The Benefits of Staying Away from Tinnitus Related Websites?

Discussion in 'Support' started by Markku, Jul 12, 2012.

tinnitus forum
    1. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      You all probably know Jim, who's been a member here from day 1 and later on became a moderator. One of my best online mates whom I met on Tinnitus Talk and who has helped me and many more here in all ways imaginable.

      Thing is, Jim has now stopped frequenting websites related to tinnitus. He can chime in and tell the details himself if he wants, but let me in short just say that once he stopped the daily routine of going through tinnitus sites (incl. Tinnitus Talk), his tinnitus seems to have been diminished to an all-time low. Yes, consider it anecdotal, but still, this made me think...

      When someone first acquires tinnitus, most often they look up information on the internet, come to the forums etc...

      That's all good, and info sites and forums are brilliant for that.

      But. Where should one draw the line?

      I guess it depends on the person.

      Some might obsess over their tinnitus more if they browse tinnitus sites day in, day out. Who knows, maybe habituation might take longer?

      Maybe it all happens naturally to many. Those who have successfully habituated and can now continue their daily lives almost like as before, probably stop visiting tinnitus sites without even actively thinking about not visiting them.

      Back to Jim. Maybe it's a coincidence. His tinnitus could have diminished even without cutting time spent on websites like this. Still, there's a real connection there, timeline-wise. I think spending less time on the forums might have at least helped.

      From the bottom of my heart I'm so happy for Jim.

      I'd say the majority of members of tinnitus forums can be put in these two categories:

      • Those who have had tinnitus for a longer time (and not necessarily anymore as bothersome as in the beginning), but who are interested in the community aspect, supporting others and sharing and looking up information, keeping up to date so to speak
      • Those who are new to tinnitus (or who've had tinnitus longer, but were already habituated to it but then for some reason it became worse and now back on mind 24/7).

      Many times it immensely helps a new tinnitus sufferer when they find out that it doesn't kill you, it can get better (but also need to take care of protecting your ears), and people who've had it for years and years are still around and kicking. And of course finding ways to cope is equally important. Thus this kind of new tinnitus sufferer might stop visiting tinnitus sites on their own after a while. Actually I think most of Tinnitus Talk's members have been ones like that.
      It's the minority who sticks around.

      Anyway, if you are going away for a nice vacation, just for the sake of it stay away from tinnitus sites. If possible! Of course if you face tough times, then do whatever you think is best! But usually a vacation is a great time and place when you don't even want to be online, so testing this hypothesis "Cut your time spent on tinnitus sites and see how your tinnitus naturally improves" is easier to do in that setting :)

      PS.
      I'm interested in research news, past and current studies, different new approaches to treatment of tinnitus and also love contributing here whenever possible, so don't worry, Tinnitus Talk isn't going anywhere. And I have seen there are several folks here like me, most of the regulars I think? However, it's impossible to say whether my tinnitus would become less of a problem if I stopped visiting tinnitus sites altogether. Without actually having tried that.

      But what are your thoughts? To me it makes sense. Many people have reported that they pay more attention to their tinnitus while on tinnitus sites.
       
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    2. mock turtle

      mock turtle Member

      Location:
      puget sound
      Tinnitus Since:
      07/26/1992...habituated after 2 years; 11/04/11 new outbreak
      yes i think it does depend on the individual and also what use they put to their blogging and web surfing about tinnitus

      for me the exchange of ideas and the acquisition of technical information helped me get a handle on the reality of what i was facing...less unknown daemons and "what ifs" and more science, helps me to worry less and try some things that might work...hope is important

      learning from others, whether by reading a book, seeing a specialists or talking to others on the web about the process of habituation and cognitive things we can do to "put tinnitus in its place" this knowledge cant be found by "doing nothing"

      meeting other people who share my pain has helped me to carry on

      so as ive said in a previous thread, where a member asked "is doing nothing the best approach"...my response is kinda sorta...and yes it depends on the person and how you handle and put to use the information we get here

