My Posting Place

Discussion in 'General Chat' started by threefirefour, Sep 2, 2017.

    1. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Just sent them an email about the "trial"....wait and see
       
      • Like Like x 1
    2. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      MV5BMjM0NDEwMDY3MV5BMl5BanBnXkFtZTcwODI5NDIzOA@@._V1_.jpg
       
      • Funny Funny x 3
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    3. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      • Like Like x 1
      • Agree Agree x 1
    4. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      upload_2019-3-29_11-13-55.jpeg
       
      • Like Like x 2
    5. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      images?q=tbn:ANd9GcRKiTS0ZcJyIoO0a50DFqAY-OlAogHOJw3VeELVVrplybACcm7w.jpg
       
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    6. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      upload_2019-3-29_11-18-13.jpeg
       
      • Like Like x 2
    7. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Petit-Prince-June.jpg
       
      • Like Like x 1
    8. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      6657958-0-image-a-142_1543247596379.jpg
       
      • Like Like x 1
    9. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      LATEST NEWS!
      JohnAdams converts My Posting Place into Monkey Palace Primetime
       
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    10. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Check out all these filthy beasts!
       
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      • Agree Agree x 1
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    11. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      Who made snake oil a thing.
       
      • Good Question Good Question x 1
    12. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      Also, why is Tinnitus week just one week. Can't we possibly have another week for full on awareness. Mayhaps.
       
      • Agree Agree x 1
    13. urgentresearch
      Probing

      urgentresearch Member Benefactor

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown (possibly withdrawal-induced)
      • Winner Winner x 1
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    14. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      • Agree Agree x 1
    15. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      Whereas 50,000,000 individuals in the United States have
      experienced tinnitus, the perception of noises or ringing in
      the ears and head when no external sound source is present;
      Whereas 12,000,000 individuals in the United States
      experience tinnitus to an incessant and debilitating degree,
      such that the sounds in their ears and heads never abate,
      forcing them to seek assistance from a health care
      professional;​

      Jesus fucko.
       
      • Agree Agree x 2
    16. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      And these statements are just from 2004? I can only imagine how much more that has increased, and how many more people were forced to get use to it and live with something that should be cured. Why is 2004 more understanding of that than now?
       
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      • Good Question Good Question x 1
    17. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Because Jastreboff and his ilk forced themselves on the community to make themselves orthodoxy.

      It was a problem before like in the 90's but it's only gotten worse with time. Really only now are people beginning to get fed up because the tinnitus problem has gotten so much worse.
       
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    18. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      I really feel like if people weren't told to get use to it by their doctors and such and oh it won't go away and maybe if more did their own research, more people will see they're being played. It's mind boggling to me though that some people with mild T <--- which is dubbed to be the majority of people are a-okay to be living with this when it's basically a beep of a time bomb ready to explode over the next too big noise exposure. There really needs to be a demand of this rectified and resolved. 2004 made that known - we should be able to make that known too. Though, they are silencing people, especially the majority of VETS with free T therapy. :sour::sour::sour:

      Like when I first read that I was astounded. If you know so many vets are suffering from this shit, your thought is to offer a free form of therapy, but not a treatment? Lmao ok.
       
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    19. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      People used to think that the biggest hurdle for a treatment was how hard tinnitus is to treat. That really isn't the case, it can be treated with bimodial stimulation, which is quite easy. The big problem is our researchers define it more as a cognitive problem than an actual brain problem, so they're attacking completely the wrong aspect of it.
       
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    20. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      Just like how many cases of pain from noise are peripheral neuropathy, but Jastreboff monopolized the field with his own dogma that it's strictly neurological. TRT literally held back hyperacusis research by decades.
      https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/symptoms-causes/syc-20352061
       
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    21. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      How do we undo TRT, and redirect funding and awareness?
       
