My Posting Place

Discussion in 'General Chat' started by threefirefour, Sep 2, 2017.

    1. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      Yeah, how do I rate my own post "genius"?
       
      • Genius Genius x 5
      • Like Like x 1
    2. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I got you
       
      • Like Like x 1
    3. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      oh shit mpp hit 350. crazy
       
      • Agree Agree x 2
    4. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      D8BTf-9WsAElILH.png D8BTgKTXsAMZB_7.jpg D8BThz0WkAAg35W.jpg
       
      • Like Like x 2
      • Informative Informative x 1
      • Useful Useful x 1
      • Creative Creative x 1
    5. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      • Agree Agree x 1
      • Informative Informative x 1
    6. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      "...over time the unique signal patterns work to reduce and soothe the perceived tinnitus experience" - from the new Lenire website (emphasis mine). I don't mean to be a party pooper but these are weasel words if I've ever seen any.
       
      • Agree Agree x 2
      • Like Like x 1
    7. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Maybe they are using that type of language help layman understand?

      Just my 2 cents
       
      • Like Like x 1
    8. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      Couldn't they say something like "reduces tinnitus" instead of "the perceived tinnitus experience" though?
       
      • Agree Agree x 5
    9. annV
      Fine

      annV Member Benefactor

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
      r/tinnitus sucks, stupid posts get upvoted and actual treatments don't get any spotlight
       
      • Agree Agree x 4
      • Like Like x 1
    10. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Yeah at least they're getting called out on their BS for once. Even other r/tinnitus users are pissed with the community. r/tinnitusresearch is the good reddit tinnitus community.
       
      • Like Like x 2
    11. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      What's going on over there?
       
      • Good Question Good Question x 2
    12. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      anyway, to not clog onto the lenire thread, what is everyone's honest to god thoughts on lenire?
       
      • Good Question Good Question x 4
    13. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      The news of Lenire broke out there, most people are thrilled, CBT-shills aren't taking their loss of relevance to well.
      Great starting point, far from a cure.
       
      • Informative Informative x 2
      • Like Like x 1
    14. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      It might be a cure for some, but for all we know it also might make a small minority of patients worse than before the start of their treatment.
       
      • Agree Agree x 2
      • Like Like x 1
    15. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      I agree with that. I'm also concerned about the exclusion material - paying the 250 to see if you're even allowed to get the treatment or not kind of dampens it for me. But what @threefirefour said, at least it lets it be known, that treatment is very much possible for tinnitus.
       
      • Like Like x 2
      • Agree Agree x 1
    16. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      reddit is a shitstorm
       
      • Agree Agree x 3
    17. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Imagine going to the theme park and instead of the sign just saying
      "you must be X inches tall to ride"
      it saying,
      "For 250 euros we will screen you to make sure if this roller coaster is right for you".
       
      • Agree Agree x 4
      • Like Like x 1
    18. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      upload_2019-6-6_13-3-48.png
       
      • Like Like x 1
    19. Agatha

      Agatha Member

      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Not sure
      John Adams must be pissed there's an actual treatment available now for tinnitus with actual trials done.

      Cuz Dr Shim is the besttttt rightttt! We should all praise Jesus to Dr Shim and forget all other REAL treatments, HEH
       
      • Funny Funny x 1
      • Winner Winner x 1
    20. Agatha

      Agatha Member

      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Not sure
      What's the worst jail term he can get?
       
    21. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      who said I was shitting on it? calm down jabrone.
       
      • Like Like x 1
      • Agree Agree x 1
    22. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      You know nothing. I'm all for it if it works.
       
      • Like Like x 2
      • Agree Agree x 1
    23. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      I asked for people's honest opinions, so what's wrong with them stating it or making light of it in MPP.
       
      • Good Question Good Question x 1
    24. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      • Like Like x 1
    25. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      32udow.jpg
       
      • Like Like x 3
    26. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      • Funny Funny x 4
      • Like Like x 1
      • Agree Agree x 1
      • Informative Informative x 1
    27. Kain
      Disappointed

      Kain Member

      Location:
      California
      Tinnitus Since:
      March, 2018
      Cause of Tinnitus:
      excessive loud music through earbuds
      4625BDDB-3DCB-458F-8245-3A7308BF959C.jpeg
       
      • Like Like x 1
    28. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I swear a cure for tinnitus could drop tomorrow and people would still be complaining about something lol
       
      • Agree Agree x 3
      • Hug Hug x 1
      • Winner Winner x 1
    29. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      32wlbs.jpg
       
      • Like Like x 2
      • Agree Agree x 2
      • Funny Funny x 1
    30. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      The difference is Neuromod had leaked data from both their trials. We saw this information a couple of weeks ago showing its efficacy and that it worked in a clinical setting. They are currently getting peer reviewed and seeking FDA approval. They are even offering refunds to people who it doesn’t work for. They are also continuing to do trials to make the procedure even better.

      Shim hasn’t released any data, hasn’t been peer reviewed, hasn’t sought FDA approval, and doesn’t offer refunds when it doesn’t work. Also, his procedure is 7 times the cost of Neuromod.

      There is a huge difference between these two treatments. If Shim did what Neuromod is doing, I wouldn’t be skeptical of him.
       
      • Agree Agree x 4
      • Hug Hug x 1
      • Winner Winner x 1
Loading...

Share This Page