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2 years of hell and it keeps going. My eyes are having strong visual disturbances now. Thought I was doing better at one point but I am not. I...

@RaZaH Google Normandy, boom there is your facts

@amandine "Not only the Nazis but the Americans have also had their fair share of experimenting on people including prisoners......and even quite...

Well, I'm seeing a Naturapath and getting injected with all of those vitamins so I should be fine. All I know is that I am no longer suicidal and...

I use it every morning with several other supplements. When I started taking SAMe and Dopaboost I no longer wanted to kill myself. I've been...

Not necessarily, however mine never did until it t started. How are you doing @nills ?

I've been watching these, very excited about the new technology coming out. It would be cool while working in quiet environments to turn a little...

Am-101... a bust. Wish I had never participated. I have used crickets and thanks for the link! Hit me up so I don't hijack the thread. @Danny Boy

I went through a rough patch last week, a little better the last two days. I got my wind chimes and waterfall music playing with the tv on in the...

I think the Doc is trying to say you will be just fine... Temporary spikes are very common with T and people without T

When you have lost your ability to teach percussion which has been your life for 20 years it is certainly a bitch. Trying to find purpose again....

This is difficult when it is loud ALL the time. I wish mine came in phases. I would say mine is just a Permanent spike. Constant torment.

I have had no change in my Tinnitus. I'm going tomorrow for an important session. I will try to update afterwards @Rube

This makes me want to die

Noise induced, allegedly... Seems stupid to have it like I do when I wore protection for years

@amandine I apologize, as I had no idea that the polls were public. I swore the first poll was private, I guess that's why a new one was created....

@amandine, my left year was noticeably worse after am-101. I'm not familiar with what the blood test checked. Also, I have never publicly...

I wore -30 db foam ear plugs for almost a decade and still got it bad. I was even wearing ear muffs over the foam plugs when it happened.

Sort of a wavy vision, and muscle spasms when I over work my body. Spasms are not that bad. Just curious as I did get a bug bite 5 years ago...

Thanks, I haven't been diagnosed, however I'm seeing a neurologist next week. I wish T was a low complaint for me. Not saying I want worse things...

I am currently on my 6th trial of LENS neurofeedback. The T is pretty much the same however at times I manage much better than when I first went...

Are you doing traditional Neuro feedback or LENS neuro feedback?

The first QEEG test is 799.00. Each visit thereafter is 125.00 a pop

So what about people who get rid of their T? I talked to a gentleman who suffered since the 60's and says he can't hear it anymore after he...

Thanks for Sharing! I am currently in my 4th session of Neurofeedback, and I have had some small successes. It make sense to do this therapy as...

@earsnohappy thanks for the clarification. stress could make sense, there is no wavy vision in either eye when singled out. I don't see how...

It's a light test, they put goggles over your face and look into your eyes

I would suggest staying away from this drug. It is definitely not safe, as no drug is safe that hasn't been on the market for at least 2 years....

I'm committed to believing it can get better and I can get my life back. Even though today's like today suck

Careful! I didn't mean to make it worse! Great story, a one would be wonderful. I'm musician myself. I've been pursuing a splint and...

This is great news! So you mind me asking if you are/were able to manipulate the pitch by clenching your jaw?

Not at all, I got a lot to learn. The last two days have been great! Thanks

I absolutely will! Thanks for the support! Can't wait till this yoga becomes a lifestyle.

Thanks! This is all good news

I would think a majority does, I just haven't read anyone who mentioned it while taking retigabine

I'm going to assume no one has had relief with somatic T yet, or have tried it with this particular type of symptom.

I've read most of this thread and have started back at the beginning for a second time. Is there anyone trying this drug that had somatic...

Thanks for your reply! I did stop playing after the T started, I quit my gig and an audition I could have easily won that would have paid 20,000 a...

Hey everyone, I'm a drummer and teacher. I've been playing in bands for years and teaching drum lines as well. I've been protecting my ears...

Update for me: I've had really 2 good days since my post. I relate it more to my psychological state. I don't think the T is any lower, I think...

Just to clarify worse for me: my left ear seems to have gotten a new tone during the second visit for the real drug. It's difficult to tell if it...

It was very difficult for me to come out with that post as I don't want anyone to refuse getting the injections because of my experience. I...

Doctor said my ears healed up perfectly fine.

I lost my career in drumming.I wore ear protections for years much more so than any of the other teachers I worked with or musicians I played...

I didn't vote a lot worse, just worse. More or less not as good as I was before the real drug.

I have participated in the tact-1 and 2 of phase 3. I got got three injections after 2.5 months of T, and also received the real drug (3 months...

@amandine sorry I wish you could get out of that situation. No one deserves to be treated like that

Hi, I plan on putting that information up. I can't give to many details yet because I don't want my information to get DQ from the trial. I will...

I went through 2 rounds. Not sure I got the placebo or not the first round and for sure got the drug the second round. Thank you Karen, it has...