Tara Lyons
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Tara Lyons

Member, Female

Want my pre-tinnitus life back. Sep 13, 2020

    1. Tara Lyons
      Tara Lyons
      Want my pre-tinnitus life back.
      1. LilSass, Eric N, James1977 and 2 others like this.
    2. Zigs
      Zigs
      Hey Tara
      How are you doing now? My T has been very up and down this past week and I fully sympathise with you I feel desperate.
      Let me know if you want to chat
      Zigs x
      1. Tara Lyons
        Tara Lyons
        Hi! Yes I’m opening to chatting I’ve been staying off the forum as I feel it’s been increasing my anxiety. Please feel free to private message me!
        Jun 26, 2020
        Eloy Resendez Jr and Zigs like this.
    3. Marilou
      Marilou
      Hi Tara, I am new to this forum and also new to Tinnitus. I've seen some of your messages on the forum and I want to give you all my support cause I really feel for you ! I am also having a hard time (almost 2 months in)... So I just wanted to let you know that you're not alone and that we're going to go through this ! I'll be around if you want to have a talk ;)

      (Excuse my english, I am from France)
      1. Tavia R and LilSass like this.
      2. Tara Lyons
        Tara Lyons
        Hi! Yes it’s rough, in a maniac on this forum :/ I’m not handling this well, it’s a nightmare. Not sure why this is happening but I’m still not dealing with it well. It’s a fucking disaster!
        Jun 9, 2020
        LilSass likes this.
      3. Marilou
        Marilou
        @Tara Lyons Have you tried anti-anxiety medication like Xanax ? A good friend of mine had severe hyperacousis and it helped him a lot. I know its not ideal but maybe it can give you some relief and help you cope better...
        Jun 9, 2020
        LilSass likes this.
      4. Tara Lyons
        Tara Lyons
        I have some anxiety anxiety medication and it helps but I am trying not to become too dependent on it.
        Jun 10, 2020
        LilSass likes this.
    4. tbuzz89
      tbuzz89
      Talking about Employees Only and the West Village is reallly making me miss my old life. Feels like this T stops us in our tracks in fear that going to places we love will make it even worse :(
      1. LilSass and Tara Lyons like this.
      2. View previous comments...
      3. tbuzz89
        tbuzz89
        As expected no help with the T but I'm having some other things checked out regardless. Thanks for asking!
        Jun 11, 2020
        LilSass likes this.
      4. LilSass
        LilSass
        @tbuzz89
        Sorry about that! Typical, unfortunately. I feel like that's all I do these days is make medical appts. Oh well, whatever we need to do to take care of our health. You gotta be ur own advocate. Stay strong! :)
        Jun 11, 2020
        tbuzz89 likes this.
      5. LilSass
        LilSass
        Hey @tbuzz89 ! How are things? I know you're going through some difficult times, and if you ever need to talk just let me know. I know we don't really know each other, but I really care about how you and how you're doing. I can reach out to you if you want to pm me. Please don't give up. :)
        Jun 12, 2020
        tbuzz89 likes this.
    5. LilSass
      LilSass
      Hi Tara! Are things getting any better?
      1. View previous comments...
      2. Joe P. Tamborra
        Joe P. Tamborra
        So glad you are getting some restored hope. I personally try to use plugs when I am around loud noise; even in Church worship services if the music is to loud.
        Jun 8, 2020
        Eloy Resendez Jr and LilSass like this.
      3. LilSass
        LilSass
        Glad you had a better day! Mine was low today as well - it's nice to have a break! I'm sure with some patience the H will calm down too. Are you taking any supplements? Still trying to figure that out. Have a good night!
        Jun 8, 2020
      4. Tara Lyons
        Tara Lyons
        I’m taking Magnesium And b2. Can Hyperacusis settle down on its own? Ugh, all of this is just... :/
        Jun 8, 2020
        LilSass likes this.
    6. LilSass
      LilSass
      Hi Tara! How are you doing today? Thinking of you. :)
      1. View previous comments...
      2. LilSass
        LilSass
        Nothing really seems to affect it except it seems to reset when I sleep. Slightly sensitivity to sounds, especially whistling kettle, but not too bad.
        Jun 5, 2020
      3. LilSass
        LilSass
        It's difficult because I don't know how loud it will be when I wake up...
        Jun 5, 2020
      4. Tara Lyons
        Tara Lyons
        Eventually it will get better, even if it doesn’t fully go away it will get pretty low, from what I’ve heard. I’m having a hard time with this. I loved silence and I feel robbed :(
        Mornings seem to be hardest for me, it’s like I wake up and remember it’s another day of this noisy hell :/
        Jun 5, 2020
    7. LilSass
      LilSass
      Hi @Tara Lyons ! Have you considered that you may have ETD? TMJ? I was just looking at an old post by Kara77 'My Journey to Silence'. Something else you may want to try is Massage Therapy (if it's stress induced) or an Upper Cervical Chiropractor (I'm currently seeing one - she says 50% of her patients that have tinnitus have some improvement or full recovery within six months).
      1. Steph1710 likes this.
      2. Tara Lyons
        Tara Lyons
        No but I was thinking about getting my neck checked out! All this cell phone usage these days, you never know! I’ve had all tests done - I just don’t want to “wait it out” if it’s something that can be physically treated.
        Jun 2, 2020
        LilSass likes this.
    8. Joe P. Tamborra
      Joe P. Tamborra
      The first year is the hardest, once your mind realizes tinnitus is not a threat to your existence, you will not think
      about it as much as you do now; so when that happens your anxiety over it will lessen or go away. You have to
      do what you can to distract your mind away form the tinnitus; this will take effort on your part; reprogramming your mind.
      1. Eloy Resendez Jr and aot like this.
      2. View previous comments...
      3. Joe P. Tamborra
        Joe P. Tamborra
        Hey Tara, People seem to progress at different rates. My tinnitus came on from a tumor on my auditory nerve, which I had removed leaving me deaf in that ear. This made the process of "habituation" harder.
        Jun 5, 2020
      4. Tara Lyons
        Tara Lyons
        I miss silence :( what is it like?
        Jun 8, 2020
      5. Joe P. Tamborra
        Joe P. Tamborra
        Actually, in the deaf ear, the only thing I can hear is the tinnitus. So your condition is different than mine; you can mask your tinnitus with sound; which helps some sufferers.
        Jun 8, 2020
    9. LilSass
      LilSass
      1. Eloy Resendez Jr and aot like this.
      2. View previous comments...
      3. Eloy Resendez Jr
        Eloy Resendez Jr
        @LilSass, love that video from Isobel Anderson. I have to re-watch to remind myself that this will get better.
        Jun 2, 2020
        LilSass likes this.
      4. Eloy Resendez Jr
        Eloy Resendez Jr
        @Tara Lyons, you and I are very similar. I need answers. I want to know how long. Will I ever adapt? Mine is so loud, how can I adapt? That's me, I think the same way. That is why people like you and I tend to struggle a little more.
        Jun 2, 2020
        LilSass likes this.
      5. Eloy Resendez Jr
        Eloy Resendez Jr
        I once listened to some psychologist talk about people like us and they said because of the way we think we are successful but when it comes to things we can not control we don't do so well. Not sure if this helps other than to tell you I get it. Your not alone.
        Jun 2, 2020
        LilSass likes this.
    10. Lola808
      Lola808
      Do you think you might try any clinical trials? My story just like yours
      1. Tara Lyons
        Tara Lyons
        Hi, probably not. What did your doctor say? Mine says to give it time but I’m too anxious, every day I wake up and worry about it

