lymebite

Thanks for your kind words! I honestly don't know. I thought there was a chance FX-322 might help but that's had the big setbacks this year with the clinical trials. The reformulated version of retigabine / Trobalt that Thanos Tzounopoulos is working on could potentially help, but that feels like it is probably at least 5 years down the road.

Thanks for your response! Yea that was disheartening I didn’t have any auditory issues then but I’ve read the thread. I just wish I had regular tinnitus instead of pain H and distortions it’s so hard at times

I thought maybe could be cause of H and T that started many years ago. Tests all came back negative though. I did get bit by one this year, pulled it out, sent it to lab, came back positive for Lyme, I took doxycycline to kill any Lyme.

I often have chronic 24/7 chronic ear pain. When the pain is especially bad I find the LLLT lessens the pain. It has not quieted my T.

@Aleksandar, as someone who tried LLLT with the Konftec but only had spike, I strongly suggest you try it for only 5 minutes the first time, as opposed to the recommended 30. I would wait a few hours and see if you spike - if you don't, move the duration up. When I did it for 30 minutes I had such a big spike it made me have a breakdown.

I was never able to figure out how to cut them. I tried what people said to do but it did not affect the width of the spectrum.

No change, still cannot tolerate them.