“Tinnitus Truths”

Discussion in 'General Chat' started by Jazzer, Sep 3, 2018.

    1. ajc

      ajc Member Hall of Fame

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
      OMG @ the above. I feel very sad now. You sending her a Whatsapp message to heaven is so sweet.

      I hope there's a heaven and one day you will meet her again.
       
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    2. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Thank you @ajc.

      I adored this wonderful lady for over forty years.

      “Love Never Dies.”

      0914CAF4-ADC3-4A61-A7C8-E3ACF7D92798.jpeg
       
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    3. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      1A1735DA-43D0-4FAC-9BF0-9FA2E0BA70D6.jpeg
       
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    4. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      @Jazzer,
      Bless you writing messages to Sylvia.

      Look up a Westlife song on YouTube called - I'll See You again
      I found strength from it.

      Love,
      Glynis xxx
       
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    5. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
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    6. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Love you Dave...
      Love you brother
      Love you friend
      Love you teacher

      You got this...

      Slowly slowly... easy... breathe... You are love, Sylvia is love, all is love... breathe.

      Peace.
       
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    7. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Beautiful post buddy ❤️❤️
      Thank you xx
       
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    8. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      Dear @Jazzer, I am not here often but think of you often. I miss her also - through your stories of all Syl did for so many people. Sigh... it must be so very difficult. But you are never alone. Even way over here... you are in my heart as a friend.

      Jen
       
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    9. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Beautiful for me to read your words Jen.
      Thank you so much.
      You were one of my first buddies on here when I was being misunderstood.
      True friendship occurs with the mutual recognition of inner qualities.

      And we have just that,
      Love
      Dave
      xxx
       
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    10. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      When Sylvie recorded her marvellous hypnotherapy session with me some years ago she incorporated these words.

      She gave me permission to believe that ignoring it was not only a possibility, but was in fact the way forward.

      Sometimes we just need permission to believe something, however unlikely it seems........x

      And so it was.

      She hypnotises me into sleep every night of my life.

      69BAD6AB-EC3F-4D53-B494-135478AA1D47.jpeg
       
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    11. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      @Jazzer I love reading your messages from Sylvia.

      Do you remember the first time you met her?
       
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    12. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Beautiful photograph of you both xx
      Wish we had more time to chat and chill when met you.

      You are a lovely man and I know you can help others with the gift dealing with tinnitus Sylvia taught you xx
       
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    13. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Of course Jen.

      From age 20 I have been both a retailer and a musician.

      Forty years ago I advertised for a shop assistant.
      I had a number of staff but needed one more.

      A young lady with a lovely Canadian accent and a most charming personality phoned me to apply for the job.

      Married to a wealthy oilman, she didn’t need to work, but with her children now at school she just wanted something to do.

      She sounded so delightful over the phone that I heard myself say:
      “You’ve got the job - can you start on Monday at nine o’clock?”
      ‘But you haven’t even seen me?’
      “I don’t need to - you sound just perfect.”

      At five minutes to nine a beautiful young lady walked into my shop, walked into my life, and I met Sylvia.

      I have loved her from five minutes to nine, one Monday morning, over forty years ago.
       
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    14. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Sylvie gave me the suggestion that accommodating tinnitus and still getting on with my life was a possibility.

      When I find her messages helpful I just pass them on in the hope that they might help or encourage others to try them.

      With no cure and no treatment we need to work on our coping methods.

      My own personal view is that the condition is so complex, involving both our hearing faculty and our brain that a cure is highly unlikely.

      Either way - we cannot just hang around, mope, and just wait for it, can we?

      Best wishes everybody,
      Dave
      Jazzer
      xxx
       
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    15. Johan001

      Johan001 Member

      Tinnitus Since:
      05/2020
      Cause of Tinnitus:
      Medication
      Thanks @Jazzer, I agree. As long as I'm sincerely hoping for some kind of treatment (be it FX-322 or anything else), I'm also afraid that my vascular origin of tinnitus may not be helped by it. So, adapting to the situation, coping, is most likely my only option.

      Regarding meditation, I'm finding it extremely difficult to sit still with the raging tinnitus, so I wonder how you are doing it mentally. I'm having a loud day today when my screeching sound is very prominent and it's debilitating me badly. I tried not to mask it and face it head on, but after a few hours I couldn't take it anymore and had a nervous breakdown with bouts of crying. If only I could adapt to not let it break me down like this...
       