      • Good Question Good Question x 3
    22. urgentresearch
      Probing

      urgentresearch Member Benefactor

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown (possibly withdrawal-induced)
      TRT is good for many people. But it doesn't work for everyone. Upwards of 15% of cases. That's not even the problem, though. The problem is a predominant belief, up top, that TRT should work for everyone... and so, in cases where TRT does not work, it cannot be TRT's fault... rather, it is the patients who do not benefit from TRT who are somehow to blame. "Perhaps they are not doing it properly. Perhaps they are unwilling. Perhaps they are uncommitted." This is the "problem" with TRT, as far as the treatment ecosystem is concerned. Certain people made some lazy or arrogant or stubborn comments and unscientific remarks years ago about the tinnitus patient population and TRT - and some of these comments and this attitude continues to this day - and these people have helped spread the "habituate or gtfo" and "TRT is infallible" culture. Which obviously interferes with the progress (and conversation) toward a cure for the 15% (or whatever percentage) of patients who, it seems, are habituation-proof. These patients understandably feel brushed aside... while their frustration is seen as symptom of not TRTing hard enough, not being open and willing to TRT. It's a classic "don't question the establishment" or "don't question the State" type problem. The state can do no wrong. Anything that shows the state might be wrong is actually wrong. Burn the 15% at the stake (metaphorically), then everyone will be cured by TRT. In other words, TRT does not need to be undone, it just needs a healthy dose of HUMILITY and reality. Studies that prove it does not work for everyone, like the recent habituation-proof patient pop study, will help open up the gates wider for the 15%.
       
      • Agree Agree x 2
    23. Phendran
      Benevolent

      Phendran Member

      Location:
      Sweden
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Unknown
      I was under the impression that TRT only "works" because the tinnitus treated with it would have faded on its own or the person afflicted would have habituated by themselves.
       
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    24. urgentresearch
      Probing

      urgentresearch Member Benefactor

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown (possibly withdrawal-induced)
      Not the hill I'm dying on. Might be true, might be true in many cases, might be true in most cases. What I'm trying to emphasize is the importance of highlighting the existence of an habituation-proof 15% (or whatever percentage). That is where the research dollars and funding are waiting on. The stronger the case, the better. TRT, habituation, time, whatever. These are not the things that are slowing down and minimizing the importance of research toward the 15%. It's the people who deny the existence of the 15% that are the problem. TRT, whether it helps 1% of patients or 85%. Doesn't really represent the actual problem and barrier to research dollars... That is, until someone takes it too far and says, "FACT: TRT works for 100% of patients, but 15% of patients are non-compliant and they would be cured by it if only they were compliant." The same way tinnitus spontaneously resolving on its own isn't a problem... until someone high up says, "100% of tinnitus will spontaneously resolve on its own... but 15% of patients pretend they are still experiencing problems, or exaggerating, when in reality their tinnitus is getting better." Then, we've got ourselves a problem. TL;DR - it ain't the program(s), it's the people and the propaganda that stand in the way.

      Can't get research dollars for a problem that people high up (effectively) claim does not exist!
       
      • Agree Agree x 3
    25. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      We need to get ENT's interested in PRP.
       
      • Like Like x 2
      • Agree Agree x 1
    26. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Ancient Greeks?
       
      • Good Question Good Question x 1
      • Funny Funny x 1
    27. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      Current Clinical Trials for tinnitus

      Neuromod
      https://www.neuromoddevices.com/
      https://www.tinnitustalk.com/threads/q-a-tinnitus-hub-meets-neuromod-lenire.32369/
      https://clinicaltrials.gov/ct2/show/NCT03530306
      Stimulate the trigeminal nerve and modulate the auditory brain with specific frequencies to cancel out tinnitus temporarily

      University of Michigan
      https://medicine.umich.edu/dept/khri/susan-e-shore-phd
      https://www.tinnitustalk.com/threads/new-university-of-michigan-tinnitus-discovery-—-signal-timing.2805/
      https://clinicaltrials.gov/ct2/show/NCT03621735
      Stimulate the vagus nerve and modulate the auditory brain with specific frequencies to cancel out tinnitus temporarily

      Frequency Therapeutics
      http://www.frequencytx.com/
      https://www.tinnitustalk.com/threads/frequency-therapeutics-—-hearing-loss-regeneration.18889/
      https://clinicaltrials.gov/ct2/show/NCT03616223
      Hearing loss restoration via hair cell regeneration (curing hearing loss should cure some cases of tinnitus caused by it)
       
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    28. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      So many people suffering.... We need a cure.
       
      • Agree Agree x 5
    29. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      Every day, I see a new member join, whether it be barely getting T, or having T for a long period of time. There's people who are connected to higher ups on here who should be able to see with their own two eyes that this is an epidemic that deserves rectification.
       
      • Agree Agree x 4
    30. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      @Contrast do you not like me?

      I have recently noticed you never quote me or @ me when i ask you something.

      What did i do?
       
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