.
      2. Melike
        Melike
        Thanks @Gman. I'll try to get in touch with thim first. Thanks for the advice. I had a very traumatic impacted wisdom teeth removal yesterday and along with the unbearable pain and a screaming T, I was thinking I'd go anywhere to even get a pinch of relief.
        Mar 1, 2019
    17. Melike
      Melike
      My ear is like a darn instrument. I can make 35 different noises just by moving my ear canal! I might have a treatable cause, SO ANGRY !
      1. Melike
        Melike
        But of course ENTs won't be able to find it. They are only good at removing nose adenoids.
        Feb 28, 2019
        Manny and Bill Bauer like this.
    18. Melike
      Melike
      Believe it or not. I currently have more than 8 tones all in morse code form aside from the regular T. I wonder how much worse it can get.
      1. Autumnly likes this.
    19. Greg Sacramento
      Greg Sacramento
      Have you had a neck X Ray to see if you have loss of normal lordosis - a straighten c spine? With a straighten C spine there may be compression of a nerve and the occipital and vertebral nerve can relate to TMJ and contractions of the tensor tympani muscle. Is your neck ever sore? Your problems may be all related to a dental procedure and not your teeth. Could you give a list of dental procedures.
      1. View previous comments...
      2. Melike
        Melike
        As for the dental procedure, I hadn't had any dental procedure since I was 13 until this years January. I got two fillings and had 2 wisdom teeth extracted last month, no effect on T. But my morse code went literally through the roof after I got the TMJ MRI where I had to bite something for 15 minutes which I believe put a lot of pressure on my neck & jaw combined with the anxiety of the MRI ( claustrophobia).
        Feb 23, 2019
      3. Melike
        Melike
        Morse code also went through the roof when I got an middle ear infection from the flu, so I am confused. Spine or middle ear issues?
        Feb 23, 2019
      4. Melike
        Melike
        By the way, so sorry for this long posts, but I think this is important ; I have something called thoracic outlet syndrome and my left arm gets purple and numb after a while when I raise my hand after (started 2 years before T). Which means there is a vascular compression somewhere as well, doctors couldn't find anything. @Greg Sacramento
        Feb 23, 2019
    20. Greg Sacramento
      Greg Sacramento
      Sorry Melike, I didn't see your last post. The white matter would not be demyelination and it's probably a harmless mass. What type of tinnitus do you have, because a tapping type could relate to ear muscle spasms and then to the facial nerve? Pulse types of tinnitus would be excluded from facial nerve interaction. Do you get headaches and have you ever been tested for Lyme which is an easy fix in Turkey.
      1. Melike
        Melike
        Hey @Greg Sacramento , no problem and thank you for your help ! I have both regular high pitched T and a typewriter (also known as Morse Code ) T which I can modulate, change or create new sounds by moving my ear canal with my finger. I also have TTTS although not severe. I have never been tested for Lyme, but all of my problems are only located in left. My right side is healthy as a baby.
        Feb 23, 2019
      2. Melike
        Melike
        I get headaches but not very often ( I generally get sinus related headaches after a windy day) and I don't have most of the Lyme symptoms as far as I know. @Greg Sacramento. I get an exploding head syndrome at my sisters and mothers house which are a little above the sea level, which I still cannot understand why. All of these could be related to a super narrow jaw and impacted wisdom teeth I believe.
        Feb 23, 2019
    21. Melike
      Melike
      3 docs (2 ENT) confirmed that the lesion on my parotid gland was nothing but a very common, simple mass. My paranoia doesnt let me relieve.
      1. Drone Draper likes this.
    22. Melike
      Melike
      My USG scan revealed that I have an enlarged (swollen?) lymph node and a incidental cyst on my left parotid gland. No idea what that means.
      1. View previous comments...
      2. Greg Sacramento
        Greg Sacramento
        Where is the lymph node? Place 'enlarged swollen lymph node tinnitus' into internet search. I'm just saying that they can relate to tinnitus, but I would need more details and location. Place 'incidental cyst on parotid gland tinnitus' into search. More details are also needed. Hard, soft, size.
        What you mentioned to Bill yesterday doesn't often happen with care by a good doctor.
        Feb 21, 2019
      3. Melike
        Melike
        @Greg Sacramento The lymph node is also placed on my parotis gland. If it is the same node, I remember it getting swollen for a few times for the past 3-4 years. I did some research but I am trying not go get into too much detail because everything relates to parotid cancer and facial paralysis at the end and my anxiety is already driving me crazy :(
        Feb 21, 2019
      4. Melike
        Melike
        @Greg Sacramento The lymph node is around 1 cm and the cystic lesion is around 7 mm ( hiperintens nodular lesion it says?). Do you think this area might be related to also TTTS? All doctors say it affects only the facial nerve so there cant be any relation to T but I have symptoms of TTTS induced by cheek touching etc. as well :/
        Feb 21, 2019
    23. Melike
      Melike
      Saw a dentist who has an interest in treating T today. She suspects that my T might be due to the lesion in my parotid gland. Scared.
      1. Drone Draper likes this.
      2. View previous comments...
      3. Bill Bauer
        Bill Bauer
        Aren't you hopeful, too?
        Feb 20, 2019
      4. Melike
        Melike
        @Bill Bauer actually I am scared. The only way to treat that lesion is surgery which may result in potentially severely worsened Tinnitus and a complete face paralysis. Then I'll face with the choice of either having debilitating tinnitus all my life or risking a facial paralysis + worsened tinnitus.
        Feb 20, 2019
      5. Bill Bauer
        Bill Bauer
        Horrible...