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    16. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Hi @Johan001 -- I've posted in several places on what helps me cope. It can all be pretty summed up in the following posts: --

      Post 1
      Post 2
      Post 3

      The last post is fairly lengthy, but it gives insight into the first two posts. I think what works for me can be especially helpful for those who struggle with making meditation work for them. -- Best...
       
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    17. Johan001

      Johan001 Member

      Tinnitus Since:
      05/2020
      Cause of Tinnitus:
      Medication
      Thank you so much @Lane, this is very helpful, especially the Hu mantra, I have tried it out and it made a clear difference.

      How do you handle your tinnitus in day-to-day life these days? I'm finding it extremely hard to stay out of the perpetual anxiety mode - today the screeching is lower, but I'm so terrified by my experience yesterday, that I'm automatically go into the panic mode. Grieving the loss of a once happy life is crushing me too, I still can't process that my life is now ruined so badly.
       
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    18. Star64
      Kick ass

      Star64 Member

      Location:
      Melbourne Australia
      Tinnitus Since:
      2001
      Cause of Tinnitus:
      Noise induced
      top-25-true-love-never-dies-quotes.jpg

      Thinking of you Dave
      xx
       
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    19. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      123358473_10158749753807888_2513488877417502799_n.jpg
       
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    20. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      @Starthrower, last week you asked me a specific question, which I answered - have you gone into hibernation?
       
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    21. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      @Jazzer, so sorry for the delay to your answering my question. I know it must have been a bit painful yet good to remember that first encounter. I love your love story. You felt it from that single phone call with her. That connection that some never experience.

      It was kinda the same with Bob. Years ago, when I was barely 21 I had a job interview with a company. I had been in the industry for a few years and reluctantly decided when that company called to go in, even though I had another job offer.

      And there he was sitting at a desk when I walked by to speak with the CEO. Our eyes met at the moment. And from that day we have been together.

      Your story really hit my heart Jazzer. I hope the pain of the loss is slowly getting better. There are no rules for grief. We need people who understand the loss.

      Many hugs and thanks for telling the story of how you first met. As you can see I get it.

      Jen
       
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    22. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Reality is all there is......x’

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    23. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      I am frequently asked how I manage to meditate given that I have severe tinnitus, occasioned by Sudden Sensorineural Hearing Loss.

      Of course, it isn’t easy.

      But I have found that it is possible.

      There is considerable power in the repeated use of the suggestion ‘Deeper.’
      Hypnotists and healers have used that word for years.

      E177369E-AEFA-495C-8CB6-76FE78FFD9A5.jpeg
       
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    24. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      A4D3039B-DB74-41BA-A902-E8D8ACFF7869.jpeg

      Kindness is all there is........x
      ‘We are all here for each other’
       
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    25. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Hey Dave, I ran across the following quote by Plato, and thought of you and Sylvie. Hope you're doing well...

      55d7cd7ab5817223be799db84c2fdaf1.jpg
       
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    26. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Love it Lane.

      I’d like to share something very personal to me.

      Some years ago I had a serious crisis, something popularly referred to as a ‘nervous breakdown.’

      I was a freelance professional jazz trombonist, and needed to keep on working to hold down my position in several jazz bands.

      Even though I felt very shaken, I needed to get up on stage every night.

      My sweetheart penned this little couplet for me to repeat before going on stage each night.

      It saw me through. x❤️x

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    27. Damien666

      Damien666 Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Unknown
      I felt a funeral in my brain
      And mourners, to and fro
      Kept treading, treading, till it seemed
      That sense was breaking through
      And when they all were seated
      A service like a drum
      Kept beating, beating, till I thought
      My mind was going numb
      And then I heard them lift a box
      And creak across my soul
      With those same boots of lead, again
      Then space began to toll
      As all the heavens were a bell
      And Being but an ear
      And I and silence some strange race
      Wrecked, solitary, here
      And then a plank in Reason broke
      And I fell down and down
      And hit a world with every plunge
      And finished knowing, then

      Emily Dickinson
       
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    28. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      To my precious Sylvie

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    29. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      It must be really hard, Dave. I can't imagine what you're going through, but she lives on through the memories you made together. In that respect, she'll never be gone.
       
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    30. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Thank you buddy.

      Dave xx
       
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