      i learned the "do nothing" approach here and around the web

      do nothing can include all the things we do to divert our attention from tinnitus...so in a sense doing nothing is doing something

      plus the blogs have helped disseminate a lot of information about things that might help (magnesium, niacin, melatonin) or hurt...(msg, salt, stress, lack of sleep) that are based on data...and...we have come together to debunk the hucksterism, sham medicine and fake remedies around the web that prey on people who are suffering and try to steal their money in exchange for false hope

      so on balance i would say a lot of good comes from visiting tinnitus talk and related sites...but a person has to know how much, when, and how long to visit!

      finally let me say thanks to markku for this excellent site
      mock turtle
       
    3. DezDog
      Angry

      DezDog Member Benefactor

      Tinnitus Since:
      01/2009
      In the early days when I was getting used to the T, I thought that each time I came to this site my T would get louder. It makes sense; is there a better way to make you think of your T?! Everyone should *stop* thinking about their T. Find a way to cope, then get on with your life. You'll know about the cure when it happens.

      However, these sites and forums are invaluable. There's no doubt in my mind that the personal recovery stories, and the reassurance that there is real research taking place were key in helping me get through this.

      I think if you feel you don't need to come back to these sites, then this represents a very high level of recovery in itself; we should all strive for this. I would only say, please leave your story before you do!

      Jim definitely helped me with his story and the sound files he shared.

      I'm still here because I'm curious about the research, and I want to help others if I can. In my darkest moments, I promised that if I got through this, I'd give something back, or pay it forward, however you want to look at it.

      Markku - I hope you're not feeling abandoned or unsure about the value of this site. It's a great place.

      DD
       
      • Like Like x 1
    4. Karl

      Karl Member Benefactor

      Location:
      Chicago
      Tinnitus Since:
      10/2011
      Markku -
      Excellent insights about the makeup of the group.

      Lately I've wondered about the statistics of how often people blog. Having read this website about 6 months, I've observed that people come and go. I've read very passionate, intellligent comments from some people. Then they're, sort of, just "gone". Like whatever happened to....? Ok, let's not get too specific here. But some people just stopped, and I would like to hear what they have to say.

      This has been a bad day for me. I enjoy that this website allows me a way to get my ideas together.
       
    5. DezDog
      Angry

      DezDog Member Benefactor

      Tinnitus Since:
      01/2009
      Tomorrow will be better Karl.
       
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    6. jack

      jack Member

      Tinnitus Since:
      6/2011
      hi markku you said protect your ears . do you think its ok to cut the lawn ? my mower is loud ear muffs help but when you take them off tin seams worse . what ear protection do you sugest and for sleep i somtimes use advill pm with melatonin one and a half mg to 3 or tylonol pm with melatonin. im to the point instead of pannic attacks most of the time i live with tin with anxiety . i just joined whats your opinion . jack
       
    7. mock turtle

      mock turtle Member

      Location:
      puget sound
      Tinnitus Since:
      07/26/1992...habituated after 2 years; 11/04/11 new outbreak
      Jack,

      clearly im not markku

      but if you will allow me to talk out of turn...

      yeah i think its ok to mow the lawn...i use ear plugs AND ear muffs... ....double protection

      and i seem to do ok but lets see what others here have to say

      best wishes
      mock turtle
       
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    8. Paul D
      Balanced

      Paul D Member Benefactor

      Tinnitus Since:
      03/01/2010
      "Those who have had tinnitus for a longer time (and not necessarily anymore as bothersome as in the beginning), but who are interested in the community aspect, supporting others and sharing and looking up information, keeping up to date so to speak. "

      I'd consider myself as one of this type, although I wouldn't necesarily say it's always less "bothersome as in the beginning;" I still get crazy over it, just not as often. My best relief now comes through focusing on other endeavors or concerns, of which I have been fortunate of late to have more than ususal (new job, less stress, more sleep, new interests, etc.). While the T comes back with a vengeance on a regular basis, I think constantly exploring the issue online can be detrimental to my own well being, keeping the problem at the forefront. As I have to live with it while no cure or effective treatement is in sight, tweaking my own coping mechanisms offers me the best relief. But I don't want to completely lose touch with this site - it has proven to be the best outlet, information source, and sharing forum I've found. And I hope at least a few of my occasional posts help others as much as posts and discussions by forum members (and Head Honchos!) helped me the first months after I joined. Thanks to you all!
       
