NeuroVascular Conflict

Discussion in 'Support' started by yareckk, Sep 8, 2014.

    1. yareckk
      Curious

      yareckk Member

      Tinnitus Since:
      01/2014
      Hello t-listeners!
      I'm 41 with pulsatile T. Very high frequency in the middle of the head . I'm looking for guys with NeuroVascular conflict ( eight nerve) to find any support and possibilities to live almost normal life. All good advices will be welcome!
       
      yareckk, Sep 8, 2014
      #1
    2. attheedgeofscience
      No Mood

      attheedgeofscience Member Podcast Patron Mighty Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Resolved since 2016
      Cause of Tinnitus:
      See information page
      Pulsatile tinnitus requires a medical opinion. I suggest you ask @Dr. Nagler or post him a message at the following link: https://www.tinnitustalk.com/forums/ask-a-question.68/

      I realize you probably have already had several medical opinions at this point, but the above is still my suggestion.
       
      attheedgeofscience, Sep 8, 2014
      #2
    3. AUTHOR
      AUTHOR
      yareckk
      Curious

      yareckk Member

      Tinnitus Since:
      01/2014
      Thank you for extra quick answer. Yeah, I had an opinion from a specialist. The problem is this wasn't more than I read earlier. The sentence was: "you have to live with this", so I will try to ;)
       
      yareckk, Sep 8, 2014
      #3
    4. Rog

      Rog Member Benefactor

      Location:
      NY and Brazil
      Tinnitus Since:
      02/2014
      Have you heard of Dr Shapiro from NYU ?? He's a great doctor ! Spent over am hour revising my exams and talking to me. I think I have pulsatile tinnitus too! Went to see him with all my exams but everything is fine , nothing to be found . Don't know where you leave but you can send him DVDs of CT scans or MRI .

      Good luck :)
       
      Rog, Sep 9, 2014
      #4
    5. billy43
      Lucky

      billy43 Member

      Location:
      nj usa
      Tinnitus Since:
      9/28/13
      I also was lucky enough to see Dr Shapiro .he was by far the best and most caring specialist I saw.he couldn't find anything unusual on my scans but at least he wanted to run some other test.but there were risk involved with such test.but I would recommend dr Shapiro to any one who has pulsatile tinnitus and wants to exhaust all options in finding a cure
       
      billy43, Sep 9, 2014
      #5
    6. Laura89
      Tired

      Laura89 Member

      Location:
      Calgary, Canada
      Tinnitus Since:
      Feb 14, 2014
      Hey folks, I also have pt, what's your pt like? Is it there all the time? Mine sounds like the heart of a baby thru an ultrasound and sometimes I do have silence for some moments if I am very still etc. I can also feel pulsations on the pt side.... Its very strange. I have had an MRI that did defected some abnormalities however I haven't seen a neuro yet so.... I don't know how those abnormalities have anything to do with the pt...
       
      Laura89, Sep 12, 2014
      #6
    7. Karen
      Talkative

      Karen Manager Staff Benefactor Ambassador Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, Laura,

      I have unilateral (right side only) PT, and it is constant. When it first started, it was very loud, and I often felt as if my whole head was vibrating. Also, when I tried to sleep, it made my whole body feel as if it was shaking. Now, my PT sounds like a distant drum; it always seemed to have a drum-like sound to me.

      Since my PT started after taking a blood pressure drug, it seems to be calming down now that I have my blood pressure under control. I've had many tests, and a cause has not been found. However, I'm going to continue working on keeping myself calm and keeping my blood pressure under control. That seems to work best for me.

      Anyone else wish to describe their PT?
       
      • Like Like x 1
      Karen, Sep 12, 2014
      #7
    8. billy43
      Lucky

      billy43 Member

      Location:
      nj usa
      Tinnitus Since:
      9/28/13
      hi laura89.my pt is a hissing that gets louder and faster with exercise ,jaw movement body movement ect.mine is also constant and is bilateral.but at least im able to forget about it at times when im keeping busy.thank god for some reason it doesn't bother me when sleeping. thanks billy43
       
      billy43, Sep 13, 2014
      #8
    9. beemovie

      beemovie Member

      Location:
      USA
      Tinnitus Since:
      Nov 2013
      Just wondering what your mri said? Are you also sensitive to sounds?
       
      beemovie, Nov 12, 2014
      #9

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