Act Now Tell a Researcher: What Do You Want from a New Tinnitus Treatment?

Discussion in 'Support' started by Hazel, May 18, 2020.

    1. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Hi everyone,

      Our research contacts from UCL have asked us to share a survey with you. Raj Shekhawat and his PhD student Tori Kok are working on a new tinnitus treatment, based on transcranial Direct Current Stimulation (tDCS).

      Before they start clinical trials for the new treatment — which at the moment they can't do anyway because of Corona — they want to hear from people with tinnitus what they would expect to get out of the treatment. Of course, they are aware that what we all want most is complete elimination of our tinnitus. But if that's not possible, then how much of a reduction would be good enough for you? That's what this survey is all about. You will also be asked to fill in questions about the severity of your tinnitus, to see whether this affects your treatment expectations.

      Fill in the Survey!
      The survey is completely anonymous and should only take 5-10 minutes of your time.

      ➡️ Please fill it in here.

      The only requirements are that you're over 18 and have had chronic tinnitus for over 6 months. Please find attached a flyer with more information, including contact details.

      More About the Treatment
      You can hear Raj speak about this study in our latest podcast episode (scroll down and jump to time stamp 30:10). tDCS treatment is non-invasive, i.e. the stimulation takes place through electrodes placed on the head. It's entirely painless.

      Attempts to treat tinnitus with tDCS are not new; however, not many trials have been conducted, so we need more evidence on the potential efficacy of the treatment. Trials are also a means of finding the right treatment protocol, i.e. device settings, frequency of sessions, etc. Read more about tDCS in our dedicated thread on this topic.
       

      Attached Files:

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    2. UKBloke

      UKBloke Member Podcast Patron Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      Do we know how this UCL team are going to measure tinnitus? Personally I'm not looking for a complete eradication of my tinnitus, however, there's one very high pitch tone in my left ear that if I could wind down the volume a couple of notches would, I think, be a wonderful result.

      Having said that, as far as I'm aware there's no realistic means of actually measuring volume of tinnitus in dB and therefore no realistic means of measuring gain reduction. Lots of studies use TFI etc yet without any tangible link between gain reduction and what that means in terms of these psychological metrics we're back in the revolving door.

      I can't help feeling that study after study after study that base themselves on these wobbly foundations will all head the same way - down a blind alley. Maybe I should email Raj Shekhawat and ask him about this instead. Dunno...
       
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    3. Autumnly
      Wishful

      Autumnly Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      Germany
      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      Done! :D (Seems like the link is working now)
       
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    4. Zugzug

      Zugzug Member Benefactor

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Unknown; Likely autoimmune; Certainly not noise-induced
      Completed it. I am thrilled to see any research at all. I hope it's promising.
       
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    5. all to gain
      No Mood

      all to gain Member

      Tinnitus Since:
      -
      Cause of Tinnitus:
      -
      Done.
       
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    6. Kriszti

      Kriszti Member

      Tinnitus Since:
      2016/2017/2019
      Cause of Tinnitus:
      Unknown
      Done. Thank you for solving the problem with the link. :)
       
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    7. bobvann
      Fiendish

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      E drums headphones
      Done!
       
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    8. Selah1281

      Selah1281 Member Benefactor

      Location:
      Bustown, OH10
      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Unknown
      Done.
       
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    9. Tweedleman
      Depressed

      Tweedleman Member Benefactor

      Tinnitus Since:
      2001
      Cause of Tinnitus:
      Unknown/Noise
      Done!
       
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    10. Julien87
      Not amused

      Julien87 Member Benefactor

      Location:
      France
      Tinnitus Since:
      2006
      Cause of Tinnitus:
      Noise exposure (concert)
      Done, thank you. That was pretty quick to do :)
       
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    11. BBakkers
      Tired

      BBakkers Member Podcast Patron Benefactor

      Location:
      Netherlands
      Tinnitus Since:
      2011, Spike 2019, Spike 2020
      Cause of Tinnitus:
      1e Loud Music, 2e earwax irrigation, 3e padel tennis
      Did it!
       
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    12. Gabriel5050
      Jaded

      Gabriel5050 Member Podcast Patron Benefactor

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Noise exposure (most likely)
      I hope this treatment will work.
       
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    13. MBH

      MBH Member

      Location:
      Upstate NY
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Overloaded stress
      Done.
       
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