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    9. jazz
      No Mood

      jazz Member Benefactor

      Location:
      US
      Tinnitus Since:
      8/2012
      Cause of Tinnitus:
      eardrum rupture from virus; barotrauma from ETD
      That's great Paul! Habituation is a slow process and for many it is ongoing. But moving ahead is the best thing. I think great sites like TT give us hope; but we have to balance that with "getting on with our lives." You're right that "tweaking...(your own) coping mechanises offers...the best relief."
       
    10. VelvetFont

      VelvetFont Member

      Location:
      Brooklyn
      Tinnitus Since:
      10/2013
      Hey guys,

      First of all I would like to thank you all for all the help and support you have provided me in the last couple of weeks. It has been hard to realize that you have this condition. I almost thought of quitting my job and just duck and cover in my sheets till death. The site is full of awesome information and you guys are throughly amazing talented people.

      I am leaving Tinnitus Talk for a while because I believe that neuroplasticity through habituation can cure Tinnitus. Not cure cure Tinnitus, most likely the neurons that are getting fired synchronously causing the noise will still be doing it. But if you habituate long enough to not pay attention to the noise and not caring of it up to the point of Zen like not noticing it (the noise of the tree that falls in the forest) your neurons through the months ahead will shape their connection synapses paths away of the Tinnitus noise to the point that it would be harder and harder to notice the noise consciously.

      Every time we post in this forum, every time we look for a cure, every time we get annoyed by T, every time we consciously hear the word "Tinnitus" the brain is getting wired bit by bit more and more to hear the noise, to care of it, to treat it as a danger to you. As something that matters. That's why I am leaving Tinnitus Talk. I just don't want to even think of the T word in the months ahead.

      I reached this conclusion because when I first noticed my T it was a tiny annoyance, a weird VCR like noise in a very quiet room 3 weeks ago. In the weeks ahead I started googling about it like, 'noise in quiet room' and through the weeks I got more information, got in the forums, went to doctors, started taking pills, read information about cures, read other people cases and through those same weeks the noise just got louder and louder and louder and louder to the point of being like an electric buzzer in my head. I do honest believe that if I would just have ignored the weird VCR noise that started it all in the beginning and not get all obsessed about it it would stay like that or even it would have disappeared in the background again as just a latent disease.

      To those of you think that maybe this was because Tinnitus may just start gradually. I found that the full noise of T is very manageable for me only when I am just recently awoke from a good night sleep but not awaken enough to remember about T for the first few minutes or when I am with my girlfriend having a good time. During those times of not remembering T or caring more about something else, the noise drops 90%. This only reinforces my idea of trying the Zen like approach of not minding the noise long enough for the brain to catch up and build its neural pathways accordingly is the way to go.

      If I do remember what is T after the next few months and remember this site (I will really try really hard to forget all about it, which will be tough while being conscious of taking care of my ears at the same time) I'll post my experience back here in the forum. Remember, some mind masters can even handle to dismiss the sensation of burning coal in their skin with long enough preparation

      Thanks for everything,

      Love,

      VF
       
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    11. seal

      seal Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      12/2007
      Cause of Tinnitus:
      acoustic trauma
      Good luck to you, I'm sure you will be fine and soon habituate completely so that that the Tinnitus won't bother you one bit and basically be none existent or who knows maybe even disappear for real :)
       
    12. Misery
      Happy

      Misery Member

      Tinnitus Since:
      October 26, 2013
      Good for you! I was thinking of the same for myself. I had T 15+ years ago. It lasted months (I can't remember how many). The only attention I gave it was one visit to an audiologist then white noise at night. I can't even remember how it disappeared (gradually or overnight) but disappeared.

