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@CurlyBee, were you able to get it to work again?

Sorry to hear about your recent accident @Nick47. I know that “back to square one” feeling — everything coming back with full force. At least it feels and seems that way. It’s often especially difficult to deal with when you replay the situation over and over, wondering why on earth you did it...

Hi, I’m looking for some help with this. I went to the doctor yesterday for another issue, but I also asked for a mouth swab because I thought I might have thrush. I got a phone call saying I have an infection and that there’s a prescription for antibiotics (two weeks’ worth) waiting for me. The...

I love how these treatments appear with seemingly great results, yet we never hear about them again.

@dd314, a couple of people have claimed to have had it compounded, tried it, and noticed no effect on their tinnitus.

It has been 18 days since I stopped taking the medication. Why is my tinnitus getting worse every day? It keeps getting louder and constantly changes. It is also much more reactive. Why has it not stabilized? Is it possible that the crackling and clicking in the Eustachian tubes, caused by...

Thanks for your reply. The reason I want to find my tinnitus frequency is so I can do notched audio treatment. Since my tinnitus is due to hearing loss in the 3 kHz to 8 kHz range, should I remove those frequencies from white noise and listen to it as notched audio? Does this help reduce the...

I had an unfortunate run-in with a low-flying helicopter (think lower than 100ft)... I am enduring worsened tinnitus (so much louder), plus muffled hearing.

Trump on protected free speech today: "We took the freedom of speech away because that's been through the courts, and the courts said you have freedom of speech, but what has happened is when they burn a flag, it agitates and irritates crowds. They've never seen anything like it. On both...

ananın amına koyayım pelin koçdor

im so tired mentally im tired of crying everyday its been how many days since 26 september 2024?

How do you do TRT on your own?

Life is like being inside a room with only one door. Eventually, we’ll open that door and step out. So why rush something that draws closer with every passing second?

@ColinUK, I just read your post. Very well written. After six months of stable tinnitus and no hyperacusis symptoms, I made the mistake of testing my home smoke alarm to see if the battery needed changing. Was it overconfidence, foolishness, or just normal behavior? Now my tinnitus feels like...

I have tinnitus and hyperacusis, and my audiologist encouraged me to go to a bowling alley to watch my friends. It was an awful setback that worsened both my tinnitus and sound sensitivity. This happened three weeks ago, and I’m afraid the damage might be permanent.

Why do you say it’s your fault, @vilebubbles?

For those who have this device, are you still able to use it now that the company has shut down?

Someone on Reddit claims they tried XEN-1101, presumably as part of an epilepsy trial based on their comment history, and it had no effect on their tinnitus. That’s disappointing.

So you had no improvement for over a year, and then it went down to a 1? How long did it take to reach that point?

Since you have hearing loss across a wide range of frequencies, this results in multiple tinnitus tones that combine to sound like white noise, which is what you’re hearing. You won’t be able to identify a single specific frequency for your tinnitus because it consists of several different...

Has anyone been able to access this treatment in any way by contacting the authors?

Hi, I’m a 51-year-old female, and I’m reaching out to see if anyone can offer opinions or help. Nine days ago, I suddenly developed tinnitus in my right ear while walking into my office at work. The hearing in that ear suddenly cut out for about ten seconds, accompanied by a loud ringing. My...

Try playing music on a Bluetooth speaker at around 30 dB. That helped relieve my depression. Your tinnitus is idiopathic, so it should subside over time — you have better odds than most. Hope is a powerful weapon against tinnitus. I was at a 9 out of 10 from an acoustic shock explosion for over...

My tinnitus came from an indoor gun range. I was wearing earmuffs that were inadequate for that level of noise. It has been 18 months, and this is the treatment I am currently on: 50 mg of Zoloft daily in the morning. 1 mg of Klonopin, half in the morning and half in the early evening. A daily...

Search for “somatic tinnitus” and read a lot about the sternocleidomastoid (SCM) muscle. Try gently stretching your neck in a quiet room and see if you can change the tinnitus. If you can, and if it was not a constant tinnitus at first, I would say with almost one hundred percent certainty it is...

I have this too. I can sometimes hear mine during the day as well. It’s really, really, really annoying.