        This is truly horrible, I can’t believe something like this can even exist :(
        May 24, 2020
    11. sssing
      sssing
      Btw, did you get an extended audiogram done? It may give you more clues. But regarding the rest of the audio tests (OAE, acoustic reflex, tympanometry) what I learnt was that there’s some level of risk involved so I would advise caution with them.
    12. sssing
      sssing
      But I learnt that wind blowing at them is a high level of noise, try to wear muffs or smthg to reduce the level of noise exposure at this point in time. Don’t let wind blow into the ears. Whatever the type of noise is natural or man made, it’s the level of noise that matters so try your best to reduce that.
      1. Tara Lyons likes this.
    13. sssing
      sssing
      It’s a crazy thing, sometimes it happens and sometimes it’s okay, so I can’t tell you if that’s normal or not. But it has happened to me many times in the car. My only explanation for that is that your ears are sensitive and fragile now so try your best not to trigger it. And noise triggers it. Do you know about wind noise? I know it sounds unbelievable.
    14. dan
      dan
      Does anything mask your T? (Fan, sound machine, shower, driving etc)
      What does it sound like?
      1. Christiaan likes this.
      2. Tara Lyons
        Tara Lyons
        Yeah, it’s primarily my left ear but it just blades, it’s a high pitch scream basically. I can hear it over the TV now.

        I woke up one morning and had this weird echo in my ears and they were ringing and I was dizzy. Then it progressed to sound sensitivity, burning pain, shock like pain after being exposed to noise.

        I get this weird sensation of “loudness.” I don’t know if you get what I mean when I say that.
        May 23, 2020
    15. sssing
      sssing
      It happened to me when I was in the car too. I think the noise makes it worse. Try and see if you can avoid the triggers that worsen it. Or use some noise dampening materials like earplugs or cotton wool to help reduce the level of noise exposure. Hopefully the loud sounds will settle soon.
      1. Tara Lyons
        Tara Lyons
        Oh ok so that’s normal? I’m so upset and scared
        May 22, 2020
      2. Tara Lyons
        Tara Lyons
        Also flipped out when I went for a walk in the cold with no ear plugs or muffs. Really went nuts, blaring and pain. Left ear.
        May 22, 2020
    16. sssing
      sssing
      Hi Tara, how are you today?
      1. Tara Lyons
        Tara Lyons
        Not good. Was in the car for 4 hours yesterday and my ears went ballistic. They are going crazy today too. Just screaming. I left work crying but came back. Why is this happening ;(
        May 22, 2020
    17. LilSass
      LilSass
      I hope that you have someone to keep you company. My husband is my rock and I don't know if I would have made it this far without him! Are you near Trumbull? We lived there for a year (he's from White Plains, NY). Stay strong Tara. <3
      1. Eloy Resendez Jr likes this.
      2. Tara Lyons
        Tara Lyons
        I’m like 30 mins North! My family is from White Plains! I was born in Port Chester.

