Should I Take Retigabine?

Discussion in 'Support' started by Poyraz, Mar 28, 2016.

tinnitus forum
    1. Poyraz

      Poyraz Member

      Tinnitus Since:
      February 2016
      Cause of Tinnitus:
      Benzos, Stress, Anxiety, Loud Music, Jaw Problems. Who knows
      It has been 2 months since I got tinnitus. Should I take it under my doctor's direction? Is it good for an acute phase?
       
    2. Mithrandir
      Ape-like

      Mithrandir Member

      Tinnitus Since:
      10/2015
      Cause of Tinnitus:
      Acoustic Trauma + NIHL
      1/ Maybe yes. 2/ Maybe yes
       
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    3. Poyraz

      Poyraz Member

      Tinnitus Since:
      February 2016
      Cause of Tinnitus:
      Benzos, Stress, Anxiety, Loud Music, Jaw Problems. Who knows
      This is exactly what I thought
       
    4. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      Find a doctor, preferably a neurologist, with specific experience prescribing the drug, and go from there. You can pretty easily find people on here who will steer you one way or the other based on anecdotes and speculation.
       
      • Agree Agree x 2
    5. Poyraz

      Poyraz Member

      Tinnitus Since:
      February 2016
      Cause of Tinnitus:
      Benzos, Stress, Anxiety, Loud Music, Jaw Problems. Who knows
      I live in Turkey and I doubt that there are doctors who have any idea about this drug but I'm convinced that I want to give it a try.
       
    6. Alue

      Alue Member

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      Unfortunately most neurologists have zero interest in treating tinnitus.
       
      • Agree Agree x 1
    7. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      Agree with @linearb. This is a drug with serious side effects.These things can make your condition worse, you know, or cause serious problems. There must be a doc somewhere in your country with experience re. this med. Basing your decision on what people post on an online forum sounds foolish to me. But up to you.
       
      • Agree Agree x 2
    8. ReyKalinic

      ReyKalinic Member

      Location:
      NImes
      Tinnitus Since:
      2004/05
      Cause of Tinnitus:
      Triggered by TN
      how to convince my neurologist to prescribe trobalt without making mention of the forum? ( he hates the forum and told me not to look)

      hopeless
       
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    9. Zug

      Zug Member Benefactor

      You don't convince your doctor. You tell him you came across the information that it can help you and hear to what he says. He's a professional. If you have any reason to think he is not good enough, go ahead and look for another opinion, but you go to the doctor to get his training and experience benefits.
       
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    10. Richard zurowski

      Richard zurowski Member Benefactor

      Location:
      England
      Tinnitus Since:
      27/12/2012
      Cause of Tinnitus:
      Ear infection.
      I think This drug is to dangerous to take for tinnitus . It's only used in cases of severe epilepsy.where no other drug has worked. No one realy knows the long term effects this drug is going to have on the human body. I certainly won't use this drug no matter how bad my tinnitus is.
       
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    11. Christian82

      Christian82 Member

      Tinnitus Since:
      6/2014
      Just wondering is Retigabine something that should be tried in the first few months or does it also work if you are 2 years in ?
       
    12. Poyraz

      Poyraz Member

      Tinnitus Since:
      February 2016
      Cause of Tinnitus:
      Benzos, Stress, Anxiety, Loud Music, Jaw Problems. Who knows
      This is exactly why I would want to ask. I think one guy who was the acute phase in the forum solved his T with the drug but there are also other people get a relief from their T for some time period.
       
    13. ReyKalinic

      ReyKalinic Member

      Location:
      NImes
      Tinnitus Since:
      2004/05
      Cause of Tinnitus:
      Triggered by TN
      Thank you. I think the second suggestion could be better even if will be another ordeal. thanks
       
      • Like Like x 1
    14. Christian78
      Alone

      Christian78 Member

      Location:
      Gothenburg
      Tinnitus Since:
      (Sep 2013)
      Cause of Tinnitus:
      progressive tinnitus, time of expiring in next 3-6 months
      and did you got trobalt from doctor, what is your situation now?
       

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