FGG
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FGG

Member, Female

I really want to listen to a Lydia Loveless album right now and it's making me so sad that I can't :(. May 9, 2021

    1. Marin
      Marin
      Hey, I noticed that you’ve been absent from Tinnitus Talk lately. I just wanted to say that I hope you’re doing ok.
    2. summitplum
      summitplum
      Hi FGG - you're the only other person I've found on here who got bad, distortion type tinnitus from Azithromycin and I've been really scared to get the COVID-19 vaccine because of all the things people have been saying. I was wondering if you happened to get it or have an input on how to lower the risk? Thank you.
      1. aot likes this.
      2. Tezcatlipoca
        Tezcatlipoca
        You should get it. The alternative (COVID-19) can be much worse for your tinnitus.
        May 31, 2021
    3. joe
      joe
      FGG, I hope your hearing problem gets better for you... I don't post much but we all love you.
      1. Tanni, summitplum, aot and 1 other person like this.
      2. Keith Handy
        Keith Handy
        Checking in...
        May 19, 2021
        Tanni likes this.
    4. FGG
      FGG
      I really want to listen to a Lydia Loveless album right now and it's making me so sad that I can't :(.
      1. Ava Lugo and aot like this.
      2. View previous comments...
      3. Guywithapug
        Guywithapug
        Oh I see, I wasn't sure of the specifics of your hearing condition. Do hearing aids have any positive impact?
        May 10, 2021
      4. FGG
        FGG
        @Guywithapug , hearing aids have zero impact unfortunately. My damage is only OHC above about 10000hz, below it's a combination stria vascularis damage, IHC and possibly central damage, too. The only "music" that sounds remotely normal is wind chimes one note at a time.
        May 10, 2021
      5. Guywithapug
        Guywithapug
        Sorry to hear that, sounds absolutely terrible to endure.
        May 10, 2021
    5. FGG
      FGG
      I think my love language is quality time, touch and researching the crap out of things for people.
      1. Marin, GBB, BigNick and 7 others like this.
      2. View previous comments...
      3. FGG
        FGG
        @Kriszti , I def wouldn't trust me more than your doctors but i appreciate the confidence :).
        May 5, 2021
      4. Kriszti
        Kriszti
        @FGG Well, ok, I rephrase it :) Your input regarding tinnitus has been a lot more useful than anything an ENT or neurologist ever told me about the condition. So I'm really thankful. You should definitely do research or write a book.
        May 5, 2021
      5. FGG
        FGG
        @Kriszti , if they could fix me to the point where I could do research, the research would have already been done. I have written a book actually(fiction though, not at all medical related). If I ever get better, I would love to edit it to try to publish it.
        May 6, 2021
        Keith Handy likes this.
    6. FGG
      FGG
      I'm sorry for my contribution to the de-railing of the photo thread. Lol.
      1. View previous comments...
      2. twa
        twa
        I need to check this out! I've been dividing my time between Tinnitus Talk and vestibular.org.
        May 4, 2021
        Steph1710 likes this.
      3. Steph1710
        Steph1710
        @FGG okay, so didn’t start it, by you are an accomplice - you’d make a great wingman (woman). If our ears were not screwed, I’d take you on a night out, & you could help find me date. Ha!
        May 4, 2021
        FGG and Keith Handy like this.
      4. FGG
        FGG
        @Steph1710 , if my ears ever recover, I'm down for real. Realistically, I will be in my 50s at the earliest though and (not trying to be sexist here but it's true) even guys that age aren't too keen on women over 50 so I might slow you down... If for some reason, it happens earlier, though, I can meet almost anyone by dancing with them :).
        May 4, 2021
        twa likes this.
    7. FGG
      FGG
      Stye update. I can't roll my eyes right now without it hurting. It's a legit handicap when using the internet :).
      1. Keith Handy
        Keith Handy
        Good that you still have a sense of humor.
        Apr 28, 2021
    8. FGG
      FGG
      Have a stye and I'm excited to have a medical problem, I can watch resolve in a week for once.
      1. Keith Handy
        Keith Handy
        I get small injuries and two days later I'm like "daaamn that was quick."
        Apr 27, 2021
        martinberryhorse likes this.
      2. Keith Handy
        Keith Handy
        I miss the days of posting about "first world problems" to Facebook. Remember those?
        Apr 27, 2021
        FGG, Steph1710 and martinberryhorse like this.
      3. FGG
        FGG
        @Keith Handy , I had to delete fb 2 years ago. Just made me feel like I was living in a different universe.
