Biaxca
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Biaxca

Member, Female, from Sydney

@Sammy0225 would you say it's safe to let them check the ears with their tools like hearing tests etc ? Jan 3, 2023

Biaxca was last seen:
Feb 2, 2023 at 6:56 AM
    1. Sammy0225
      Sammy0225
      Checking up on you, how are you coping?
      1. Biaxca and NYCGuy like this.
    2. Sammy0225
      Sammy0225
      How are you doing???
      1. View previous comments...
      2. Biaxca
        Biaxca
        @Sammy0225 I will make a psychiatrist appointment tomorrow, because the hum is always out of control I can't make peace w it even tho I try. Need to start treatments soon because struggling to keep my head above water, with all these symptoms
        Jan 8, 2023
        seppl and Sammy0225 like this.
      3. Biaxca
        Biaxca
        @Sammy0225 thanks for giving me all this advice I need it so much
        Jan 8, 2023
        Sammy0225 likes this.
      4. Sammy0225
        Sammy0225
        I understand and yes please try everything to control the anxiety and panic once you do this everything else will fall into place as for me I go to a quiet park and walk around I also always tell myself it could be worse. Just don't let doctors slap hearing aids on you that's not what your ears need right now.
        Jan 9, 2023
        seppl likes this.
    3. Biaxca
      Biaxca
      Hey! @Sydney13 ttts, H and PT began in November and T started 2nd December going to neurologist for off label medications to help me live
      1. NYCGuy likes this.
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      3. Sammy0225
        Sammy0225
        @Sydney13 how long did it take for the one in your left ear to go away?
        Jan 4, 2023
      4. Sydney13
        Sydney13
        @Sammy0225 onset was March 2022, and it took probably around 4-5 months. This one reacted to different things though, mostly burping and yawning or water running. So strange
        Jan 4, 2023
      5. Sammy0225
        Sammy0225
        @Sydney13 it definitely does help also with the sound sensitivity I take 450mg of mag glycinate which is one pill in morning and one before bed when I don't take it I noticed I'm hyper aware of more sound do you have H pain or H loudness
        Jan 4, 2023
    4. Sydney13
      Sydney13
      Hey! We have pretty similar symptoms. Mine started back in October (after meds) it was at its worst in October but slowly improving. How are you doing? I see yours started back in December.
      1. seppl and Biaxca like this.
    5. Biaxca
      Biaxca
      @Sammy0225 would you say it's safe to let them check the ears with their tools like hearing tests etc ?
      1. Sammy0225 and NYCGuy like this.
    6. Sammy0225
      Sammy0225
      How are you doing
      1. Biaxca and NYCGuy like this.
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      3. Sammy0225
        Sammy0225
        @Biaxca I’m glad to hear you have appointments coming up I hope they bring relief! My T started 7 months ago it became reactive after I tried suctioning wax out. I developed 4-5 different tones afterwards that seemed to be reactive to sound eventually I also got TTTS doors closing would startle me and my ears spasm
        Jan 2, 2023
      4. Sammy0225
        Sammy0225
        Also noticed silverware clanking and dogs barking would also do the same thing. At about 3 months I developed Drone humming sounded like a car idiling outside my house. Then around 5 months I noticed the volume started dropping on the high pitch tones 6 months most of the tones faded away including the car idiling one. I now have a hissing tone And behind that a low ringing.
        Jan 2, 2023
        seppl likes this.
      5. Sammy0225
        Sammy0225
        I know what your talking about mine didn’t sound like a bud but a loud idiling car but I’m hopeful you will heal in time please just be careful at appointments don’t let anyone poke around in your ears and Google the medication they prescribe
        Jan 2, 2023
        seppl likes this.
    7. Sammy0225
      Sammy0225
      So sorry you are going through this after microsuction. What symptoms of TTTS do you have?
      1. NYCGuy likes this.
      2. Biaxca
        Biaxca
        @Sammy0225 thank you! My main symptoms I have are ear spasming, vibrations/fluttering thumps in reaction to any sound or any touch on my face, severe hyperacusis, ears feel blocked and full, ears clicking and popping, tinnitus
        Jan 1, 2023
        Sammy0225 likes this.
      3. Sammy0225
        Sammy0225
        @Biaxca so sorry to hear that I can relate after using a bulb to suction out wax I developed TTTS I also experienced the spasms to anything it started with door clicks and eventually moved to silverware and loud talking also dog barks. I know how annoying it can be I also been dealing with H, you will get better in time I’m just sorry doctors don’t know how to handle this kinda situation
        Jan 1, 2023
    8. Biaxca
      Biaxca
      TTTS and then also developed tinnitus, only noise exposure was from earwax microsuction.
      1. NYCGuy likes this.
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      3. ErikaS
        ErikaS
        Hey Biaxca, so sorry to hear you’re dealing with TTS and tinnitus. Was the microsuction experience painful? How long was it done in each ear?
        Dec 12, 2022
        NYCGuy likes this.
      4. Biaxca
        Biaxca
        I just saw your comment now @ErikaS I had it 3 times in 2 week span it was only painful first two times when the wax wasn't wet enough when i had used eardrops for one week the last microsuction wasn't painful at all it was just loud it was maybe like a few mins per ear each time, I'm not doing my best to get treatments to help this because it's truly catastrophic
        Dec 31, 2022
      5. ErikaS
        ErikaS
        @Biaxca ugh I am so sorry, that is a lot of work in the ear they should not have done all of that so many times. Are you dealing with reactive Tinnitus?
        Dec 31, 2022
        Sammy0225 likes this.
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  • About

    Gender:
    Female
    Location:
    Sydney
    Tinnitus Since:
    11/2022
    Cause of Tinnitus:
    Unknown
    I got tinnitus on 2nd December 2022, I had pulsatile tinnitus first on 8th of November after I had put my finger in my ear and as soon as I took it out I had PT, used waxsol and it created a compacting of earwax blocking hearing so had earwax removed by microsuction 3 times over a span of 2 weeks, immediately after the second round of microsuction I developed Tonic Tensor tympani syndrome and developed constant tinnitus one week after third microsuction. First time I ever experienced tinnitus was for a few mins after the microsuctions and the last time I had it, it never went away. Considering VAD if off label medications etc and stem cell therapy dont help me, I don't want to have these unbearable conditions for a long time.