No Debate — Reactive Tinnitus — I Need Help Please

[Layla23]

I'm begging all of you please do not make this a thread about "is reactive tinnitus" even real?
If you have to ask that...this thread does not apply to you. Please do not prevent me from getting the help that I need from the people that will understand.


I am 23 and I am at my wit's end.

I have my "normal" tinnitus like everyone else. It is deafeningly loud in silence But I genuinely don't care because it's a constant hiss noise. I sleep like a baby.

However, I have other tinnitus tones and one is reactive. It doesn't come from my ears it comes from my head. I step outside and even the noise of wind causes my head to start making weird electrical noises. They are IMMEDIATE reactions to noise and they are LOUD. And then they STAY loud for about an hour after exposure. The tinnitus sounds like Really distorted squeaky electrical pulses. They are not constant. It's almost like when a DVD players keeps skipping.

It's not a "constant" tinnitus so I don't even know how to describe it. It's literally like "shooting noise". When I say loud I mean louder than 90 decibels. Once I'm in semi silence I can still hear it react to the fridge but it's so low in volume that I don't care because my other constant T tones drown it out .


People with reactive tinnitus, besides TRT, how do you cope? I really need a positive story from someone who has had this for years. Please I haven't found anyone with severe reactive tinnitus.

 

[Contrast]

I am so sorry people are saying reactive tinnitus does not exist, and you have it in such an extreme case.

 

[Greg Sacramento]

@Layla23 Hi Layla If you use the search above there are 600 posts on reactive tinnitus that span a few years. Lots of quick available information and experiences.

 

[Layla23]

@Greg Sacramento

All of the posts I have found are people arguing about the definitions of reactive tinnitus with no real advice besides TRT.

Am I missing something ?


Thank you for your help.

 

[Greg Sacramento]

@Layla23 https://www.tinnitustalk.com/threads/coping-with-reactive-tinnitus.9498/

 

[Contrast]

@Greg Sacramento

All of the posts I have found are people arguing about the definitions of reactive tinnitus with no real advice besides TRT.

Am I missing something ?


Thank you for your help.

TRT isn't even real advice.

 

[Michael Leigh]

I am so sorry people are saying reactive tinnitus does not exist, and you have it in such an extreme case.

Reactive tinnitus does exist and the correct name for it is hyperacusis, which comes in different levels of severity and needs to be treated.

 

[Michael Leigh]

I'm begging all of you please do not make this a thread about "is reactive tinnitus" even real?
If you have to ask that...this thread does not apply to you. Please do not prevent me from getting the help that I need from the people that will understand.


I am 23 and I am at my wit's end.

I have my "normal" tinnitus like everyone else. It is deafeningly loud in silence But I genuinely don't care because it's a constant hiss noise. I sleep like a baby.

However, I have other tinnitus tones and one is reactive. It doesn't come from my ears it comes from my head. I step outside and even the noise of wind causes my head to start making weird electrical noises. They are IMMEDIATE reactions to noise and they are LOUD. And then they STAY loud for about an hour after exposure. The tinnitus sounds like Really distorted squeaky electrical pulses. They are not constant. It's almost like when a DVD players keeps skipping.

It's not a "constant" tinnitus so I don't even know how to describe it. It's literally like "shooting noise". When I say loud I mean louder than 90 decibels. Once I'm in semi silence I can still hear it react to the fridge but it's so low in volume that I don't care because my other constant T tones drown it out .


People with reactive tinnitus, besides TRT, how do you cope? I really need a positive story from someone who has had this for years. Please I haven't found anyone with severe reactive tinnitus.

Your Reactive tinnitus or oversensitivity to sound which I call Hyperacusis, to give it its proper name needs to be treated. In cases such as yours, you may need TRT which requires wearing 2 white noise generators and counselling with a Hearing Therapist. You could try self help which I describe in my post: Hyperacusis, As I see it, but I suspect you need to see a Hearing Therapist or Audiologist that practices treatment for tinnitus and hyperacusis (sensitivity to sound)

Michael

 

[Michael Leigh]

@Greg Sacramento

All of the posts I have found are people arguing about the definitions of reactive tinnitus with no real advice besides TRT.

Am I missing something ?


Thank you for your help.

You need to seek professional help and the best advice I can give you is to see an ENT doctor for tests, and then get a referral to a Hearing Therapist or Audiologist that specialises in Tinnitus and Hyperacusis treatment and management.

Michael