Possible Pulsatile Tinnitus — Very Worried

Hi Everyone - Brand new here, and am hoping to find some good information and possibly comfort with what I am going through. About 3 or 4 weeks ago I had a couple days where my ears felt plugged and then started having a pulsing feeling/sound in my ears and head that is constant but does go up and down with my heart rate/pulse. I also noticed my hearing was slightly sensitive to high pitched noises but feel no loss of hearing. I do not have any ringing, just a constant pulse/heartbeat feeling/sound. It actually seems like I can feel it.

I recently went to the doctors thinking it had something to do with my ears and perhaps I had Estuchian Tube Dysfunction. When I was there and I explained the heartbeat sound my doctor listened to my neck and mentioned that my blood was 'rushing'. He requested that I come back in a few days so he could listen again, so I am going back later today.

Since that doctors appointment I really tried to focus on the sound/feeling and see if it was coming from my ears or not. I have noticed now that it actually seems to be only my left ear and that when I put pressure on the veins in the left side of my neck it stops.

I am a little worried that the doctor asked me to come back, obviously he heard something. Could this indicate that there is something underlying causing this pulsing feeling/sound.

I am so worried about this and just feel like breaking down most days

 

Difficult to say, but that may actually be good news, relatively speaking. It may mean something can be actually done about your symptoms. Pulsatile tinnitus is different from regular tinnitus. See chart below (left-hand side).

 

@Karen thank you for your kind words. I did go back to the doctors yesterday and he again said that my blood is rushing quite fast through my veins, so he is sending me for some testing and to a cardiologist. He mentioned he could hear a very light heart murmur, but wants to get it checked out just to be safe.

Right away he said it was pulsatile tinnitus, but that in majority of cases where there is no cause found it is only an issue because patients have noticed it and then become anxious about it. He mentioned once you become aware of it people allow it to be something they think about all the time, therefore it is strongly attached to anxiety. So basically I felt like he was trying to say everyone could hear this but only certain people tune into it. That just doesn't make sense to me, I have never noticed this pulsing any other time in my life.

I am having bloodwork done, and also an ultrasound done of the veins and arteries in my neck to start with so I am crossing my fingers something is found!

Thanks again for listening and any helpful advice, it is much appreciated!

Danielle

 

That is so weird...

You're actually hoping that something is found... In any other case we'd be hoping that nothing is found.

 

@undecided should I not be hoping they find something? Maybe just my mistake, I was thinking if something was found it may lead to a solution.

 

Well I hope they don't find anything and your T is resolved which is the best scenario!

 

@Karen thank you for the kind words of encouragement!

I have also requested to be referred to an ENT, I would like to have my ears and hearing checked just as a precaution. But I agree that the bloodwork and ultrasound are a good place to start.

I did a bit of research today for Tinnitus specialists/clinics in my area and turns out there is a Tinnitus clinic at a nearby hospital that offers TRT and both individual/group info sessions, counseling and support groups. So I think that might be a great idea for me to get involved with eventually as well. In order to attend the clinic you must have documentation from an ENT which is why I have requested to go see one as well.

I am trying to stay positive! I find the emotional aspect of this the hardest as I have always been an anxious person.

Thanks again for the support!

 

I also agree about wanting something to be found. It sounds like yours is probably a more classical whooshing PT, mine is a pulsating hiss.

When you get the ultrasound I would mention to the technician that the noise stops when you push on the veins, and which ear so they can spend extra time in that area.

 

@Karen do you know if it is normal to feel a bit of lightheadedness or a little dizzy from the PT? I also feel like the pulsing goes up the side of my head and gives me a bit of pain/headache up the side which feels weird. Any insight you can lend is great, thank you!

 

Hi @Karen

Thanks again for your insight, it is so reassuring! I have done some bloodwork and am back to my doctor to review on Wednesday evening. I will continue to post about any findings and progress.

Thanks for all the support!
Danielle

 

Hi @Karen, one more question for you if you have a moment.

Is it normal for the pulsating to increase with heartrate and exercise? For instance after walking or running up a flight of stairs the pulsing is so strong and fast it is a pounding I can feel it in my entire head. Is that normal, or do you have that as well?