        Yes life has changed for sure. It really flared up these last few weeks. It’s unbearable lately.

        I ordered special ear plugs and I’m wearing them whenever I may be in a situation that aggravates my ears. They are seriously blaring. This is such a nightmare!

        How are you feeling?
        May 22, 2020
      3. LilSass
        LilSass
        Hi Tara! Had a bit of a shitty day - t was loud. Managed to get out for a walk, little more bearable. I've gotta get some ear plugs as well. Hoping tomorrow will be better...for everyone! I hope you sleep well
        May 23, 2020
    18. LilSass
      LilSass
      Unbelievable that life can change so quickly...I never imagined it. Is your mom still staying with you?
    19. LilSass
      LilSass
      Not really sure at this point. Really? That's all they could say? :(
      1. Tara Lyons
        Tara Lyons
        Yea of course. No magic pill to get rid of this, and I’ve had every test under the sun done.

        :(

        She noticed my anxiety was super high and suggested I get on antidepressant or something. I don’t know. I have two screaming ears right now!!!!! Spent 2 hours in a car, seems to really trigger it.

        Ughhhhhh!!!
        May 22, 2020
    20. LilSass
      LilSass
      Today is a relatively good day, but yeah, things are still a bit rough! My migraines are better since I've been seeing an upper cervical chiro and physio...just need to get rid of this t thing. (BTW I just got your message but it says 11am - you're in CT right?)
      1. Tara Lyons
        Tara Lyons
        Is yours neck related? Yes I’m in CT. I saw “neurotologist” Today, same old story.. give it time
        May 22, 2020
    21. LilSass
      LilSass
      Hi Tara! How are you doing today? :)
      1. Tara Lyons
        Tara Lyons
        Trying to hang in there but we all know it’s rough! How are you?
        May 21, 2020
    22. Joe P. Tamborra
      Joe P. Tamborra
      Yeah, I can understand your feelings! It is a tough thing to deal with; however there are many people that go on to live a fulfilled life that have tinnitus. Look at it this way; it can be compared to living by a busy highway, or in a big city; eventually your mind gets accustomed to the extra noise. You will be okay in time! Hang in there! I have had this 8 years.
      1. Steph1710, aot and Lilah like this.
      2. Tara Lyons
        Tara Lyons
        Want to die I miss silence
        May 11, 2020
      3. Mymlan
        Mymlan
        I know exactly how you feel! We are many here that understand what you are going through. Please try and give it some more time. Things might improve, but it can take a long time. PM me if you want to talk. We are here for you <3
        May 11, 2020
        Steph1710, Tara Lyons and aot like this.
    23. Joe P. Tamborra
      Joe P. Tamborra
      Hello Tara, hope you are feeling better soon. My best advice after living with this condition is to do all you can to take your mind off this. Walks by busy streets, music, movies, good conversation, games, prayer, long showers. Avoid loud noises, to much salt or sugar, no tobacco or alcohol. The sooner you can can refocus your mind on other things; the sooner you will habituate.
      1. Tara Lyons
        Tara Lyons
        Thank you I can’t even believe this is happening to me.
        May 10, 2020
        DoNotGoGentle likes this.
    24. Steph1710
      Steph1710
      Hey Miss (or Mrs) Lyons. I know you're struggling and I just wanted to say although you probably feel very alone, you're not. I developed T four weeks ago and I also miss the silence. I used to relish it and it seems so cruel to have it taken away. Sending love (even though we don't each other) <3
      1. Tara Lyons, Lucifer and aot like this.
      2. Tara Lyons
        Tara Lyons
        Sending love to you too. Any ideas what caused yours? It’s a nightmare!
        May 9, 2020
    25. jacob256
      jacob256
      That's odd lol try starting one with me then! I think you just click my profile name and then there's a "start a conversation" button!
      1. Tara Lyons
        Tara Lyons
        Still can't figure it out... I'm at work and a coworker is trying to help me and we still can't get it! LOL
        Apr 29, 2020
    26. jacob256
      jacob256
      Hey! To respond to messages I think you go to "inbox" at the top right and then click the conversation title and scroll down and there should be a text box!
      1. Tara Lyons
        Tara Lyons
        I don't see it! What's going on?! So confused.
        Apr 29, 2020
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  • About

    Gender:
    Female
    Tinnitus Since:
    02/01/2020
    Cause of Tinnitus:
    Unknown