Unknown Pulsating Tinnitus — Had Every Test

Hello,

I'm a young male in his late twenties who's going on two years with PT. It's gotten worse throughout the time I've had it.
I've had many many tests (Several repeated MRI/MRAs, cerebral angiogram, carotid doppler etc). I've been to see several neurologists, ENTs and neurophysiologists. No one can figure out a cause. Every test is totally normal. Sometimes I'm able to just go on living my life and not think about it that much, but other times (like now) it's horrific. It litterly keeps me up and is very hard to live with. I also have a hard time believe there is nothing harmful causing it which makes it even harder. Any thoughts or advice would be greatly appreciated.

 

The science is still incomplete as your can see . It can't figure out everything.
Playing White noise can help
Also, meditation
Train yourself to focus on the things you are doing and ignore distractions

 

go to a neuromuscular dentist to check your jaw or TMJ.

 

Hi egrayson,

There is additional condition you should test for called Superior Canal Dehiscence (SCDS). The test for this is a high resolution CT scan of the temporal bone normally orderd by an ENT. This is a fairly rare condition but is one of the potential causes of pulsatile tinnitus. I happen to have this condition, but not the pulsatile tinnitus symptom. Do you have any other symtpoms? Like, Hear your own voice more loudly in one of your ears, sensitive to specific loud sounds, any dizziness, in a quiet room can you hear your own heartbeat or noise when you move your eyes? Any feeling of fullness in the affected ear. I know, a bunch of strange questions. SCDS has a fairly strange set of potential symptoms.

 

Hi Karen,

Thanks for your helpful insight. I have actually had my scans looks over by many different doctors, but another look can't hurt. I will certainly reach out to that clinic. I have PT only in my left ear only, there is nothing I can do to silence it. It's a totally mystery and is so frustrating. I don't have regular tinnitus.