New Tinnitus Sufferer, Some Help Needed

Discussion in 'Introduce Yourself' started by FlatDarkEarth, Jul 9, 2018.

    1. FlatDarkEarth

      FlatDarkEarth Member

      Location:
      Tennessee
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Metal Concert/Hydrops
      Hi All,

      New guy here. I initially developed Tinnitus after a loud concert in May of 2017. I'd rate it at a .5 or 1, very low and only noticeable when my ear hit the pillow or in a totally quiet room.

      In May or 2018 it got much louder suddenly (4-6 I'd say), I'm not sure why. I've had an ongoing sinus infection/inflammation for about a year, that doctor's have been unable to get rid of despite multiple antibiotics, nasal rinses, steroids, etc. But it doesn't seem to match up with the Tinnitus to me.

      My new ENT diagnosed me with Meniere's Disease/Endolymphatic Hydrops. However, I do not have any issues with Vertigo at all - I have tinnitus, hearing loss in one ear, and slight ear pain on both sides occasionally.

      My Questions

      1) Main one is - is intravenous, or other types, of steroids still worthwhile at this point in time? I have seen some studies and sufferers say IV steroids helped recover some of their hearing loss, or reduced their sudden tinnitus a bit.

      I am 7 weeks into the worsening of my symptoms (May 21st), where most of the studies on IV steroids or testimonials suggest anywhere from 6 hours to 2 weeks is the time frame for this to make a difference. Is it still worthwhile to pursue some IV Steroid treatment, or anything else I can do close to the 'acute' period of tinnitus?

      2) Does anyone have any personal experience or opinion on the Meniere's diagnoses? I do not have vertigo, which I find really puzzling, and I've read Meniere's diagnosis are very spotty. I do have tinnitus (right side much worse) hearing loss (right side worse on an ABR test, tone/speech tests are mostly uniform). Not sure what to think about that. and I am worried about it progressing obviously.

      Thanks for any help or information you guys could provide to me. Appreciated!
       
    2. Nice
      Bookworm

      Nice Member Benefactor

      Location:
      Bay Area, Ca
      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Sudden hearing loss
      Welcome, I'm new to all this too. I have found this whole thing to be very mysterious. There are a lot of moving parts and for me it happen so suddenly. I like this support group because there are knowledgeable, compassionate members.

      Monica
       
    3. dayma
      Frustrated

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Trying steroids even outside of that time frame is something neurologist or ENTs will try since the health risks are low in doing so. The positives far outweigh the negatives should it expose anything like inflammation somewhere that’s the cause.
       
      • Agree Agree x 1
    4. Dylan Blake
      Predatory

      Dylan Blake Member

      Location:
      BG386
      Tinnitus Since:
      April 27 2018
      Cause of Tinnitus:
      Unknown
      Greeting one who thinks our world is flat when it's clearly square and well lit.

      A member of the site's staff, glynis, has Meniere's, You may want to ask Her as far as personal experience goes, https://www.mayoclinic.org/diseases-conditions/menieres-disease/diagnosis-treatment/drc-20374916 try this for intel on diagnosis, I won't tell You what the symptoms are, You might end up foolin' Yourself into thinking You have it!
       
    5. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      @FlatDarkEarth ,
      You could possibly have Hydrops but not Meniere's Disease as you would really know about it and be having a lot more side effects.
      love glynis x
       
    6. AUTHOR
      AUTHOR
      FlatDarkEarth

      FlatDarkEarth Member

      Location:
      Tennessee
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Metal Concert/Hydrops
      Thanks for the advice Glynis - that's what I was thinking as well.

      @dayma - Thanks, my ENT rejected my request for steroid treatment, so I need to find out how else I could go through a course. What a pain
       
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