Unleashing the Power of the Mind to Manage Tinnitus?

Discussion in 'Support' started by SonOfUhtred, Apr 29, 2022.

    1. Sevv

      Sevv Member Benefactor

      Tinnitus Since:
      12.04.2019
      Cause of Tinnitus:
      Loud concert
      I'm just a novice at this, but this is my current understanding: With meditation or mindfulness practice, you can learn to change your reaction to unpleasant stimuly (among other things). Naturally I would react with fear or anger to somewhat loud noises, and pain and more intense emotions to loud noises. The pain I can't change, so I need to be dilligent here with my own protection. When emotions arise, it is natural to try to push them away or blame other people (like "no reason to be angry", "what a terrible person it was who did this to me", "I hope I don't get worse", etc.), so I am just adding more energy to my stress reaction, which doesn't help. Mindfulness allows me to take note that I am adding unneccessary energy, often out of craving reality to behave in a certain way (like, other people taking responsibility for injuring me, even if it would be futile). Then I accept the unpleasant emotions (and maybe pain, if it occurs) with a loving/welcoming embrace. It does take a bit of effort at the beginning, but overall it is the way to give those unpleasant sensations the least amount of energy. When you don't give it energy, it is like tinnitus you have habituated to: It stops bothering you soon or at least it bothers you less, so you can put your mind to things that are more helpful.
       
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    2. Pitseleh

      Pitseleh Member

      Location:
      France
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      This would require a nearly permanent hypnotic transe in order to block pain signals during an entire day. I'm not sure hypnoanalgesia is really what you want to look for in a hyperacusis situation.

      I'd consult with a hypnologist to work on how your brain is anticipating/processing normal sounds and your unconscious emotional response to it. Even if you're feeling generally OK emotionally and you don't feel like needing some help on this aspect, it doesn't mean your unconscious response/instinct is actually OK with it. These are two different things and from what I've learnt of hyperacusis, it's typically something that doesn't follow "conscious" rules.

      Yet, if you want to use hypnoanalgesia as a technique to provide temporary relief to any kind of pain, any hypnotherapist can help you with that in one session. Just ask him to teach you how to do self-hypnosis. If he knows his job, he can do that easily. Online resources won't be of any help unless you already know the basic approach of all this :) And to be honest, there's not much online to help you guide you through self hypnosis.
       
    3. GeorgeLG
      Wishful

      GeorgeLG Member

      Location:
      USA
      Tinnitus Since:
      05/2021
      Cause of Tinnitus:
      Leaf blower, rock band, constr & comp shooting, chemo
      @Pitseleh, OK, thanks.

      George
       
    4. Stuart-T

      Stuart-T Member

      Tinnitus Since:
      02/2022
      Cause of Tinnitus:
      Ear wax or COVID-19 infection
      I just read this thread through - I'm afraid I skimmed some of the posts which expounded the various doctrines of meditation. I got into meditation in the 90s - knew a guy who was into Zen and spent time with him. I went to India - spent time in Pune and hung out with various people and groups for a few years though eventually moved on when I got married (now divorced). To me meditation is about silence and inner stillness. No effort of any kind can bring this about. Nothing could be more simple. I don't go for all the complex Buddhist school doctrines - but each to their own method and clearly I am way behind many of you guys with the theory of meditation and maybe I am missing something.

      I have not meditated much in the last year - not due to tinnitus. I am convinced I have some low level infection and it has been causing me some fatigue issues. Frankly - in my normal health - meditation is something that happens to me before I go to sleep - and when I wake up. And since last year at some point - it rarely happens. I have some beautiful normal days - but rarely. I function well enough - can walk miles - but the spring in my step is missing. If I sit to meditate - I can fall asleep. My white count is normal - I had tests - no thyroid issues iron fine etc. No idea what is wrong with me. I got tinnitus in February 2022 - 1 month after COVID-19. I also had chronic ear wax. Maybe I have some form of long COVID-19? I don't know. Maybe my tinnitus is a symptom of the infection I believe I have had since last year.

      When my doctor told me that there is no cure for tinnitus I felt desperate. But oddly enough - within a few weeks I came to terms with it. This is my new silence. My life will go on. I can and will live with this. Once I made up my mind about this - the tinnitu became less of an issue.

      However - I admit I have relatively mild tinnitus in one ear and don't have multiple sounds. I also found some sound files to smooth it down when it spikes. I do not know how I would cope if it was significantly worse and I understand some of the scepticism for people with really serious cases.

      Hypnotherapy - according to the British Tinnitus Association - who have no financial stake in any tinnitus treatment industry - there is no evidence that hypnotherapy is an effective treatment for tinnitus. There is some evidence that it is effective for relaxation and anxiety - but there is no evidence it is more effective in these areas than other relaxation and anxiety treatments.

      This of course does not mean that hypnotherapy cannot work - it may well work - there just is no clinical evidence that it does work for tinnitus - and virtually any other illness or condition.

      The people claiming it does work - are mainly hypnotherapists. There is some anecdotal evidence from clients who claim they have reduced tinnitus due to hypnotherapy. However - it is not necessarily the case with these successes that the mechanism which caused the reduction is actual hypnotherapy. It may be placebo effect.

      My personal view - hypnotherapy may help you to habituate - may help you to change the way you perceive tinnitus - but I have very little confidence that it could help to reduce or eliminate it.

      My big concern with hypnotherapy - and many other treatments whose efficacy has not been established - is that they are expensive. And I am not sure if it is a good idea to spend say £100 a session on acupuncture, chiropractic or hypnotherapy - when these treatments have no proven efficacy. I understand though that many who are desperate will try anything. I personally, if desperate - would try all the cost free options first.

