Outpatient Tinnitus Clinic, Self-Help Web Platform, or Mobile Application to Recruit Patients?

Discussion in 'Research News' started by Tinnitus Talk, Apr 21, 2017.

    1. Tinnitus Talk
      Balanced

      Tinnitus Talk Knowledge Base

      tinnitus-talk-hub-survey-frontiers-research-topic.png
      About a year ago we asked all of you to complete a tinnitus survey we created.

      A whopping 5,017 of you did, which, as far as we know, made it the largest online survey ever carried out on tinnitus to date.

      Later on, an article about the survey was published in the American Tinnitus Association magazine Tinnitus Today.

      We, and the community, also piqued researchers' interest. This followed in further analysis of the survey results as well as us being invited to research conferences.

      Today, we're proud to announce the fruits of our labor.

      As part of the Frontiers Research Topic "Towards an Understanding of Tinnitus Heterogeneity," a scientific article we were co-authors of, has now been published.

      The title of the study is "Outpatient Tinnitus Clinic, Self-Help Web Platform, or Mobile Application to Recruit Tinnitus Study Samples?"

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      Large sample sizes are required for understanding of tinnitus heterogeneity. It is investigated how these three different sets of samples differ and what the potential implications for clinical research are.

      It may seem a modest achievement to some when the noises still persist in our ears and all of us want a cure or a treatment, but getting there is a process and one of the obstacles to tackle is further understanding of the heterogeneous nature of tinnitus and also the patient experiences.

      It is therefore a great pleasure of ours to announce that in the near future we'll be launching a follow up survey investigating the physical links of tinnitus and also a project on tinnitus and exercise. Many people are able to modulate their tinnitus by different kinds of physical movements and activity, and we want to learn more about this.

      There is a real change in the air. The research community are connecting more with patients and they want to know what matters to us as outcomes. We have an unprecedented opportunity to play a major role in ongoing research and understanding of tinnitus, on the road to the cure.
       
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    2. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Well done Tinnitus Talk and Tinnitus Hub.
      Love glynis
       
      • Like Like x 4
    3. IreneO
      Procrastinating

      IreneO Member Benefactor

      Location:
      Dublin, Ireland
      Tinnitus Since:
      12/2014 (mild), 03/15 (severe)
      Cause of Tinnitus:
      Head trauma, then acoustic trauma, then more acoustic trauma
      Amazing work, thank you to all involved.
       
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    4. jacob21
      Amazed

      jacob21 Member Benefactor

      Tinnitus Since:
      2008 > 2009 "cured" >2nd onset June 2016
      Cause of Tinnitus:
      Noise Induce ( loud music )
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    5. BrStan@

      BrStan@ Member

      Location:
      London
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Acoustic trauma
      Finally some attention. Hopefully some day in my life time the nasty "learn to live with it" will be replaced with something effective.

      Well done guys you are changing the history.
       
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    6. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      Finally, the medical and scientific communities get the value of patient input in research! It may not be a cure, but Tinnitus Talk indeed is making history. These are the same professionals who in the past were claiming online communities did nothing but spread misinformation and urged their patients to steer clear.

      Congratulations and thanks to @Markku and @Steve. Your hard work and determination will make life better for all tinnitus sufferers.
       
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    7. OnceUponaTime
      Fine

      OnceUponaTime Member Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      Well done. Thank you. :)
       
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    8. Gurutogod

      Gurutogod Member

      Location:
      Gresham, Oregon
      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Menieres like attack
      Great work!!!!

      Yes you can regulate your tinnitus with exercise, the key I found was to start slow, a gradual increase to your performance standards.

      The noise level is intense at first but after several months you'll notice a dramatic reversal of your tinnitus noise levels. I go up to 4 or 5 days of very low tinnitus on a hard workout now.
       
    9. Panos Spoudeas

      Panos Spoudeas Member

      Location:
      ATHENS GREECE EUROPE
      Tinnitus Since:
      1993
      Cause of Tinnitus:
      UNKNOWN
      I am so glad this forum exists - I know that when the cure comes I will first read it in my email.

      Thanks for existing guys!
       

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