CAgirl
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CAgirl

Member, Female

I feel like my only chance was if I could’ve tolerated the Prednisone. Now it’s been a month and so is likely here to stay. :( Aug 3, 2020 at 3:18 PM

CAgirl was last seen:
Aug 3, 2020 at 6:35 PM
    1. CAgirl
      CAgirl
      I feel like my only chance was if I could’ve tolerated the Prednisone. Now it’s been a month and so is likely here to stay. :(
    2. CAgirl
      CAgirl
      Woke up at 3 am. Major spike!!! Hissing so loud!! I’m shaking and pacing around. Why did it get louder!?!
      1. View previous comments...
      2. Lilah
        Lilah
        Are you using sound enrichment when you sleep?
        Aug 1, 2020 at 4:05 PM
      3. CAgirl
        CAgirl
        It seems to spike it even more so I haven’t been. But now since it’s so loud I’m scared to go inside because it’s too quiet in there. And this is too loud.
        Aug 1, 2020 at 7:31 PM
      4. Tanni
        Tanni
        Two big factors in Tinnitus loudness are stress/anxiety and lack of sleep. If you've been experiencing these things, it cause Tinnitus to get louder at times. Try not to worry. From your posts, you've been doing really well.
        Aug 1, 2020 at 11:33 PM
        CAgirl likes this.
    3. CAgirl
      CAgirl
      Just want this to go away or at least improve a little.
      1. View previous comments...
      2. Tara Lyons
        Tara Lyons
        @Bill Bauer and I really just want to hop on a plane and go to Aruba and forget about these last 6 months but I’m too afraid to fly :(
        Aug 3, 2020 at 10:14 PM
      3. Bill Bauer
        Bill Bauer
        Same here. Worse than when my dad was diagnosed with brain cancer at the age of 42 when I was 15.
        Aug 3, 2020 at 10:23 PM
      4. Tara Lyons
        Tara Lyons
        @Bill Bauer so sorry. Yea I’ve never experienced anything as horrific as this in my life.
        Aug 4, 2020 at 12:43 AM
        Bill Bauer likes this.
    4. Tara Lyons
      Tara Lyons
      @CAgirl I’m sorry, it’s really a horrible condition. :(
      1. CAgirl likes this.
      2. Tara Lyons
        Tara Lyons
        How are you holding up today? @CAgirl
        Jul 27, 2020
      3. CAgirl
        CAgirl
        Really struggling today. I feel I’m on the verge of a nervous breakdown. It is soooooo loud and intrusive. Like a knife poking into my skull. Ultra high-pitched piercing tone.
        Jul 27, 2020
    5. Tara Lyons
      Tara Lyons
      @Bill Bauer how does someone fly with this condition? I am an avid traveler and go to Aruba every year. Not this year for the first time in year due to corona and this ear issue, but if this is going to take some time I can’t completely put my life on hold. I’m going to be 33, I still need to live.
      1. aot likes this.
      2. View previous comments...
      3. Bill Bauer
        Bill Bauer
        I wear Bose noise cancelling headphones over earplugs. Noise cancelling headphones work amazingly well in airplanes, but they can cause T, so the earplugs are protecting me from the headphones. I also carry my Peltor X5A muffs with me. Some people are worried about wearing earplugs during landings. I (and at least one other person on this forum @Alue) had worn them many times and have never had any problems.
        Jul 27, 2020
        Tara Lyons likes this.
      4. Bill Bauer
        Bill Bauer
        If you are worried about this, just wear Peltor muffs during landings. You will also want to make sure that you are not suffering from stuffy nose - so bring a good decongestant with you. Of the people who got T or got a T spike as a result of being in a plane, all (or the vast majority) had a stuffy nose.
        Jul 27, 2020
        Tara Lyons likes this.
      5. Bill Bauer
        Bill Bauer
        By the way, I don't play any music through my headphones, I just turn on the noise cancelling and that's it.
        Jul 27, 2020
        Tara Lyons likes this.
    6. Tara Lyons
      Tara Lyons
      Oh I’ve had quieter moments recently, but mentally I’m not ok still. I think it’s my anxiety over if this is ever going to go away or not.
      1. CAgirl
        CAgirl
        Totally get it. I’m three weeks in and a mess. Major anxiety and barely sleeping/eating. Even when I am functional and go out and do something I hear the hiss and it makes my stomach turn. I am just constantly miserable because never have any peace and quiet. Hear it all day. Only the shower masks it. :(
        Jul 25, 2020
      2. Bill Bauer
        Bill Bauer
        If you had experienced improvement, there is no reason for it to not continue to improve. Of course the more it improves, the slower it begins to improve, but 1-2.5 years after the onset you ought to get your life back.
        Jul 26, 2020
        Tara Lyons likes this.
    7. Tara Lyons
      Tara Lyons
      I also have hyperacusis which I think has improved but gave me some physical pain. Also a lot of strange sensations in my ears aside from ringing. I’m just over it honestly.
    8. Tara Lyons
      Tara Lyons
      I’m not doing well, at 6 months in I’m losing hope of ever hearing silence again. I don’t know what caused this. I’m thinking loud noise exposure maybe. I was never too careful with the radio in my car or headphones. I don’t know. It makes me sick to think I did this to myself. Ugh. I just want it to go away. I’m never happy since this started. I just can’t live normally
      1. CAgirl
        CAgirl
        Shoot. I thought I just saw a post where you thought you were finally doing a little better at 6 months out. So sorry. :(
        Jul 25, 2020
    9. Tara Lyons
      Tara Lyons
      Hi. Is this first time experiencing tinnitus?
      1. CAgirl
        CAgirl
        No. I’ve had it in my right ear for 15 years after a medication, but that is a very maskable tone that I only hear in quiet rooms or at night. But even that took me awhile to get used to.
        Jul 25, 2020
      2. CAgirl
        CAgirl
        The ear that is bothering me now (my left) has been fine. No T. Although looking back 10 years ago a balloon popped by it and it hissed for a couple days. Then another time I went to a loud event and didn’t think to bring plugs and it had a slight reactive hiss for a couple weeks. Nothing like the constant loud hiss and ringing it’s doing now.
        Jul 25, 2020
      3. CAgirl
        CAgirl
        I’ve been very careful to protect my ears the last 15 years, wearing plugs to all events including weddings and concerts. So it’s frustrating that this happened despite all my careful precautions against noise. I was caught off guard by those three LOUD blasts. Now I’m so scared it’s here to stay. :(
        Jul 25, 2020
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  • About

    Gender:
    Female
    Tinnitus Since:
    07/2020
    Cause of Tinnitus:
    3 M80 Firecrackers