        Apr 27, 2021
    9. FGG
      FGG
      Screw it, I'm trying the wine cure.
      1. View previous comments...
      2. FGG
        FGG
        I had definite less sound sensitivity for a few hours, fell asleep and woke up with more face pain but I didn't want to mix Ambroxol with it.
        Apr 21, 2021
        VeryUnfortunate likes this.
      3. Guywithapug
        Guywithapug
        Chardonnay? Cabernet Sauvignon?
        Apr 21, 2021
        kuromi likes this.
      4. FGG
        FGG
        $5 Trader Joe's table red. It was for medicine, not sipping. That makes me sound like an alcoholic. Lol. But I'm far from that.
        Apr 21, 2021
        VeryUnfortunate and Guywithapug like this.
    10. FGG
      FGG
      If I ever get music back, someone is gonna have to spend a year with me playing all the records I will have missed...
      1. 100Hz, Syb, Keith Handy and 3 others like this.
      2. View previous comments...
      3. FGG
        FGG
        @Keith Handy spoken conversation is fine, weirdly. I can't watch TV without captions, though. The only "music" that isn't distorted badly is windchimes, one note at a time. Macrolides affect central pathways too, though. I have about 500 records just sitting there...
        Apr 19, 2021
        Keith Handy likes this.
      4. Keith Handy
        Keith Handy
        I have ONE downloaded masking track that's boring as hell but I can listen to it without getting frustrated. It has a crunchy hiss that *just* approaches the problem frequency range and kind of blends with my internal noises. I hate it, but I hate it less than *not* listening to it, sometimes.

        Monophonic windchime party, ahoy! *sigh*
        Apr 19, 2021
      5. FGG
        FGG
        If i ever start writing again, i think i will have to include a "Monophonic Windchime Party" somewhere.
        Apr 19, 2021
        Keith Handy likes this.
    11. FGG
      FGG
      Fortune cookie today: "Your life will be happy and peaceful."
      1. Keith Handy
        Keith Handy
        Wouldn't it be nice to get a visit from your future self to confirm this?
        Apr 16, 2021
      2. FGG
        FGG
        Well damn: "After reading the fortune, you must not tell anyone your fortune, and then eat your fortune cookie and put paper on fire for it to come true. 7.) If there is no fortune in a fortune cookie, it is a sign that something good will happen to you soon. (Because fortune-cookie-fairy owes you one fortune.)"
        Apr 16, 2021
        Steph1710 likes this.
      3. FGG
        FGG
        Instructions unclear. Told everyone, then ate fortune.
        Apr 16, 2021
        aot, Steph1710, Syb and 1 other person like this.
    12. Keith Handy
      Keith Handy
      Thank you for all your contributions to the research threads. For so many of us, information & analysis = hope.
      1. Steph1710, Lucifer and aot like this.
      2. FGG
        FGG
        Thanks. I guess i miss being the vet who used to annoy the drug reps by asking them to email me the studies :).
        Apr 15, 2021
        Steph1710, aot and Keith Handy like this.
    13. FGG
      FGG
      Trying intermittent fasting. If nothing else, will save money.
      1. Christiaan, Syb, Steph1710 and 5 others like this.
      2. View previous comments...
      3. FGG
        FGG
        @GBB i was thinking more general anti inflammatory.
        Apr 10, 2021
      4. Kriszti
        Kriszti
        How is fasting going?
        Apr 30, 2021
      5. FGG
        FGG
        @Kriszti , I haven't noticed any benefits at this point but I'm going to keep doing it for a month or two and see.
        Apr 30, 2021
    14. FGG
      FGG
      This study showed how treating palatial myoclonus treated a patient's depression so what did they conclude? (Discussion continued below)
      1. Steph1710 likes this.
      2. athan86
        athan86
        I have palatial myoclonus. Do you have a link?
        Apr 5, 2021
      3. FGG
        FGG
        Apr 6, 2021
        athan86 likes this.
      4. FGG
        FGG
        But essentially, they concluded that Botox must be an anti-depressant because he felt less depressed after treatment. Couldn't possibly be that his symptoms were making him depressed.
        Apr 6, 2021
        athan86 likes this.
    15. FGG
      FGG
      Can't figure out the fluctuations in my pain levels that seem almost unrelated to my degree of sound sensitivity.
      1. aot and Labyrinthine like this.
    16. FGG
      FGG
      If God exists, he/she has it out for me for some reason. The bottom is a trick floor.