        I sincerely hope that it won't come to that...
        Feb 20, 2019
        Melike and Jack Straw like this.
    24. dpdx
      dpdx
      Is the cause of your T noise induced hearing loss (acoustic trauma)
      1. Melike
        Melike
        no
        Feb 15, 2019
    25. Melike
      Melike
      Regular T is nothing compared to this Typewriter Evil T. You can't mask it, you can't habituate. Thank god it is not always existent.
      1. Bill Bauer
        Bill Bauer
        Do you have any ideas of what might have caused this new type of T for you?

        In an earlier post, you mentioned that your boyfriend had developed T several months after you got T. How is he doing?
        Feb 16, 2019
        MBH likes this.
      2. Melike
        Melike
        @Bill Bauer I have so many ideas and there are so many theories outside, it makes me feel stressed actually. Btw, this typewriter T is not new at all, it started 2 months after the regular T onset but it is never always present, but when it is, it sometimes takes 1 -2 months to go away / reduce again.
        Feb 16, 2019
      3. Melike
        Melike
        @Bill Bauer Actually he is doing okay. By personality he is just the guy who never cares about what has been going on in his body unless there is EXTREME pain. And he is also a workaholic and %95 of the time thinks about his art so he habituated to it just like that. Lucky bastard :/
        Feb 16, 2019
        Bill Bauer likes this.
    26. Melike
      Melike
      At least I am grateful for my two wisdom teeth removal with no complications so far. I'll get rid of the remaining two on 21st of Feb!
      1. Bill Bauer likes this.
    27. Melike
      Melike
      TMJ MRI revealed that I have a noduler lesion in my parotid gland (very close to T ear).I am freaking out and unexpectedly suicidal tonight.
      1. Drone Draper likes this.
      2. View previous comments...
      3. Melike
        Melike
        @MuffinMan serious clicking & locking on the T side and a TMJ specialist examined my jaw movements and said there is definitely something wrong. But my TMJ MRI says everything is fine, so I am confused a little. I wonder if we still can have TMJD even if the MRI results seem fine.
        Feb 9, 2019
      4. Bill Bauer
        Bill Bauer
        It seems to me that it is too much of a coincidence for you to have that lesion AND T. The doctors who say that it can't cause T are likely wrong. Consider looking into getting that lesion treated...
        Feb 9, 2019
      5. Melike
        Melike
        Will consult a few more ENTs...Will keep you updated about the situation @Bill Bauer
        Feb 9, 2019
        Bill Bauer likes this.
    28. Melike
      Melike
      Had 2 wisdom teeth removal today. Little pain so far. 2 more to go on the T side. Hope it will be the same for them too.
      1. View previous comments...
      2. MuffinMan
        MuffinMan
        I have removed 3 wisdom teeth, I lower left was a night because it was impacted, I got sick for 2 weeks from infect, I still have the lower right to remove, and it's on the side of my T ear.
        Feb 8, 2019
      3. Zeneth
        Zeneth
        my sister had all 4 of hers out at once with no problems
        Feb 10, 2019
      4. Melike
        Melike
        @Zeneth hmm, strange...I felt sad for her, she probably had difficulty with eating for a few weeks :/
        Feb 15, 2019
    29. Melike
      Melike
      My sisters intermittent T is gone on the right and reduced significantly on left after bilateral wisdom teeth removal. DOCTORS ARE CLUELESS.
      1. Striveon likes this.
    30. Melike
      Melike
      Had a dental procedure today ( cleaning + one filling on the T side). No spike so far ! 1 filling + 4 wisdom teeth removal coming soon :(
  • Loading...
  • Loading...
  • About

    Gender:
    Female
    Location:
    Istanbul, Turkey
    Tinnitus Since:
    17 / 03 /2017
    Cause of Tinnitus:
    Most probably TMJD and neck issues that came with it.