Otosclerosis Symptoms and Stapedectomy

Discussion in 'Support' started by golfie, Jun 21, 2020.

    1. golfie

      golfie Member

      Tinnitus Since:
      05/2018
      Cause of Tinnitus:
      Otosclerosis
      Hello all,

      I need your great support and advice to make a correct decision on stapedectomy.

      Background:
      I am 31 years old. I have been diagnosed with otosclerosis in my right ear since 2 years and my ENT advised me to go for stapedectomy instead of hearing aid. But I was afraid of surgery and he told that if I don't opt for surgery then the condition may worse or stay same. So I decided to give a chance without surgery. But recently the tinnitus on my affected ear got worsened and I feel dizziness/tiredness and ear fullness/clogged/pressure feeling almost every evening after dinner. Now sometimes I feel the tinnitus in my left ear (hearing is still good) also.

      Whether ear fullness/pressured/clogged feeling is also a symptom of otosclerosis?

      I am often closing my nose and pumping the air out of the ears to get temporary relief.
      Whether doing this thing often would affect something in my middle/inner ear or ear drum?

      Now I am planning to go for surgery since I am annoyed of increased tinnitus and clogged feeling but my wife is pregnant and I am looking after her. We are expecting the baby in November and I got a date for the surgery in August.

      Is it a good idea to go for surgery at this time?

      Will I be able to recover completely in a couple of weeks post surgery so that I can start driving car and look after my pregnant wife?

      Whether postponing the surgery for 6 months would reduce the chances of getting back hearing and affect my middle/inner ear more?

      I knew these are lot of questions and I kindly request the members to share their valuable experience to make a correct decision.

      Thanking you in advance and have a good day!
       
    2. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Can you post your audiogram here? (blank out any personal info)

      How was otosclerosis diagnosed (i.e. why did the doctor think you have otosclerosis)?

      Recovery from surgery can vary. You will have packing in the ear which is going to make that ear go completely deaf until the packing is removed. That happens generally 1-2 weeks after surgery, and I would not recommend driving without having stereo hearing if you are not used to it (mono-hearing drivers are common, but they know they can't locate sound and have adapted through years - your brain doesn't).

      I would limit the valsalva maneuver as I doubt it is helpful for otosclerosis. I think too much of it can be dangerous, and suspect it may have aggravated my case.

      If the disease has affected your inner ear, you should probably think about the timeline for surgery. In my case, surgery + fluoride seems to have arrested the progression of the disease. Talk to your doctor about it. In fact, you should probably talk to 3 different doctors about this: it's a non-trivial surgery and you should have several opinions to form your own.

      Lastly, check your surgeon's stats: what's his/her personal stats wrt % of side effects after his/her surgeries? In particular, how many of his/her patients ended up completely deaf in that ear, got facial drooping, lost sense of taste or smell forever, etc.

      Good luck!
       
    3. Kimsvenk

      Kimsvenk Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Otosclerosis
      Hi there!

      Did you have the surgery already? I just had mine (stapedotomy) done last Thursday, 10th September.

      I'm curious how you have experienced the recovery period.

      Cheers.
       
    4. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      It's a tough surgery. Recovery isn't easy, especially with severe T, because that's all you will hear until the packing is taken out. Hang in there until that point.

      Do you still hear your T?
       

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