Tinnitus Been Getting Worse for a Year (No Reason)

Discussion in 'Introduce Yourself' started by Pitseleh, Apr 13, 2020.

    1. Pitseleh

      Pitseleh Member

      Location:
      France
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      Hi all,

      I'm 31, been facing this condition since I was 17.
      I have no idea why it originally started, but I already had mild hearing loss back then.

      I can hear 4 different tinnitus frequencies: 2000 Hz (left), 8000 Hz (left), 10 000 Hz (right), 14 000 Hz (right).
      Only the 2000 Hz can be masked.

      Last year, I only had 2 frequencies, only in my left ear.

      I have no idea why it's been getting constantly worse for a year. It's like it's unstoppable. I've had various appointments with ENT specialists. My hearing has strongly decreased in 3 months (again... no explanation).

      My January audiogram showed, on average, 22 dB loss in the left ear (peaking at 35 dB in the 2000 Hz range) and 17 dB in the right.

      I did one audiogram last week: 27 dB hearing loss on average in my left hear (peaks at 50 dB in the 2000 Hz range) and 28 dB in the right (peaks at 40 dB in the 4000 Hz range)

      No concerts, no headphones, no antibiotics, no noisy environment, no nothing really...

      I just don't get it and I'm tired of it getting worse and worse, with nothing I can do.

      Any help, piece of advise, is strongly appreciated.

      Best
       
      • Hug Hug x 2
    2. Tybs

      Tybs Member

      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      Fall from stairs
      If no noise trauma was involved, then check for TMJ/neck issues. Pain signals from these can be mis-interpreted as sound as well. Did you have any recent physical trauma's?
       
    3. AUTHOR
      AUTHOR
      Pitseleh

      Pitseleh Member

      Location:
      France
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      I do not have any recent physical trauma. I have slight TMJ issues though (popping jaw on the right side). My osteopath is a jaw specialist and my wife a dentist, they haven't been able to fix the problem in more than 2 years. Still popping a lot on the right side.

      Tbh, I wouldn't understand how a popping jaw would lead to an aggravated hearing loss but who knows.

      Feeling quite desparate right now
       
    4. FGG
      No Mood

      FGG Member Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      Did they have a theory why they can't fix it? Did you try splints? There are dentists who are TMJ specialists. Maybe you should consult with one.
       
    5. AUTHOR
      AUTHOR
      Pitseleh

      Pitseleh Member

      Location:
      France
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      I've been wearing splints every night for the past 2 years, yes.
      At first we tried 2 splints, no change. Then we tried only 1 (top, then bottom), no change either.

      My wife and another dentist I consulted with tell me my bite is fine and they can't do anything more than splints as my dental/jaw situation is OK apart from the popping.

      About the osteopath who's worked with me, she does wonders with the other patients she works with when it comes to TMJ disorders.

      Except with me ... Yay ! I've consulted with another one, no better result.

      Oh and what I didn't say is I'm a hypnologist, so I'm well aware of all the inconscient aspect of stress and anxiety on TMJ disorders, but I can't figure out what's going on with the Tinnitus and Hearing Loss getting progressively worse while I'm not facing any stimulus that would cause it to aggravate.

      I'm not posting in the "suicidal" post, but really, this thing is becoming a hell. I would say the worst is not the Tinnitus and Hearing Loss itself (although it's a nightmare, nothing masks it, even white noise) as I could be able to habituate as I did in the past, the difficult thing is that it's been getting worse and worse, I'd say weekly, sometimes daily, for a year now. The sound is louder and louder and frequencies add up.
       
      • Hug Hug x 1
    6. FGG
      No Mood

      FGG Member Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      Another thought: have you looked into immune-mediated hearing loss? It can cause a rapidly progressive loss, too.
       
    7. AUTHOR
      AUTHOR
      Pitseleh

      Pitseleh Member

      Location:
      France
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      First, thanks for replying to me, FGG.
      I have not looked into it. How can I do that? Is it something I have to mention to my GP? How does that work?
       
    8. FGG
      No Mood

      FGG Member Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      To get a good work up, you would need to see an ENT, and in some cases an ENT subspecialist, an Otologist. You might have to ask your GP for a referral depending on your health care situation.
       