      There is a desperate guy I know who is flying out with his wife to Ireland to the Lenire people. I thought - oh no - that thing doesn't work.

      But who am I to inform him what I know - hope is precious.
       
    5. Vicki14
      Panicky

      Vicki14 Member Benefactor

      Tinnitus Since:
      January 2016
      Cause of Tinnitus:
      Stress
      @bobvann, agree! This is definitely what happened in my case which makes living with tinnitus more difficult.
       
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    6. Lurius
      Frustrated

      Lurius Member Benefactor

      Location:
      Oslo, Norway
      Tinnitus Since:
      September 2018
      Cause of Tinnitus:
      Valsalva maneuver
      Lenire works but it depends on your expectations. It will not remove your tinnitus. It will sometimes make your tinnitus worse. It will also give you better days, occasionally. Sometimes you can have a straight week with relative silence. There are some pitfalls with Lenire. When I first used it, it was 1 hour every day throughout the whole year, more or less. But I was on Olanzapine at the time. Who knows what that was doing to my brain? After I quit the Olanzapine, I continued with Lenire and I had a massive worsening that turned my tinnitus from a single ear thing to a "cacophony from hell in your entire brain" thing. Everything I knew about my tinnitus and it's behaviour changed overnight. It used to be quiet in the morning and then there was a 50/50 of it ramping up within the first 20 minutes of me waking up. If it didn't ramp up, it could also ramp up a bit after using Lenire. Sometimes it would just stay the same throughout the day. It would almost always start to ramp up an hour or two before bed. Then it would calm down again during the night so I could sleep 3-4 hours.

      With the worsening this was turned on the head. At night it would ramp up insanely much, to an almost unbearable level and it would be in the whole head - 120 dB at least. Then I would "wake" up, not having slept anything and feeling stressed out of mind from this dreadful experience - at completely random intervals throughout the day the tinnitus would go almost completely quiet, then return at the most intense volume and pitch again. It was as unpredictable as you can imagine. This was either caused by a sleeping medicine I was taking through the tongue (liquid drops) called Alimemazine OR it was because I was using Lenire without the Olanzapine. I don't know, but it has to be one of those. After the worsening reduced and I got back to "normal", I started using Lenire at only 20 minutes a day - a great deal of experimentation had to be done to realize what my "sweet spot" is. Using it for more than 20 minutes would usually give me a major brain buzz for a day or two. Finding the "sweet spot" was a lot of work, but now I know.

      Brains are different, they can be sensitive and this is a new technology that we don't know the full ramifications of yet. I know I have a sensitive brain because of how I react to medicine. I have autism so it's already pretty different from others.

      Lenire is definitely not a cure but I'm also tired of people who demonizes it. I wouldn't be here today if it wasn't for Lenire. It has helped me endure the days until Dr. Shore's device is ready or something else comes along that gives me a more permanent solution. However, I'm still sceptical to Neuromod as a company.
       
    7. Stuart-T

      Stuart-T Member

      Tinnitus Since:
      02/2022
      Cause of Tinnitus:
      Ear wax or COVID-19 infection
      I am glad you got some good use out of it. Lenire obviously does not work for everyone and judging by the threads on Lenire - people who have tried it - looks like 50% at best to varying degrees. Though most people would accept a 50/50 chance, albeit expensive, to find if it works or not. I do believe that feeding sounds into the brain can have an effect - as I have discovered using various sound files - even Mr Case's Tinnitus Mix file smooths mine off for some hours.

      People are too dismissive of course - if they have had severe tinnitus for years and tried so many things - they could well fall into this way of thinking. I am not so dismissive that I rule things out simply because the studies are poor or negative. But if I see anyone saying - this will cure your tinnitus! I am usually one who will post and advise caution.

      Take 10,000 tinnitus cases. Half of those - 5,000 will be try X, Y, Z to beat their tinnitus. Of those 5,000 - one could expect that tinnitus would simply go away in a small number of cases - say maybe 50. It happens. But for those small number where their tinnitus simply cleared - what do you think they are going to attribute this to? Obviously whatever supplement or diet/drug they happen to be on at the time. And then they post - hey - Magnesium cleared my tinnitus! We don't hear from the 4,950 for whom no treatments worked.

      Go through the pages on this board - there are literally hundreds of approaches, devices, supplements, sounds etc that have been claimed to work. One reason I like Tinnitus Talk - these claims are then tested - people try - and most who try report negative results. I had a go with Mr Case's Tinnitus Mix as it was easy to try - and I found it did have some minor benefit. But obviously Lenire, prescription drugs and most of the supplements people are claiming success with - I won't bother unless I get really desperate - too much hassle and expense. I may well do - am lucky at present - but I keep coming back here as that could easily change.

      How did you evaluate your tinnitus at 120 dB? That is like a motorcycle accelerating past you or standing next to a jet engine.
       
    8. Lurius
      Frustrated

      Lurius Member Benefactor

      Location:
      Oslo, Norway
      Tinnitus Since:
      September 2018
      Cause of Tinnitus:
      Valsalva maneuver
      I don't know that it was 120 dB, it's just a measurement I took from the experience of crying and shouting at the top of my lungs and still struggling to hear my own voice. It was that loud. Not all the time, but talking with a normal, indoors-voice was often very stressful for me since I couldn't hear my voice under all that noise. It was truly a cacophony of chaotic sound in my entire brain. Felt like every little thing was firing at once.
       
    9. Stuart-T

      Stuart-T Member

      Tinnitus Since:
      02/2022
      Cause of Tinnitus:
      Ear wax or COVID-19 infection
      You have my sympathies - sounds like an utter nightmare. I don't blame you at all for trying Lenire or any other solutions.
       
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