Please Create Your Success Story Instead of Just Leaving

Discussion in 'Success Stories' started by RobertFahey, Dec 11, 2018.

    1. Chris Holland
      Movie buff

      Chris Holland Member

      Location:
      Amsterdam
      Tinnitus Since:
      November 2017
      Cause of Tinnitus:
      Life
      That sounds like heaven.
       
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    2. Chris Holland
      Movie buff

      Chris Holland Member

      Location:
      Amsterdam
      Tinnitus Since:
      November 2017
      Cause of Tinnitus:
      Life
      Oh how I miss those moments.
      Way to describe it too bro, I could almost (not) hear it hahaha.
       
    3. Chris Holland
      Movie buff

      Chris Holland Member

      Location:
      Amsterdam
      Tinnitus Since:
      November 2017
      Cause of Tinnitus:
      Life
      That leaf sounds a lot like a mosquito on steroids then.
       
    4. Chris Holland
      Movie buff

      Chris Holland Member

      Location:
      Amsterdam
      Tinnitus Since:
      November 2017
      Cause of Tinnitus:
      Life
      I know right? I barely flinch these days if I hear sounds that annoyed the hell out of me before hahaha.
       
    5. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      This forum could use a lot more success stories though. I get people wanting to leave and turn their back, and forget they had tinnitus, but most of them come in with... like, I feel so sorry for anyone's who had to suffer from it for a long time and such. The least they can do is be like, my tinnitus is gone, BYE -
       
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    6. Tom Cnyc

      Tom Cnyc Member

      Location:
      NYC
      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      Warehouse event after years of enjoying music.
      People here don't want success stories. Every time someone posts one half the thread is "MAKE SURE YOU DONT LIVE LIFE EVER AGAIN" "STAY AFRAID" "OH, SO YOU'RE NOT PERFECT, NOT REALLY SUCCESS".

      It's literally the only reason I haven't written one on this forum.
       
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    7. MarkX

      MarkX Member

      Tinnitus Since:
      March 2019
      Cause of Tinnitus:
      Unknown
      Hi @Tom Cnyc,

      I read in some of your earlier messages that yours was fading. Has it faded a lot now?

      thanks,
       
    8. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      I think it's because the majority of people want to reminded it's possible for total tinnitus remission. I don't know about all the other comments though. HAHA.
       
    9. Tom Cnyc

      Tom Cnyc Member

      Location:
      NYC
      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      Warehouse event after years of enjoying music.
      I only hear my tinnitus in dead silence these days. Some days even then it's barely noticeable. It's a non issue. I go to concerts all the time (with earplugs).
       
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    10. Jiri
      No Mood

      Jiri Member Benefactor

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise + injury
      That's a success story right there. Thanks for sharing.
       
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    11. acute
      Depressed

      acute Member

      Location:
      Spain
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      Loud music. Stress, long taking meds ?
      Are you being sarcastic or is your tinnitus really gone? I'm confused.

      Success history! :) I'm glad for you.
       
    12. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Damn. How much for those ears?? They must be made of iron.
       
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    13. Hazel
      Dreaming

      Hazel Director Staff Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Yes we do need that! We're now planning a video series of success stories, because it's bound to be more impactful/helpful than just the written ones. We also want to select some of the written ones and really highlight them so they're easy to find for whoever is looking for inspiration.

      Please PM me and Markku if any of you want to take part in the video series!

      I know exactly what you mean. I didn't want to write one for the same reason, but I did do it in the end. Of course you'll get some people shitposting, but you can report that to us, we want to moderate the Success Stories section pretty tightly. It's not OK to crap on other people's personal experiences just because it doesn't align with one's views on what tinnitus sufferers "should be" like. That just sucks... It's really sad that people won't write their success stories for fear of being attacked :(
       
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    14. Hazel
      Dreaming

      Hazel Director Staff Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      I sooooo much agree! (see also my post above) Did you write your story in the end? Or would you be willing to tell it on video? (with our guidance of course). I too clung to the success stories in the beginning, it really helped me recover. This could help so many people. And @Markku and I will protect you (and anyone else telling their personal stories) from the firing squad. I will say it again: It's not OK to crap on people's personal stories just because they don't align with your views. I willl make a stand for that if need be!
       
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    15. kmohoruk
      Nerdy

      kmohoruk Member Benefactor

      Tinnitus Since:
      07/2005
      Cause of Tinnitus:
      Loud Noise, Ear Infection, TMJ
      I'll repost mine here. Success stories got me through a lot of tough days in the beginning.

      I'm currently starting a new full time career, in a new city, with my long term partner. I cannot say this enough... you CAN learn to move forward with tinnitus and hyperacusis.

      5 years ago if someone told me I would be where I am now - I wouldn't have believed them, but it can be done. It takes time, patience, courage, and determination but it can be done :).
       
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    16. Hazel
      Dreaming

      Hazel Director Staff Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Wow, that's quite a story. Would you be willing to tell it on video?

      Btw, the TRI conference in 2020 will be in Vancouver. Anyone in the vicinity is welcome to join us there (if we can get some budget for tickets).
       