      1. LilSass, Daniel Lion, Lucifer and 2 others like this.
      2. Lucifer
        Lucifer
        Same, I think I may have done something wrong in my life and God is out to get me for payback.
        Mar 24, 2021
        Steph1710, aot and Daniel Lion like this.
    17. LilSass
      LilSass
      **Sending one warm 15 minute hug your way!** Teddy sends you love too <3
      1. Steph1710, Bill Bauer and FGG like this.
      2. FGG
        FGG
        Seriously, what would we do without pets?
        Mar 21, 2021
        aot, Steph1710 and Kriszti like this.
      3. LilSass
        LilSass
        So true FGGG! I have two cats and now a puppy and they truly help me forget about the pain and distress of it all. Animals can really teach us to live in the moment. I hope you are doing better today. :)
        Mar 21, 2021
        FGG likes this.
      4. FGG
        FGG
        @LilSass . still in a lot of pain but I am noticeably better today than yesterday. I'm wondering if a lot of yesterday was an unfortunate metal dog bowl incident...
        Mar 22, 2021
        LilSass likes this.
    18. FGG
      FGG
      Send hugs. My ears/face are just so incredibly sore today.
      1. LilSass, starrynights, aot and 9 others like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        Sending hugs from across the pond <3
        Mar 20, 2021
        aot and FGG like this.
      4. FGG
        FGG
        @Diesel , if it's not too much trouble can you keep reminding me of that periodically...
        Mar 21, 2021
        LilSass likes this.
      5. Anniz
        Anniz
        hugs from me too =)
        Mar 21, 2021
        FGG likes this.
    19. dainryan
      dainryan
      Hi. I seen you post you hand Menier’s and took antivirals. Can I ask you a couple questions?

      Thanks.
      1. FGG
        FGG
        Meniere's was a misdiagnosis (the fact that my vertigo episodes lasted up to 48 hours actually excludes Meniere's but my first ENT didn't know that). But sure, ask away!
        Mar 19, 2021
      2. Forever hopeful
        Forever hopeful
        What is the vertigo criteria Ménière’s.
        Mar 20, 2021
      3. FGG
        FGG
        @Forever hopeful , 24 hours is considered the upper limit. I had two episodes longer, with my longest around 48 hours of full rotational vertigo. Edit: post episode dizziness is not included in that.
        Mar 20, 2021
        Forever hopeful likes this.
    20. FGG
      FGG
      In an unlimited multiverse, there is a universe where the only difference is no Sierra Mist, only Sprite. I need *way* more to be different.
      1. Keith Handy and aot like this.
    21. FGG
      FGG
      Ear pain is worse again after tapering Pred. Guess it was mostly just masking pain for me :(.
      1. aot likes this.
    22. FGG
      FGG
      Guys, I know we are waiting on Fx-322 results but don't forget to submit Sound Pharma podcast questions soon...
    23. FGG
      FGG
      Sorry to status spam today but I'm on super strict ear rest and bored. Tell me an obscure fact about the place you are from...
      1. twa, MBH, kuromi and 1 other person like this.
      2. View previous comments...
      3. FGG
        FGG
        My local otologist is useless. Last time I had to travel to another state and that doctor has since retired from clinical practice. I'm resting it because mine appears to be mostly TTTS related and I'm trying to help the muscle relax. After that period, I'm going to slowly reintroduce low level sound. This is my own plan and I'm winging it.
        Mar 14, 2021
        Keith Handy and twa like this.
      4. Keith Handy
        Keith Handy
        I lived near the Fisher Price headquarters. It was in a cheerful-looking section of the village of East Aurora, NY.
        Mar 19, 2021
        FGG likes this.
      5. FGG
        FGG
        @Keith Handy , small town NE is so quaint. I'm originally from a small town as well but in the South.
        Mar 21, 2021
        Keith Handy likes this.
    24. FGG
      FGG
      I'm glad I was a vet and not an MD. It must suck to go through all that school and not ever be able to help your patients :).
      1. Mr. G, JPGL, Tweedleman and 6 others like this.
      2. Steph1710
        Steph1710
        This is simply the best comment I’ve EVER read!! LOLOLOLOLOLOLOLOLOLOL Genius!! *clap clap*
        Mar 13, 2021
        Anniz likes this.
      3. Diesel
        Diesel
        Low key burn.
        Mar 13, 2021
        Steph1710, Keith Handy and FGG like this.