    9. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      Maybe conductive hearing loss? Like earwax? Or eustachian tube problems?

      Your ENT should be able to have an idea according to the shape of your audiogram. Some hearing conditions have a certain shape in the audiometric curve, and also the progress happens in a certain way. And that's how doctors guess... apart from tests of course.
       
    10. Tybs

      Tybs Member

      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      Fall from stairs
      Tinnitus caused or aggravated by any cause can give negative audiograms as a result. The cause is simple: on a bad day, T can be so loud that it's hard to hear the minor beeps. I've had three audiograms where #1 and #3 were flawless, while #2 showed diminished hearing. Guess what, with a concert of twelve sounds in my head, my T was the worst ever on the day of audiogram #2... sorry for not noticing those minor beeps in between.

      Audiograms can give an indication of hearing loss, but they're far from objective when it comes to tinnitus.
       
      • Agree Agree x 1
    11. AUTHOR
      AUTHOR
      Pitseleh

      Pitseleh Member

      Location:
      France
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      It is SNHL, not conductive loss. He did a complete check but could not give me any explanation.

      As to Tinnitus masking the beep, I know what you mean, but he also checked speech recognition and the hearing deteriorated a lot too. So it's not just the T masking beeps, it's my hearing abilities quickly decreasing for no reason :(

      The ENT could nlt tell me more than "you have very bad ears for your age, you're going to be needing hearing aids now and get your ears checked at least once a year".
       
    12. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      Something similar has been happening to me, after many years of hearing problems, but it is usually triggered by the odd loud noises that sometimes happen when I go for a walk with double hearing protection (earplugs and earmuffs on). At the beginning it was more or less ok after those episodes, but months down the road my hearing is getting worse and worse and, like in your case, it has been confirmed by audiometric test and speech recognition test.

      I don't have a clue either of whats going on. My guess is that the input of sound is worse, but what my hearing system does when processing the sound through the cochlea, neural synapses, hearing nerve etc somehow is worse too, and this affects the quality of sound, and speech recognition.

      The bottom line is that, like you, I have no answers and don't really know whats wrong and why my hearing keeps getting worse. I thought of going to a neurologist, but my feeling is it won't be of much help either.
       
    13. trft2

      trft2 Member

      Tinnitus Since:
      1958
      Cause of Tinnitus:
      No idea - maybe ear invections
      I didn’t look at all the responses. I do have one question. Did your tinnitus get worse in jumps as opposed to a steady increase?
       
    14. AUTHOR
      AUTHOR
      Pitseleh

      Pitseleh Member

      Location:
      France
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      Hello,

      It's been a steady increase. I never really noticed a tinnitus spike at any moment.
       
    15. AUTHOR
      AUTHOR
      Pitseleh

      Pitseleh Member

      Location:
      France
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      Hi all,

      So the T is still blasting.

      What I didn't mentions is I've been taking Rivotril (Clonazepam) for 3 years and obviously, it has no effect anymore. I'm facing a double issue here, which is that the T has kept increasing for a year (as I wrote in my 1st post), and Rivotril makes no difference anymore.

      So 2 days ago, I couldn't not bear it anymore and took a bigger dosage. It helped a tiny bit during one day (T went from 9/10 to 7/10), but I don't want to keep a higher dose and today, I'm back to the blasting T.

      This really is a vicious circle, as I know I could get a bit of relief with more Rivotril, but I also know how quickly the body habituates to it and then just leaves you with no effect and just dependance (thus needing bigger doses for the same action)

      So yeah. I wish my T could at least settle, stop increasing. It is intrusive, loud and unmaskable, but if it stayed the same, maybe I could learn to live with it at some point, as some severe T sufferers sometimes do.
       
      • Hug Hug x 4
    16. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug
      @Pitseleh -- My take is your clonazepam usage is almost assuredly responsible for your increasing tinnitus. I'd suggest checking out some of the posts by @Star64. She's posted fairly extensively on how benzodiazapines kick-started her tinnitus, and how she's struggled (mightily) to cope with it. She may have some good advice for you as well.

      All the Best...
       
      • Like Like x 1
      • Agree Agree x 1

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