Tara Lyons

@Donna61 is yours one tone?

Hi! Yes I’m opening to chatting I’ve been staying off the forum as I feel it’s been increasing my anxiety. Please feel free to private message me!

Hi! Yes it’s rough, in a maniac on this forum :/ I’m not handling this well, it’s a nightmare. Not sure why this is happening but I’m still not dealing with it well. It’s a fucking disaster!

@Tara Lyons Have you tried anti-anxiety medication like Xanax ? A good friend of mine had severe hyperacousis and it helped him a lot. I know its not ideal but maybe it can give you some relief and help you cope better...

I have some anxiety anxiety medication and it helps but I am trying not to become too dependent on it.

As expected no help with the T but I'm having some other things checked out regardless. Thanks for asking!

@tbuzz89
Sorry about that! Typical, unfortunately. I feel like that's all I do these days is make medical appts. Oh well, whatever we need to do to take care of our health. You gotta be ur own advocate. Stay strong! :)

Hey @tbuzz89 ! How are things? I know you're going through some difficult times, and if you ever need to talk just let me know. I know we don't really know each other, but I really care about how you and how you're doing. I can reach out to you if you want to pm me. Please don't give up. :)

So glad you are getting some restored hope. I personally try to use plugs when I am around loud noise; even in Church worship services if the music is to loud.

Glad you had a better day! Mine was low today as well - it's nice to have a break! I'm sure with some patience the H will calm down too. Are you taking any supplements? Still trying to figure that out. Have a good night!

I’m taking Magnesium And b2. Can Hyperacusis settle down on its own? Ugh, all of this is just... :/

Nothing really seems to affect it except it seems to reset when I sleep. Slightly sensitivity to sounds, especially whistling kettle, but not too bad.

It's difficult because I don't know how loud it will be when I wake up...

Eventually it will get better, even if it doesn’t fully go away it will get pretty low, from what I’ve heard. I’m having a hard time with this. I loved silence and I feel robbed :(
Mornings seem to be hardest for me, it’s like I wake up and remember it’s another day of this noisy hell :/

No but I was thinking about getting my neck checked out! All this cell phone usage these days, you never know! I’ve had all tests done - I just don’t want to “wait it out” if it’s something that can be physically treated.

Hey Tara, People seem to progress at different rates. My tinnitus came on from a tumor on my auditory nerve, which I had removed leaving me deaf in that ear. This made the process of "habituation" harder.

I miss silence :( what is it like?

Actually, in the deaf ear, the only thing I can hear is the tinnitus. So your condition is different than mine; you can mask your tinnitus with sound; which helps some sufferers.

@LilSass, love that video from Isobel Anderson. I have to re-watch to remind myself that this will get better.

@Tara Lyons, you and I are very similar. I need answers. I want to know how long. Will I ever adapt? Mine is so loud, how can I adapt? That's me, I think the same way. That is why people like you and I tend to struggle a little more.

I once listened to some psychologist talk about people like us and they said because of the way we think we are successful but when it comes to things we can not control we don't do so well. Not sure if this helps other than to tell you I get it. Your not alone.

Hi, probably not. What did your doctor say? Mine says to give it time but I’m too anxious, every day I wake up and worry about it

This is truly horrible, I can’t believe something like this can even exist :(

Yeah, it’s primarily my left ear but it just blades, it’s a high pitch scream basically. I can hear it over the TV now.

I woke up one morning and had this weird echo in my ears and they were ringing and I was dizzy. Then it progressed to sound sensitivity, burning pain, shock like pain after being exposed to noise.

I get this weird sensation of “loudness.” I don’t know if you get what I mean when I say that.

Oh ok so that’s normal? I’m so upset and scared

Also flipped out when I went for a walk in the cold with no ear plugs or muffs. Really went nuts, blaring and pain. Left ear.

Not good. Was in the car for 4 hours yesterday and my ears went ballistic. They are going crazy today too. Just screaming. I left work crying but came back. Why is this happening ;(

I’m like 30 mins North! My family is from White Plains! I was born in Port Chester.

Yes life has changed for sure. It really flared up these last few weeks. It’s unbearable lately.

I ordered special ear plugs and I’m wearing them whenever I may be in a situation that aggravates my ears. They are seriously blaring. This is such a nightmare!

How are you feeling?

Hi Tara! Had a bit of a shitty day - t was loud. Managed to get out for a walk, little more bearable. I've gotta get some ear plugs as well. Hoping tomorrow will be better...for everyone! I hope you sleep well

Yea of course. No magic pill to get rid of this, and I’ve had every test under the sun done.

:(

She noticed my anxiety was super high and suggested I get on antidepressant or something. I don’t know. I have two screaming ears right now!!!!! Spent 2 hours in a car, seems to really trigger it.

Ughhhhhh!!!

Is yours neck related? Yes I’m in CT. I saw “neurotologist” Today, same old story.. give it time

Trying to hang in there but we all know it’s rough! How are you?

Want to die I miss silence

I know exactly how you feel! We are many here that understand what you are going through. Please try and give it some more time. Things might improve, but it can take a long time. PM me if you want to talk. We are here for you <3

Thank you I can’t even believe this is happening to me.

Sending love to you too. Any ideas what caused yours? It’s a nightmare!

Still can't figure it out... I'm at work and a coworker is trying to help me and we still can't get it! LOL

I don't see it! What's going on?! So confused.