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Yes my meniere's began with just tinnitus. The vertigo then happened some six months after. And then the deafness. I get pulsatile...

Was about to post this as a separate thread but saw the positivity thread and thought it might be better placed in here . So this is for anyone...

I should also add that menieres spontaneously goes into remission for yrs and yrs. I had that experience myself (I'm 18 yrs in). My own hearing...

i contacted her too and attempted to buy a laser but the sellers website looked so dodgy i was really put off. i was also worried about safety, as...

sorry your ears are not having a great time Glynis. :( Surf the wave, it will blow over soon. Are you able to do anything to take your mind off...

[MEDIA] just wanted to share the above story lady had gentamycin to treat infection and it destroyed her vestibular system she had permanent...

hi i havent attempted keto since the above post. the myoclonus is really bad at times. i spoke with ent last week and he said if it wernt for the...

when you have a constant dizziness like that it could inidcate labrynthitis. i would push for 2nd and 3rd opinions from ENTS and try antivirals...

well it'sbeen about 4 days of low carb high fat with plentiful coconut milk. but I'm sad to say my tinnitus and myoclonus has been absolutely...

Well after doing a test of eating more and more carbs gradually over a few days the tinnitus is heavier louder and the myoclonus began again. So...

It is where you obtain most of your energy from fat as oppose to carbs. So you have low to moderate protein, very low carbs and lots of fat. It...

Hi Thanks for replying. I am also beginning to think that ketones and short and medium chain fatty acids (S/MCFA) are beneficial. But I need to...

I developed menieres age 17 and my Dad developed it n his 60s. I presented completely differently to him and and there are other possible causes...

http://www.financialexpress.com/article/lifestyle/health/anti-seasickness-device-comes-closer-to-reality/131251/ just seen this, couldbe useful...

Hi Glynis, Nice to meet you. Sounds like you do some great things to help the menieres and tinnitus community. I too have bilateral menieres and...

I have now managed to go grain and dairy free and none of it has made any difference to the tinnitus or menieres. I haven't tried ketosis yet....

menieres occurs at any age - just for the records

http://www.diseasemaps.org/en/meniere/ this is a really cool map a tinnitus map would be equally awesome

i took chinese bitters by 'sensiblehealth' about 10yrs ago. it irradicated painful periods but did nothing for my menieres symptoms

I loved Whiplash!

Hydrops can be diagnosed without autopsy - an advanced version of the ECOG test where an electrode is placed through the ear drum. You have to...

Don't be too hard on yourself! Eating rich food over Christmas is very much forced upon us by the culture in which we live. I have had all sorts...

Did anything occur which may have contributed to the MD returning after 3 years remission? I find it difficult to hide my negative opinion of...

@Sound Wave do u find it beneficial?

thats annoying isnt it, you'd expect in the age of technology and all!

I watch with subtitles, i dont like to TV too loud, but i cant understand what people say. You can download subtitle on tinterweb, im afraid my...

yes, the menieres society are funding quite a few small scale studies atm. One of them is analysing the data from the meniere's symptoms app to...

Not sure if this is best place to post but as its the meniere's thread Here is a survey for both healthy and meniere's people to complete - only...

I think some poeple seem to be helped by antivirals and i think the JOH regime promotes this mechanism. It doesn't sit with me - mainly becuase I...

ah ok thank you for replying. i know antivirals have been trialed for meniere's, but like everything with mixed results, probably becuase not all...

what was the virus and meds that your friend took?

@kmohoruk thats intersting that you say you became extra sensitve to high freqsuencies - I swear this has happenned to me with lower frequencies...

I'm a nutritionist and would not recomend JOH regimen. Overdoses of certain vitamins are mostly unhelpful to the body. I'm afraid I don't support...

I'm sorry to hear your symptoms I do understand how rubbish it is. Can you tell me about your recovery since treatment? It sounds as though it has...

@ffJimmy Did you have hearing loss, and has that been afffected by your treatment? Has your Tinnitus been affected by the treatment? I presume...

perhaps orthokine treatment has an effect on interleukin and this research states that menieres patients have increased interleukin 2 receptor...

thanks have just followed you both

It seems as though they start at a low dose and work upwards depending upon at what level patients experience improvement. I think I have seen...

http://www.longecity.org/forum/topic/69729-nicotinamide-riboside-nrniagen-personal-experience-thread/ Some info above, haven't had a chance to...

Anyone found a dosage in the study?

Anna vs Meniere's

Thanks Dr Charlie, I have spoken with many coeliacs who also have meniere's who sadly say that going totally gluten free did not affect their...

Dr Charlie, Thank you for being an ENT and joining the forum. I have had Meniere's since age 17. It begin with Tinnitus and took my hearing away...

Seeing as she knows the future can she give me the lottery numbers please? Nobody can say anything for sure. The ear is still unconquered...

While CSF leak is generally accompanied by an orthostatic (upright only) headache, this association is not universal and in fact, hearing loss may...

http://www.ncbi.nlm.nih.gov/pubmed/12589857

NT3 is a neurotrophin. BDNF can be increased through exercsie and learning, i wonder if this NT3 can be ncreased somehow...

http://www.medicalnewstoday.com/articles/284152.php Transplant of nose cells help paralysed man to walk - I wonder if there is scope for this...

The audiogram improvements are impressive. If this works, are there any studies on safety and efficacy and if not, does anyone know why not?

http://www.marketwatch.com/story/otonomy-enrolls-first-menieres-disease-patients-in-oto-104-multiple-dose-safety-study-2014-10-09?reflink=MW_news_s...

Hello everyone :)