T-Minus 10 Years for Tinnitus Suffering — If Then No Treatment Available, I'm Out of Here

Discussion in 'Support' started by Allan1967, May 14, 2019.

    1. Clint Azzopardi
      Woot

      Clint Azzopardi Member

      Tinnitus Since:
      October 2018
      Cause of Tinnitus:
      Not sure, Gentamicin or allaergy or both !
      What is the scope of setting a timeline when tomorrow I can get hit by a car crossing the road?

      I guess we have to manage and try to live day by day. Easier said than done.
       
    2. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      That would be very welcome indeed.
       
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    3. Autumnly
      Wishful

      Autumnly Member Benefactor Hall of Fame

      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      The timeline is by @kelpiemsp, not by me!
       
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      • Hug Hug x 1
    4. AUTHOR
      AUTHOR
      Allan1967

      Allan1967 Member Benefactor

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      I likey.
       
    5. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      I think aliens is more realistic :ROFL:
       
    6. KotaDomowa
      Dreaming

      KotaDomowa Member

      Location:
      Poland
      Tinnitus Since:
      Februar 2018
      Cause of Tinnitus:
      Unknown
      If Neuromod does not work for someone, they should be seriously worried that similar technologies will not give them relief either...?
       
    7. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      1. It's a statement. If A=hearing loss, B=maladaptive neuroplastic response and C=Tinnitus. If A+B=C, and B=C, then all A=0. Does that make sense? Thus if you follow formal logic, the A or hearing loss is not required, not needed. We should be focused on what =C (tinnitus) or in this case B. IMHO
      2. They have a role and yes they should be more informed. I agree.
      3. And 5. Apply to all types of pain...it really is powerful stuff.
       
    8. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      They use different somatic pathways to reach the DCN. It has been suggested that 80% of tinnitus originates in the Dorsal Cochlear nucleus. As you can see there are approximately 5 different nerves that can be used to stimulate the DCN. The DCN is unique because it can be stimulated by both the Auditory nerve and the Somatic nerve... hence... bimodal stimulation! To answer your question, there will always be a 20 percent chance you are a non responder.
      levine%202007.jpg
       
      • Informative Informative x 2
    9. KotaDomowa
      Dreaming

      KotaDomowa Member

      Location:
      Poland
      Tinnitus Since:
      Februar 2018
      Cause of Tinnitus:
      Unknown
      @kelpiemsp
      So, will we have three chances for treatment in the coming years, each time around 80%? So in simplified terms, I understand correctly?
       
    10. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      No, I think you just have an 80% chance. If your tinnitus can be modulated through somatic movements, it's likely in your in that group. However, not everyone is going to respond. In all fairness you probably have a 7 out of 10 chance randomly... and if you are somatic then it's probably higher. 70% total would be the conservative guess.
       
      • Helpful Helpful x 2
    11. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      I have great hope that by then you will have a treatment available.
       
      • Agree Agree x 2
    12. StubbyJ

      StubbyJ Member

      Tinnitus Since:
      05/02/2016
      Cause of Tinnitus:
      Loud Noise Exposure
      I hear you my friend. If I hadn't had a family I'd have put a bullet through my head two years ago. It would have been a bad move as I'm so over my T (and H) although it's worse and I've developed a plethora of symptoms that have turned my life upside down. The latest cocktail of symptoms include involuntary eye movements that make my vision blurry and blink, tingling in my face, bounding pulse in my head, pulsatile T (blood activating my Somatic T) and chirping on top of my already 3 tones. My way of dealing is to not give a flying F*&k. I know I'm F*^ked and simply deal with it. As I type my left year is screaming....don't give a F*&k. I tell myself it's my new normal. I've had to give up all my loves..bands, motorcycles, mowing. Life's a bunch of B.S. but all and all I'm moving on. You can as well. It can always be worse. I would love to just have T. Yes, there are day's when I get down, real down, but I know those times will pass and I will be ok. I'm telling you, you will make it.
       
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    13. KotaDomowa
      Dreaming

      KotaDomowa Member

      Location:
      Poland
      Tinnitus Since:
      Februar 2018
      Cause of Tinnitus:
      Unknown
      But neuromod claims that somatic elements does not matter ...?
      I'm sorry @kelpiemsp , I'm getting lost in it.
      (I have somatic tinnitus)

      PS. I would like to congratulate you with your delay :)
       

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