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    17. DebInAustralia
      Fine

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      https://www.tinnitustalk.com/thread...ry-instead-of-just-leaving.32804/#post-396486
       
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    18. Hazel
      Dreaming

      Hazel Director Staff Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
    19. Shelly75

      Shelly75 Member

      Tinnitus Since:
      20/07/2018
      Cause of Tinnitus:
      Noise induced
      @DebInAustralia
      Hi - is there a way I could private message please?
      Thank you
      Michelle
       
    20. John Meyers
      Artistic

      John Meyers Member

      Location:
      Chicago, IL
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Just One (1) Loud Rock Concert!
      I've been gone for 2 years (I've had tinnitus for 4 years now) and my tinnitus is more annoying than ever (if I don't mask, exercise, etc).

      I love this forum, however, after 2 years daily postings was not able to get the same kind of mental relief. (I've tried most of the suggested 'remedies' but none worked.)

      I think that is why most folks leave -- They just want to move on and try not to think about it.

      Just my opinion since I also used to wonder why people would be so engaged and then just vanish from this forum...
       
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    21. kmohoruk
      Nerdy

      kmohoruk Member Benefactor

      Tinnitus Since:
      07/2005
      Cause of Tinnitus:
      Loud Noise, Ear Infection, TMJ
      Thank you @Hazel . It indeed has been quite the journey over the past 5 years. I’ll PM you privately about about the video.

      Oh wow! I had no idea that the TRI conference was in Vancouver next year. I would definitely be interested in going and providing a report back to TT. :)
       
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    22. Tom Cnyc

      Tom Cnyc Member

      Location:
      NYC
      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      Warehouse event after years of enjoying music.
      Honestly, I think some moderation on success stories would go a long way for this group. It's disheartening for new sufferers to look there for hope only to have it torn away by reading the full thread. This is certainly how it felt for me 3 years ago. The main reason I still visit this site is to offer some positivity.

      Your video series sounds interesting. I'd consider participating, but may balk because I really don't love being filmed. This morning my ears rang pretty audibly for about 15 minutes before returning to the usual tape hiss. It's always worst in the morning, and I attribute this to issues with my neck muscles since a hot shower and some stretching usually alleviates 90% of it. I still have some form of permanent tinnitus but I have "healed" twice now in 3 years from very intrusive, hear it all the time, 2350 Hz tone of annoyance to a tape hiss that doesn't bother me in the slightest. First time (which took about 18 months) was from acoustic trauma, the second time (took about 5 months) was from a very bad ear infection. Untreated strep throat, sadly because I avoided antibiotics due to irrational fear of a "spike".
       
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    23. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Wish I got more changes. I had tinnitus about 10 years ago for about a week and it faded to nothing. This time... no fading. It is here to stay.
       
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    24. emmalee
      No Mood

      emmalee Member Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      hearing loss
      I agree, @Tom Cnyc. Thank you for still visiting.
       
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    25. Markku
      Inspired

      Markku Founder Staff Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      I do hate that. We know of a few others who have not wanted to post a success story because of being afraid getting crucified.

      @Hazel actually got crucified herself when she posted her success story - I had to clean that thread up right there and then. It was very difficult for Hazel to deal with - I witnessed her crying in the aftermath. We don't want others to face the same. Hazel has put more effort into our common cause than anybody else I know. She's so damn selfless and still some people question her like she's the witch. Mind-boggling.

      I would also like to note that some of the worst threads in success stories have been where people have assumed "if I can do it, then you can too!" while being very vocal about that - that really can strike a nerve, and for good reason. Which in turn can create an incredibly nasty argument.

      In any case, the video series will be wonderful. We already have three people lined up - Hazel, Megan, and one other Dutch person. We're planning on getting a studio in Amsterdam to film those sometime over the next two weeks.

      If someone else wants to do a video-based success story, please contact me privately.

      (And I admit it without question - we need to become more vigilant with moderating the Success Stories. I wonder if there's someone who'd like to volunteer moderating solely the Success Stories? Someone with a whip...)
       
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    26. TealD

      TealD Member

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Noise induced
      @Markku
      Is there a particular reason why there are so many Dutch people on this forum? Is awareness of tinnitus more pronounced in the Netherlands? Or genetically Germanic descent people are more likely to get it? Curious because I am of Dutch descent living in California.
       
    27. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      Who has whips and a voice in this forum though.
       
      • Good Question Good Question x 1
    28. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      I love success stories and I'm here with degenerative diseases, physical pain, pulsatile sounds/booming, loud high pitch somatic tinnitus and hearing loss/tinnitus. I come here to support others with physical tinnitus so they may be able to post a success story. I'm not alone with physical treatment suggestions as we have many caring members.

      I am bothered by those with short term mild tinnitus that come and say I can't hear it anymore and it will happen to you - everyone. Sometimes one will respond back with applause and mention that their issues are long term and severe. IPs far too often repeat that you can hear silence too. This may also be a reason why some with severe issues stop posting. I found the answers why condition message boards often have a larger older membership, but with less posting and the reasons are heart breaking.

      Both success stories and stories by those that have severe issues need to be told, regardless of the medical condition. Success stories offer hope for many. 90% with tinnitus don't have moderate severe or severe issues. For many, proper medical care could make a difference and if the sorrows are not told, healthcare will continue not looking for physical cause.

      @Chris Holland I'm so happy for you.
       
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    29. Tom Cnyc

      Tom Cnyc Member

      Location:
      NYC
      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      Warehouse event after years of enjoying music.
      Gabber??? Lol
       

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