      4. kuromi
        kuromi
        Ouuuch. That sting hit across borders!
        Mar 13, 2021
        FGG and Steph1710 like this.
    25. FGG
      FGG
      Thinking back to when all this started & believed ex husband would be there for me in "sickness and health".
      1. LilSass and aot like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        Therapy certainly is a good way of unlocking and letting go of different emotional attachments.
        Mar 13, 2021
      4. Zugzug
        Zugzug
        This may not be any form of consolation, but so much of it all is luck. I don't mean to rub bad luck in your face, but you are not the problem. This forum is often a reminder to me that bad things happen to good people... It blows my mind how many good-hearted people are on this forum.
        Mar 13, 2021
      5. FGG
        FGG
        @Zugzug, I know what you mean. There are so many good people on here in bad situations they could never deserve. It completely solidifies my belief that karma doesn't exist.
        Mar 13, 2021
        Forever hopeful and Zugzug like this.
    26. FGG
      FGG
      Don't want to jinx it, but Pred seems to be helping my ear pain.
      1. MBH, Charburchar, Kriszti and 6 others like this.
    27. FGG
      FGG
      1. LilSass likes this.
      2. MrCrybaby
        MrCrybaby
        What's really mind boggling is the amount of power it takes to generate one of the tokens art like this is attached to
        Mar 12, 2021
        FGG likes this.
      3. FGG
        FGG
        It's true, @MrCrybaby and it is interesting but I can't think of better symbol of extreme excess and consumerism literally for its own sake than this.
        Mar 13, 2021
        MrCrybaby likes this.
      4. MrCrybaby
        MrCrybaby
        @FGG I guess the snake can't help but eat its own tail... We've evolved past hoarding gold and into hoarding unique digital tokens lol.
        Mar 13, 2021
        FGG likes this.
    28. FGG
      FGG
      What's the time frame on Nav1.7 Crispr trials? Anyone know?
      1. View previous comments...
      2. FGG
        FGG
        Mar 11, 2021
        serendipity1996 likes this.
      3. serendipity1996
        serendipity1996
        Navega Therapeutics are working on this but they are in pre-clinical stages
        https://navegatx.com/en
        (Sorry for spamming you btw!)
        Mar 11, 2021
        FGG likes this.
      4. FGG
        FGG
        Mar 11, 2021
        serendipity1996 likes this.
    29. FGG
      1. Keith Handy, Koz, aot and 1 other person like this.
      2. View previous comments...
      3. Tweedleman
        Tweedleman
        did you hear about the mysterious devices Brian Johnson now has installed in him? He signed NDA unfortunately. But all of a sudden he can tour again and hear guitar tones he hadn't in years
        Mar 10, 2021
        twa likes this.
      4. FGG
        FGG
        @TheDanishGirl , I looked further. She (the surgeon trying to pioneer this) is now saying 10-20 years (from 2017) but she's heading a national multi-disciplinary program to do this.
        Mar 11, 2021
      5. FGG
        FGG
        @Tweedleman , it's apparently a new kind of in-ear monitor that combines a hearing aid with a monitor for musicians.
        Mar 11, 2021
        twa likes this.
    30. FGG
      FGG
      Really bad night. I guess they all are.
      1. arcanesystem, MBH, aot and 1 other person like this.
      2. View previous comments...
      3. TheDanishGirl
        TheDanishGirl
        How do he think people with panic attacks, will feel if they will be told: "if you think you'll die then that WILL happen" and if people dont get better then you can just shame people: "you just wont believe, you will get better, and thats why you have not gotten better"
        Mar 10, 2021
        FGG and MBH like this.
      4. TheDanishGirl
        TheDanishGirl
        I have personal experience with that mindset and its only been damaging to me and made my anxiety even worse and still do. It makes me scared of my thoughts, because Im afraid they'll create my reality. Thats not a good and healthy stradegy to change a mindset.
        Mar 10, 2021
        FGG likes this.
      5. LilSass
        LilSass
        @FGG! I don't even know what to say except I'm sorry that your friend has such a flawed view on your situation. Whilst I believe in the power of positive thinking, it has it's limits. I like to keep an open mind but it is absurd to think that our thoughts control reality. Has he manifested his mansion yet? Life just is, IMHO. Not sure I believe in God, but I'll keep praying, can't hurt, right?
        Mar 22, 2021
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  • About

    Gender:
    Female
    Tinnitus Since:
    01/2019
    Cause of Tinnitus:
    Multi-factorial