Separate names with a comma.
I had a few episodes of seeing bright flashes of light, sleep paralysis, and brain zaps while I was asleep. They subsided over time. Don’t know...
I read this every day. Thank you
Me!
Is it true some members here cured their reactive tinnitus and hyperacusis with Keppra and/or other seizure medications? My neurologist...
I am in the exact same boat as you. For me it has been 6 months since I’ve left my home. My parents also do not understand at all. I’ve cut off...
It’s okay! That answers my question. Thank you.
The one from Ireland? I live in the US so I don’t think it’s available to me. @JohnAdams
I am like Gaby and losing hope. I’ve read a lot on her story. Her tinnitus and hyperacusis is very similar to mine. But exact in severity. I’m...
Was it ever reactive ?
I’ve spent the last 2 years worth of holidays alone. And I’m 23. It only bothered me on New Year’s Eve. That was hard. But I try to tell myself...
I can translate for you if you ever need it.
My reactive tinnitus gets so loud that I can’t hear my own voice sometimes. And the sounds come from my head moreso than my ears. And then it...
My reactive tinnitus is spot on to this video (except for the underwater scene... I’ve never heard a sound like that). Supposedly Zoe Cartwright...
I’ve had the same thing happen only once. I just told myself to not panic and go back to bed and it actually worked lol
That’s why I struggle with cellphones still. But I’m okay listening to the tv now. It took a few months but I’m generally okay at a low volume. I...
How do you get to work then? I can tolerate music and televisions but I can’t tolerate being in a car. So I’m just curious.
That’s the thing. My reactive T used to react to pink and white noise....so I never used it. Now my reactive T doesn’t react to white noise. HUGE...
I’m finally about to start TRT. For practice, I’ve been listening to pink and white noise. I didn’t listen to it very loud but now I’m having my...
I bought her book too a while ago. She is very inspiring. Especially because she too started to go through her ordeal at a young age (like me).
@Red What were your levels?
Update: I was finally able to leave my house to go to a neurologist. Turns out I have a B12 deficiency. Please look up “Could it be B12?” on...
@cantletgo Any update? I also have all of your symptoms
****correction**** I try my best to not fear my H/ other symptoms There are days where they completely break me down. Where I feel completely...
Whoops I accidentally deleted my post @Red I won’t repeat it but ultimately please listen to your body. Your symptoms and triggers will be...
@Red That’s one aspect I do agree with TRT therapy (among a few other things). You have to let go of that fear as much as you can. I protect...
@Red Long long long story. And you can get better. Not even just habituation but actually get better. But if you’re not careful and become...
I strongly feel like the advice on these forums ruined my life. I was always a passive person so when I read veterans posting things like “it...
That’s a good point. And to be transparent, I’ve never taken steroids (I wanted to but my doctor refused at the time of onset). I just take...
I’m hispanic/American @MuffinMan
No but I get that a lot lol
Reducing inflammation isn’t a cure. But it can most certainly help. There’s too many neurological studies that talk about this. Just not in terms...
Do you mind elaborating on the eyeball part? What do you mean by the tinnitus noise hurts your eyes? @Telis I know you feel pain there (doesn’t...
It’s not strange or too rare unfortunately @Red Multiple people have been permanently harmed by MRI’s...
Also, I know this is hard. I hear you. I’m sorry you’re going through this. I wish we all didn’t have to go through this. I believe you when you...
I occasionally get woken up by my tinnitus too. It sometimes gets into my dreams even. I find it easier to fall asleep the more I detach myself...
I’ve started having lucid nightmares that end in brain zaps after getting reactive tinnitus. I believe it’s because of what you posted. Here’s an...
Thank you for this post!!!
Tired. You?
@Dginobile your tinnitus used to be reactive right? So did that get better or do you just ignore it? If I’m exposed to sounds louder than 70...
I live in Chicago. One of the noisiest cities in the world. A lot of you live in the suburbs or smaller cities or even small towns. It’s NOT the...
I specifically have tinnitus/hyperacusis/visual snow from a severe acoustic trauma. And I’ve met 4 other young people like me with the same...
I’m 23 and I have been struggling leaving my home to go see doctors. If I’m around 70+ decibels (which is everything) especially if it’s a low...
My T always spikes during and after a nightmare. It’s probably your heartbeat triggering pulsatile T. I don’t have pulsatile T per say but my ears...
I’m so sorry to reply to an old thread but I am currently losing my vision to the “fireworks” and visual snow. I also have tinnitus and H from...
I need to go to the ER today for some medical stuff but I haven’t left my home in 3 months because of reactive tinnitus, noise induced brain zaps,...
I used to have exploding head syndrome too. It sucked sooo bad. I’m always afraid it’ll come back but I try to not think about it.
I don’t have that but I can ask a friend about it (she has it and had to stop running because of it but is doing much better now)
Hey everyone. I had tinnitus for a year and then suddenly 3 months ago I developed reactive tinnitus, hyperacusis, brain zaps, exploding head...
Hi! I have a lot of your symptoms. Did your visual snow/floaters/other visual stuff get better?
@another sean ahhhh thank you. That’s super helpful. I was thinking of learning python but now I don’t know. Maybe go for something simpler first.
it’s okay! It is what it is. I’m signed up for stem cell therapy. I’m just saving up for it. But I also have eye issues from my T so that’s a...
I don’t drink milk and I have severe severe severe reactive tinnitus. I’m glad it worked for you though :) You could have been sensitive to milk...
I have them indoors but those are not worth mentioning because those are easy to ignore and don’t fully obstruct my view. That’s what I meant....
I am on a treatment plan to recover from my severe tinnitus and hyperacusis but right now working outside of my home is just not an option. Does...
@JasonP I’m 23 so I’m young. I’ve never had a problem with eye floaters before. I really think it’s my brain causing this. I have found many...
My hypothesis is that acoustic traumas demylienate neurons in the brain in the auditory circuitry (among many other issues that acoustic traumas...
Has curcumin helped you?
The floaters were this big but this picture is a joke in comparison. I mean there were so many that I could only see black. I’m not kidding. I...
I don’t think people go into it expecting it to regenerate hair cells. I’m going into it hoping it’ll do some damage control for my Brain
I decided to get stem cells. Although I’m not just going for my tinnitus, reactive tinnitus, and hyperacusis. I’ve develooed a lot of other...