New to Tinnitus, Questions About TMJ

Discussion in 'Support' started by Della Renee, Oct 13, 2015.

    1. Della Renee

      Della Renee Member

      Tinnitus Since:
      Hi, everyone-
      I'm semi new to tinnitus and thankful for a place to be able to ask questions from people who actually understand what this is like. I'm 29 and my tinnitus started this past May. When it began, it would only last for about a minute every few days. Enough that I noticed it, but not something you would go to the doctor about. In the months leading up to that time, I had also begun getting tension headaches that didn't want to respond to any headache medicines. Then in June, I started waking up every day with a headache and feeling like my jaw wanted to fall off my face. As far as I was aware, I had never had an issue with grinding/clenching before, so I was really confused as to why it seemed to come on so strong. But I went to the dentist and he confirmed that the muscles in my jaw were all "jacked up". He prescribed a muscle relaxer which really did nothing except cause me dry mouth.
      Then in August, the tinnitus became constant and extremely loud. I thought I was going insane. Went to 3 ENTs, went to a neuro, had an MRI/MRA, was prescribed steroids, got off of every medicine I had been on, went to a chiropractor. Absolutely nothing has helped, I have spent a ton of money, and of course every test has come back normal. I've gotten much better at dealing with the tinnitus on a daily basis, but still feel very discouraged when I think that I may have to deal with this the rest of my life.
      At this point, I'm on the verge of giving up, but not quite there yet. I recently went to a TMJ specialist who couldn't find anything wrong based on the initial visit (par for the course) but wants to do panoramic X rays to see what he can find. Before I do that, though, I would like to ask if anyone else has had success or improvement going down this path. I'm tired of spending hundreds of dollars just to be told that everything looks normal (I was probably one of the only patients the neurologist had that almost cried with the MRI came back normal), but the bruxism timing just seems to be more than a coincidence.
      I do sit in front of a computer for several hours a day (and have for 7 years) and I read in another post that poor posture can cause TMJ. Any thoughts here?
      Again, so thankful to talk to people who know what this lovely condition feels like. Family has been extremely sympathetic and helpful, but they just don't understand how depressed and nuts this can make you feel.
    2. DebInAustralia

      DebInAustralia Member Benefactor Advocate

      Geelong, Victoria
      Tinnitus Since:
      hi Della,

      I am really sorry that you are having to deal with intrusive tinnitus. You are in the right place though so far as support and information.

      I wouldn't go so far as to say I am habituated, but I will say that like you, I am coping with it much better than I did in the beginning (nearly 2 years ago ).

      Since my onset, I have returned to work (midwife), my household, my life. I miss waking up to the quiet, but with the help of some self cbt/mindfulness +/- support from a few people in similar situations, I am mostly at peace with my t and h these days.

      Things that help me are:

      . plenty of REM sleep
      . relaxation and fun/exercise
      . ketogenic diet
      . distraction
      . cbt/mindfulness
      . taking advantage of residual inhibition (white noise for me)
      . talking with people who understand life with intrusive t when need be

      I have avoided benzos/medications for my own personal reasons. that's not to say that you shouldn't try this if you feel you need to when things are all too much.

      My life is mostly wonderful again...of course there are days when I obsess about the pre t life.....but I quickly try to train my brain to just focus on the now...and I just get on with things..........

      I have found the 'back to silence' threads particularly inspiring. I am in the process of trialling this method, and though I cant say 'im there' yet, I can say, its definitely helping relieve the anxiety/negative reactions to my t. I know this is going to continue to habituate.

      I hope this helps
    3. glynis

      glynis Manager Staff Benefactor Ambassador Hall of Fame Advocate

      England, Stoke-on-Trent
      Tinnitus Since:
      Cause of Tinnitus:
      Meniere's Disease
      I have TMJ,
      I had a mough guard made by a maxillofacial specialist to wear at night to take the Pressure off my jaw ...lots of love glynis

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