New to the Forum and Searching for Ideas — Here's My Story

Discussion in 'Introduce Yourself' started by Procyon, Sep 9, 2019.

    1. Procyon
      Depressed

      Procyon Member

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      Last March I went to bed after an ordinary day, and when awoke I had this pulsing buzz in my left ear. I assumed it would pass as the day progressed. The noise persisted. I assumed it was ear wax or something simple.

      After a week or so, I called my ENT and made an appointment. He examined my ear and told me that everything he could see was normal. The noise got worse. On a follow-up appointment, he diagnosed my symptoms as pulsatile tinnitus and suggested a steroid and physical therapy. Therapy was a waste of time and the steroid did nothing.

      On the third visit, he ordered an MRI with contrast. The results were normal. He referred me to a specialist. I met with the specialist and heard pretty much the same story: everything that can be seen visually and on the MRI is completely normal. I had turbulent blood flow somewhere in my inner ear and there were no reasonable surgical procedures he would try to relieve the condition. I was told to live with it.

      It certainly feels like a blood flow issue. I can modify the sound by moving my jaw or neck and it’s much more intense when I’m exercising. I’ve checked my blood pressure several times and it runs 110 to 120, which seems normal.

      It’s now September and it seems much worse. My ear is so loud and overwhelming that it’s ruined my life. I’m riddled with anxiety. I keep trying to research my condition, but I can’t find anything that offers hope for pulsatile tinnitus. On desperate evenings I blast music thru an earbud in an attempt to mask the sound. It’s very loud.

      What drives me mad is that some days are better than others, but I can’t identify a pattern. I’ve tried low sodium, no sugar, earplugs, exercise/no exercise…nothing seems to have a direct cause/effect relationship. Of course eliminating these things is not as simple as it sounds. There’s sodium and sugar buried in almost everything except lettuce, and I don’t know if something I consume this morning affects my tinnitus tonight or tomorrow.

      I feel desperate and without hope. I would welcome anyone’s wisdom regarding a dietary change or treatment option that I could try.
       
    2. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
    3. Extreme
      Paranoid

      Extreme Member

      Tinnitus Since:
      8/2019
      Cause of Tinnitus:
      Unknown
      Please be careful. This could make it worse. Try to only do the amount you need. Don't try to match it. Just enough. You have to take care of the ear as well.

      What about a different doctor then? Maybe one who can rule out any blood disorders? Or a neurologist? I really think the goal of ruling conditions out is a good one. It's how I survived with agonizing stomach issues.
       
    4. fishbone
      Shitfaced

      fishbone Member Hall of Fame

      Tinnitus Since:
      1988
      Cause of Tinnitus:
      loud noise and very bad sickness
      Why possibly cause more and louder ringing? Noise induced tinnitus and hearing loss is probably the biggest culprit for all ranges of tinnitus. Why risk making it moderate or severe?
       
      • Agree Agree x 1
    5. AUTHOR
      AUTHOR
      Procyon
      Depressed

      Procyon Member

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      Well OK, "blast music" was a bit overstated. I do try to match the two sounds as best I can so the ringing doesn't take over my complete focus.

      I don't think my tinnitus is damage from loud noises. I've always been careful with my hearing. The diagnosis of "turbulent blood flow" leaves me confused about the cause and the remedy.
       
    6. billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      Welcome to the forum. I don't have pulsatile tinnitus but we do have a separate support forum for members with PT. You are welcome to post your story there so others with similar condition can advise you. Hopefully you can be helped there. Good luck. God bless.
       

Share This Page

Loading...