Silence After 4.5 Years (Medications from Company Called Decola)

Hi @Margrietje,

No worries, if he/she doesn't speak English it could be especially difficult for me to get in touch with him/her.
I will try to find another similar type of doctor in Europe.

Thanks anyway for sharing your story, for me it's going to be a new starting point.

 

Update.

When I take these supplements, most of the time:

- I don't feel fear (and I hardly ever have panic attacks).
- I think it is quieter (but not all the time).
- I no longer feel the compulsion to confront tinnitus (previously I listened to my tinnitus compulsively, now I almost always drown it.

My situation is more humane.

 

I’m really glad that I helped at least one person by sharing my story. Because I’m still quite easily scared, I’m currently on a more psychological mission. I’m currently working with a therapist, and I consider hypnosis too. Physically I’m still better than ever.

I wish you all the best!

 

@Margrietje, how have you been doing?

 

Sorry to ask but are you in the US? I would try it if I knew what to buy here.

 

Fine, really. It's not always quiet in my ears, but I can say it's pretty much gone 95% of the time. After all these years I am still struggling terribly with my anxiety disorder though. Busy places terrify me, I am still worried that the initial beep will come back / get worse. But physically I'm okay.

 

@Margrietje, did you experience Visual Snow too?

 

I had to Google Visual Snow first, but hey you freaked me out Two days ago, in the evening, I suddenly saw a lot of “floaters” (got that word from one of the Visual Snow images on Google) in the edges of my field of vision. It was temporary though, but the coincidence with your comment! I read some of the information on Google about imbalances in the brain, and I totally believe there could be a link with tinnitus.

 

Hm, that probably confirms my speculation about the link between tinnitus and visual snow syndrome. It's probably the same hyperactivity you can hear and see as tinnitus + floaters / visual snow syndrome. It all makes sense now.

 

Hi @Margrietje, what tests did they do to check your intestines?

 

How can a keto diet cause a tinnitus spike?

Keto is considered healthy. I've been on a similar diet for about 2+ months after I got rosacea and the diet is turkey, chicken, almonds, eggs, berries, cereal, salmon - in that order.

I've also noticed that my tinnitus has gotten a tad worse.

 

Any changes to diet can cause/worsen tinnitus but it is not the norm. Generally, Keto and AIP diets, along with fasting will improve tinnitus and related symptoms. For some people these metabolic changes may cause transient increases to their tinnitus and other health conditions. It’s a “gets worse before it gets better” paradoxical effect but, for others the metabolic changes don’t agree with the body for whatever reason and the increase in tinnitus will stay as long as you are dieting.

I personally believe there are many types of anti-inflammatory diets that help with different conditions but it’s not a one size fits all. We should all eat what makes us healthy but that doesn’t always translate into the same diet for everyone.

If you’ve been having increased tinnitus for 2 months on your modified diet, something you are eating (or not eating) is likely triggering it and I would expect your tinnitus to resolve to baseline once you fix it. One thing I noticed is you mention cereals, almonds and berries. All these can spike tinnitus: cereals can spike insulin and berries and almonds are high in salicylates. For many people salicylates can increase tinnitus.

 

I'm having about the same number of non-annoying days with tinnitus. About 15 a month. However, my very good days of tinnitus went from about 10 to 5 or 6.

 

What about live yogurt and kefir? They are full of probiotics. Has anyone tried them?

 

Hi!

It’s been a while. One week ago I got diagnosed with Ménière’s. The ENT said that the problems I still struggled with (sudden deafness and echo in an ear or other forms of disturbances) + the pressure tests were enough to give me the diagnosis. My balance has never been the best, but I don’t have dizzy spells yet the ENT was very sure about my case.

When I asked why I didn’t get this diagnosis sooner, she told me that my age at the time (16 years) and the fact that I didn’t experience dizziness probably pointed another way.

So now I’m on Betahistine. Just wanted to keep y’all updated.

Stay strong everyone xxx

 

Any update?

 

I still have positive effects from these drugs

 

I’m doing fine physically as long as I’m not too tired. I still struggle with every day sounds though, it’s like a full time panic disorder. Or are you asking about something more specific?

 

@Margrietje and how is the tinnitus now on a scale of 1-10? How long did you suffer before you took the pills and it started getting better?

 

That's how I feel right now. Just constantly anxious. Can't eat or enjoy life.

 

I’d say it’s a 2, and a 6 when I’m tired. I’ve been hearing noise for 5 years now, it became quieter like two days after taking the pills.