      I wish you all the success in the world.
       
    13. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      Good luck to you, VelvetFont. And thank you for letting us know about your departure. Often, people just disappear and we all wonder if they are OK.

      I think what you are doing is wise. I have considered it myself, and others on this board have done the same. Just know you can come back, and will be welcomed, should you ever choose to do so. Namaste.
       
      • Like Like x 1
    14. Leah

      Leah Member Benefactor

      Location:
      Chardon, Ohio USA
      Tinnitus Since:
      2007
      All the best, thanks for letting us know:huganimation:
       
    15. Lulubug69
      Artistic

      Lulubug69 Member

      Tinnitus Since:
      9/2013
      Good luck to you!
       
    16. yonkapin

      yonkapin Member Benefactor

      Location:
      Melbourne, Australia
      Tinnitus Since:
      March 2012
      Best of luck to you buddy!
       
    17. epin3m
      Badass

      epin3m Member

      Tinnitus Since:
      10/2013
      Hey Guys!

      I am going to do the same as @VelvetFont . I quit TT for a while. I totally agree with him. Mine worsen because of paying attention to it, reading and talking about it in the early stages.

      Tinnitus Talk has allowed me to meet great people, to know that I am not alone in this fight and to be more educated on the topic.

      Furthermore, I learned some possitive stories of people who no longer care about their T and even heard of some who told me of others who got rid of it after an uncertain period of time. That is rare but still a slight hope.

      TT is very helpful. I love this site! But I think that the next step is walking alone. Leaving TT is hard. I know that I will feel like coming back to this forum in a few hours but I have to have a strong will and commitment in order to control myself.

      For the last month and a half I only talk about T with my friends, I only read about T, only post about T and sleep with T. I think it´s enough and time to change gears.

      I will start going for TRT in late December and I believe on the benefits of this therapy. I personally know people who have completed this therapy and told me that they are so habituated that no longer hear it. They just can hear it if they want to: That is my goal.

      So best of luck to you all,
      Adrian
       
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    18. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      Hey Epin: As I said to VelvetFont, good luck, best wishes... And know that should you ever need to come back, even for a quick check-in, you will be welcomed, no questions asked.
      THanks for letting us know. Intentional leave-taking is part of being in a healthy community. Actions such as this is why Tinnitus Talk stays a grounded, stable and supportive group. Happy trails.
       
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    19. Lulubug69
      Artistic

      Lulubug69 Member

      Tinnitus Since:
      9/2013
      Good luck to you! I wish you peace, and quiet.
       
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    20. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Best of luck to both @VelvetFont and @epin3m!

      This is pretty much the path @Jim took, and it was the right decision for him. He's managing much better with tinnitus now that he's not frequenting this forum or other tinnitus resources. I believe it kept him unnecessarily preoccupied with tinnitus.

      Peaceful times for everyone!

      Markku
       
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    21. AnneG
      Cheerful

      AnneG Member

      Location:
      Philippines
      Tinnitus Since:
      09/13
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    22. Tenna
      Anime

      Tenna Member

      Location:
      Europe
      Tinnitus Since:
      10/2013
      Sometimes when reading in here, I find myself to get to caught up with reading something, that I don't even pay attention nor hear my own tinnitus :) It's all in the focus
      Good luck! Try to let us know at a point how it went ;p
       
      • Like Like x 1
    23. Shuffle
      Gloomy

      Shuffle Member Benefactor

      Location:
      UK
      Tinnitus Since:
      12/2012
      Cause of Tinnitus:
      Heavy Metal & Machinery
      I did this when I first had T. I had my ears syringed which massively improved things and then I kept myself away from all T resources. Reading this had reminded me I should give this a go again, so I will disappear for a while now and see how it goes. Never know, may help again!
       
