Tinnitus Sufferers at Risk of Isolation Say Charities | 5 News

Discussion in 'Awareness & Fundraising' started by Agatha, Feb 4, 2019.

    1. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador Advocate

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      @Ed209

      If it's true that Isobel's video was made independently, then the only one who knows for certain where the claim came from is Isobel. I think the confusion stems from the fact that 5News aired something from BTA that involved Isobel, and I am the one responsible for linking the two.

      However, since this is not the first time we've heard such a statement it's not unreasonable for an association like ATA or BTA to have and provide substantiation. I note that David says he has not seen anything arguing the opposite, i.e. that it doesn't fade. Then, by the same token David has not said that BTA have not made that statement/claim.

      At any rate, when asked @David has presented the information he knows of to support the statement included in Isobel's video. At many levels, this is more than ATA have ever done.

      After reading David's Feb 18 post, everyone can make up their own mind whether or not the evidence is there and if it is adequate to support the statement "in the VAST majority of cases, people's tinnitus significantly reduces or disappears over time'.

      TC
       
      • Agree Agree x 1
    2. Watasha
      No Mood

      Watasha Member Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      @David Any mention of animal models in primates, similar to Dr. Rauschecker research? Thanks for all of your hard work!
       
    3. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      Would a Tinnitus Talk survey provide some type of evidence from those of us who have suffered intrusive tinnitus for over a decade? Yes some of us have found ways to live life but this does not in any way mean the above words in bold.
       
    4. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador Advocate

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      Well now, that's an interesting question. Are you suggesting a survey to prove that

      "In the VAST majority of cases, tinnitus does not reduce significantly or disappear over time'?

      My first question would be - if you had to stand up and defend this statement in a court of law in front of a jury, what would you need to have as evidence to support it?

      First, I would think you need to defend what you mean by Vast Majority, is it 51% or 99% or some number in between?

      Second, and perhaps more difficult, would be to define what constitutes a case of tinnitus. Is a diagnosis by a physician necessary? What about the guy who went to a rock concert and said his ears were ringing for a couple of days. Did he have tinnitus?

      And third, what evidence do you need that would convince a jury that a survey among Tinnitus Talk members represents a vast majority of tinnitus cases, including the type like Isobel which significantly reduced over time or the guy who went to the concert if indeed that is tinnitus?


      Anyone else have any thoughts on the matter?

      @brownbear

      TC
       
    5. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      The point @TuxedoCat is misquoted in your post above.

      It is up to the particular tinnitus organizations who promoted the statement that "in the VAST majority of cases, people's tinnitus significantly reduces or disappears over time."

      Not to forget that statement was given from the ATA as scientific fact in many press releases to the general public at large.

      Yes. What "evidence" does the ATA have to back up that statement that was given to the press?

      What evidence would I have to prove it incorrect?

      The suicide of my friend and a detailed account of the ending of his life. And later on two other suicides from patients who could not deal with the noise.

      Both of which led me to leave anything to do with tinnitus support.

      And no. I am NOT suggesting a survey from Tinnitus Talk members to submit as evidence - to prove anything.

      I gave up my legal career years ago so I am rather well versed in legal aspects in a court of law - which by the way would not be presented to a jury in a court case.
       
    6. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador Advocate

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      My apologies. Obviously I don't understand why you think a survey is needed. The legal bit is often used in corporate as a hypothetical situation with the intent of flushing out what studies would be needed for claim support. It was never meant to be procedurally accurate.

      David Stockdale has reviewed the support for the statement 'In the VAST majority of cases, tinnitus does not reduce significantly or disappear over time' in another post in another thread.

      Good luck with your survey.

      TC
       
    7. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      No worries TC. We will continue to share ice cream. :)
       
    8. David

      David Member Benefactor BTA

      Location:
      Sheffield, UK
      I didn't see any data like this presented. Doesn't mean it wasn't there though - there were 1,000+ posters and over 300 presentations, so only really got to scratch the surface of what was presented.
       
    9. Agrajag364

      Agrajag364 Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Unknown
      Hello @David!

      Thank you so much for coming on here, the work you do is very much appreciated.

      Is there any update on the discussion of the “Drugs and Tinnitus” BTA leaflet as previously discussed?
       

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