mattryp

mattryp

Member From Pennsylvania
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  • mattryp
    What's a good natural alternative to prednisone for bringing down ear inflammation? My body is compromised now, so don't feel I can take it.
    mattryp
    Should I goto an NBA game with family? I assume they got louder, just like movies, since our society is insane. Hate living like this :-(
    Bill Bauer
    Don't "do the crime" if you can't "do the time"/handle a lifelong spike.
    A
    I so want to tell you to go, to live your life like yesteryear, but the reality is that you may live to regret it. This condition is the most hateful thing there is...
    mattryp
    @all to gain Yeaaa, I just decided not to go. Feels like I'm letting a lot of people down, painful way to live.
    mattryp
    Struggling a lot with self forgiveness lately. Almost 3 years into this heartbreaking hermit life, that nobody around me understands.
    A
    Yep, nobody except us sufferers get it! Life completely wrecked due to a phantom noise only we can hear...!! Couldn't make this crap up.
    stacey
    Same, I'm going on 6 year's.
    mattryp
    Does your dream character also have messed up ears? Mine does :-/
    OnceUponaTime
    Whats your dream character??
    mattryp
    @OnceUponaTime By that I just meant, the person I am within my dreams, not any special avatar / character.
    OnceUponaTime
    Haha...I see. Well, both for me as I have had dreams were I do not have t and dreams were I do...ugh.
    mattryp
    Anyone else's T & H spike after a little more noise that you're used to, mixed with a drastic change in weather?
    View previous comments…
    S
    I'm sorry @mattryp I know how difficult it is to act like you're okay and wanting to go to wherever you have plans for. You just really want to stay home and dwell on the spike, it causes major distress. I hope you can somehow enjoy yourself and hopefully it settles for us soon. :(
    mattryp
    @TheDanishGirl It's crazy how much spikes affect my emotional state. I know it'll go back down, but still get all anxious, especially when I have to face family / society with a spike.
    OnceUponaTime
    Yes and yes.
    mattryp
    Spike after my first anime convention, but I wore foam plugs, so think I'll be alright. Just beyond tired of the waiting game... :-/
    mattryp
    Cousin says he'll be at two concerts. I tell him to wear plugs, he calls me an old man. Crazy how little awareness there is about sound.
    View previous comments…
    mattryp
    @InfiniteLoop Well, I dunno if it eliminates most of the fun. I've had plugs for in for most of the loud events in my life, and managed to have a good time. But it was a damn wedding reception just about 3 years ago, that did me in. Totally agree though, being unprotected just isn't worth it.
    Blodorn
    My gf did go to 2 concert in two days without plugs despite my warning and she is okay. So yeah, T is really selective.
    TheDanishGirl
    @Blodorn - my mom has gone to many concerts and she basically spent MANY years going to clubs and parties every single week from thursday-saturday. She says she has never had ringing in her ears. Some people are just lucky.
    mattryp
    I go through waves of acceptance, and turning that acceptance into self loathing again. Nearly 3 years in, and I'm on a loathing wave.
    mattryp
    Deciding whether or not to attend a concert of my favorite artist, with a full band, small venue, is causing me a lot of anxiety right now.
    View previous comments…
    mattryp
    It's just really a painful way to live... told my sister that he's touring now, and she said we'd have to go (also a fan), but now that I looked up the details, and see that it's this coming weekend, in small venues, I have to just omit that info to her, and let it pass. And the whole thing / my life right now makes me feel like shit.
    TheDanishGirl
    @mattryp Yeah I know it is painful. I am having some rouugh days myself, these days......where I just miss my old life with concerts and other loud events, so much it hurts :( I keep telling myself it won't last forever.......that there will be a treatment in the near future. The prospect of having my old life back one day, keeps me going.......for now at least.
    mattryp
    @TheDanishGirl The next thing I'm looking into again is vagus nerve stimulation, because it's connected to so many systems, auditory being one of them. I read that it can help tinnitus. I've tried it in the past with my Scenar, and plan on coming back to it soon.
    mattryp
    Night out at hibachi + bad occlusion effect + constantly adjusting / pushing plugs deeper in, to remedy occlusion effect = T & H spike :-(
    mattryp
    I miss listening to music, while packing for a trip. Now I pack silently, with a deep unease about wherever I'm going.
    Red
    I miss music too...
    The only music I get are the songs in my memories.
    mattryp
    @Red Yeaaa, I've been doing the listening from memory thing too. Then I put the actual song on, and had to turn it down, realizing that the memory of it was sweeter, and had more clarity. Man, so depressing...
    mattryp
    Anyone else feel like your entire personality, and how you interact with the world is totally off, because of living with T/H...
    View previous comments…
    OnceUponaTime
    Yes, sadly it has changed.
    Red
    I hate the person I am now. She should go away and let the real Red come back. But that will never happen. The real Red is dead.
    mattryp
    Wow, so I'm not alone in this right now. I feel like because of it, most of my decisions, and interactions with people are off. Then I retrace it in my mind, ways I could've positively altered the experience, by changing key decisions / things said. Then guilt, how I can't be more complete right now, how I'm letting everyone down. I've been here before, but this time it feels heavier, and it's a shitty place to be.
    mattryp
    Trying to decide if I should goto an old friend's wedding, but I damaged my hearing at a wedding 2 years ago. He's asking where's my RSVP...
    View previous comments…
    mattryp
    @Bill Bauer Yea I'm thinking not to, but need to meditate on it some more. Just talked to a friend who thinks I should, but he doesn't really understand this condition.
    Jack Straw
    Perhaps you can go to the ceremony / dinner and leave for the party when the music comes on?
    mattryp
    Thanks guys. We actually agreed that I join them for the rehearsal ceremony / dinner a couple days before. I forgot how weddings have that. But that way, it's quieter, and we can actually have a convo / catch up.
    mattryp
    The Harleys are coming out of hibernation :-/
    View previous comments…
    mattryp
    @AZeurotuner Haha, I have the same reaction to those things, and have always respected the quiet cruisers. Props for owning one of those yourself. I knew a woman who was trying to explain the HD riding philosophy to me, and I kinda got it, but I don't get how those people don't have hearing damage from the wind / engine noise, esp when riding together. I'm sure that 99% of those riders don't plug up.
    AZeurotuner
    My town is swarming with them, and it's always good weather to ride in Tucson, Arizona, so they never hibernate... I hear them all day and night, very annoying, most can be heard from about a mile away. And trust me those guys definitely have hearing damage, they just don't care.
    mattryp
    @AZeurotuner That's rough man, sorry you have to deal with that. I'm in the mountains, so we have motocross / atvs riding around too. But compared to 5-10 - 20-30 / constant HD riders, I'll just be grateful for what I have to deal with here, lol.
    L
    I have started suffering lots of different things in my ears and I'm feeling very worried I have mri and mra saw 2 ents now my ent wants me to see someone for balance and hearing next week which he said will be a big help
    L
    Hello nice to meet you . How are you feeling ? I was just wondering about the ear fullness you get and if you still get or did find out what it is ?
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