I have this too, and I can’t cope much longer. It’s been ten months of buzzing in my head, like a fridge, along with vibration in my left ear. The ENTs don’t care. They just say, “Tinnitus, learn to live with it.” But I can’t, because it reacts when I’m talking to someone or watching TV. It...

Thank you for that verse. I really needed it.

Did it help with your OCD? I have OCD too, and it’s very bad.

I don’t know if I imagined it, but I believe I may have experienced my first few minutes of silence today. I was working in a quiet room without any background masking, and all of a sudden, everything went quiet. I stopped working and listened. Nothing. I got up, went into the bathroom, and...

I feel that we just have to keep moving, bro. There’s surely a light at the end of the tunnel. This is actually awesome. Hopefully, we get more news soon. We really need a cure, it’s been far too long.

I'd love to know how you did this. I haven't had a nap since I realized they gave me spikes two years ago. Man, I could really use a nap.

Thanks, but it’s so far away. I don’t think I have the courage to stay that long.

Sorry, I said “Zulresso,” which was withdrawn, but I actually meant “Zurzuvae,” which targets the same pathways. Zurzuvae isn’t intended for tinnitus, but since it acts on GABA pathways, it might help you. However, you’d need to go through quite a process before being able to try it, and it...

Hi, I need help finding my tinnitus frequency. My tinnitus is from sound-induced hearing loss. I only hear white noise, not a tone. Since tinnitus frequency is usually determined when there’s a tone, how can I figure out the frequency of my tinnitus if I only hear white noise, more in my left...

you are just like me you stopped coming into these shitty forums hopefully you are in better place you are young like me

No one in my family accepts my condition and when I try to explain it, a huge argument breaks out.

I really hope this will help bring treatments out soon. It would certainly make things easier if scientists could see the cochlea itself and work directly with it.

i believe my tinnitus is catastrophic %100 im only 30 - 0 sound exposure only iv prednisone done that

First living cochlea outside the body shows how hearing really works Some more euphoria for you all. Why am I bringing this up again? Well, I think those first in line for the euphoria are the scientific community, audiologists and researchers in particular. The breakthrough is bound to...

@hey, the media team is excellent, especially considering the organization is only just over a year old. Now we’re really encouraging patients to join us as monthly donors. We need to keep the momentum going. Choose any amount that feels comfortable. You can donate as little as three dollars a...

Congratulations on reaching 10k followers on Instagram. You’re doing great!

Hello everyone, My name is Danique, and I recently graduated from Hanze University of Applied Sciences. I'm currently conducting research on the relationship between tinnitus and sleep problems. To better understand this topic, I'm looking to speak with people who experience tinnitus about...

Hi everyone, I started getting tinnitus about a year and a half ago. It seemed to coincide with two things: being made redundant and catching a cold that gave me an earache. I’ve learned to live with it, and at times I can go a day or more without thinking about it. But it seems to come in...

Acute stage of hearing loss. https://link.springer.com/article/10.1186/s12974-025-03561-w

September Update (07/10/2025) Sorry, this update is a bit late, as I was on holiday. My latest MML is around 10, and my MAL hovers between 1 and 4, so maybe there’s been a tiny bit more progress. My absolute dream is to never hear the sound again, even in silence like Peter Studenik, but I...

Hi mate, sorry, I only just read this. I didn’t get the notification for some reason. TRT stands for Tinnitus Retraining Therapy. It’s a combination of sound therapy using pink or white noise delivered through earphones or hearing aids with built-in speakers, set at a level below the tinnitus...

Please feel and absorb the love and understanding from the people here, @jul.fri. You need your family’s understanding now more than ever, but that doesn’t seem likely to happen any time soon. So, I encourage you to keep sharing here for now, where nobody will doubt you or brush off your...

(2/2) Right now, I continue not because of me, but for my wife and my family. I don't know what can I do to get a little better. I truly want to live of course, but right now it's hard to see the point in any of this. I just go through days and weeks the best that I can, but it's hard when you...

(1/2) Yesterday I should have had a good day. Easy work in the morning, and later I went with my wife to get a coffee and some doughnuts. Then we cooked some dinner and watched a episode of one of my favorite series, The flight of the Conchords. Anyway, I was feeling terrible and so depressed...

I hope things get better. I feel your pain, man.