      • Hug Hug x 1
    24. meeruf
      Badass

      meeruf Member Benefactor Team Awareness

      Location:
      Norway
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Diving
    25. mick1987
      No Mood

      mick1987 Member

      Location:
      UK (England)
      Tinnitus Since:
      08/2012
      Cause of Tinnitus:
      Acoustic Trauma
      I think this might be a good idea, since my tinnitus increased in October I have been checking these forums all day everyday, I constantly think about tinnitus. Before my tinnitus increased I checked the forums briefly in the morning after reading the online newspapers, then got on with my day, nowadays I don't even read the newspapers, I come straight to these forums. I think if the main goal is habituating to the noise I maybe shouldn't be constantly checking posts, it's becoming sort of an obsession, I don't think it is helping me.
       
    26. Paul D
      Balanced

      Paul D Member Benefactor

      Tinnitus Since:
      03/01/2010
      Having a pretty good spike today, but the only reason I'm back on the site is the comment notification received in my email. I was on the other day, so I'd planned to leave it be for a while. If I spend too much time here or doing related web inquiries, the T seems to dominate my daily life more. Better to let the good days and bad days run their course without a concerted effort focusing on the problem, at least in my case.
       
    27. object16
      Magical

      object16 Member Benefactor

      Location:
      Canada
      Tinnitus Since:
      1988
      i find it to be really nice to be able to connect with other people that have what i have - it is helpful, and gives positive encouragement. positive attitude is important and essential, sometimes that is the only thing keeping us going, and slowly but surely we gradually learn to cope, or train our brain to habituate, or whatever it is, but time is important, and time spent here is really useful - i get a lot of tips here, and that helps me in my personal struggle.
       
    28. Liesel

      Liesel Member

      Location:
      California
      Tinnitus Since:
      7/2013
      I feel mixed. I take great joy in helping other people, and this is definitely a place I feel I can do that. But at the same time there are some users who just...can't find a positive thing to say. Not mean, just depressing. And it really brings me down, especially when it's in response to my encouragement. If other people can't cope, then what hope is there for me?
       
    29. Hendre Vlad
      Haunting

      Hendre Vlad Member

      Location:
      Romania
      Tinnitus Since:
      02/2013
      Oh well.....we all come to this comunity because only ppl who realy go thru this T horror can realy understand the pain....we must not let this T dominate our lives,,,,,,i somtimes do brain training and ignor it..i imagin it like an ambulance sound faiding away,works...but after braking the concentration comes back again
       
    30. Zimichael

      Zimichael Member Benefactor

      Location:
      N. California
      Tinnitus Since:
      (1956) > 1980 > 2006 > 2012 > (2015)
      Cause of Tinnitus:
      Ac. Trauma & Ac.Trauma + Meds.
      Markku... I'm new here of late and wanted to thank you for creating or organizing or hosting (not sure yet about all the details) this site! It is really great and a major shortcut to my requirement of keeping abreast of tinnitus, seeing as I keep getting zapped....and hoping for a cure, etc., etc., etc.
      In time I will hopefully get to know a few members better by exposure etc. as am pretty lonely these days (actually the reason I Googled to see if any Tinnitus Boards existed) as my T/H combo keeps me pretty close to home and isolated.

      Anyway, many docs have noticed that: "Michael you seem to be about the most un-placebo patient I've had"...I don't seem to get affected by much unless it's the real deal "affecting it". So yeah, noise will freak me out and make my tinnitus worse, but not reading about it. I already know it's there as it's so darn loud. Actually, I've only touched the surface of the research aspect of this website so intend to be on it a lot more, and it may actually help to be exposing myself to more tinnitus info.. But I do get tired of just interacting with the world on a screen, so that is more my issue regarding "Boards and Websites".

      Again...THANK YOU! And I hope your curiosity and such does keep you on board - though a cure would be even better of course, then none of us would need it. There would just be a big banner saying: "CURE - GO HERE!"
      Take care... Zimichael
       

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