A Do-It-Yourself TRT (Tinnitus Retraining Therapy) Guide?

Discussion in 'Support' started by WesWeaver, Dec 19, 2015.

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    1. WesWeaver

      WesWeaver Member

      Location:
      Kingston, Ontario
      I'm interested in trying Tinnitus Retraining Therapy on my own with pink noise.

      How would you recommend I get started?

      My main questions relate to what pink noise to use and at what volume and frequency level?
       
    2. Atlantis

      Atlantis Member

      Tinnitus Since:
      02/2014
      • Agree Agree x 1
    3. WesWeaver

      WesWeaver Member

      Location:
      Kingston, Ontario
    4. Vincent777
      Supportive

      Vincent777 Member Benefactor

      Tinnitus Since:
      25/12/2015
      Cause of Tinnitus:
      Noise induced after a rock concert where I played
      Greetings, has anybody tried this and does it work?
       
    5. PaulBe

      PaulBe Member Benefactor

      Location:
      Cairns
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Probably sound, though never proven
      The Chat Hyperacusis forum would probably be more helpful to you at this time. This sort of thing is their forte.
       
      • Like Like x 1
    6. Vincent777
      Supportive

      Vincent777 Member Benefactor

      Tinnitus Since:
      25/12/2015
      Cause of Tinnitus:
      Noise induced after a rock concert where I played
      Thank you PaulBe.
       
    7. Rezident_Zinger

      Rezident_Zinger Member

      Tinnitus Since:
      2001
      Cause of Tinnitus:
      I fell asleep with my headphones.
      Hi, guys...

      I am a new member to this forum. I have not read anyone else's posts. However, I have been on other forums in the past. Please don't be insulted that I am making a post without being involved in the community.

      I have just recently realized that TRT might be nonsense. It is absurd to have to pay close to $5,000 for devices to be made, and counseling services. The devices make noise. The noise could easily be recorded, and uploaded to iTunes.

      1. Does anyone know what kind of noise is necessary for TRT? Is it "white noise", "blue noise", etc?

      I have custom made ear plugs that I have inserted my earbuds into, and I use the with "violet noise".

      2. I experience sensations that feel like static, in different areas of my body, but they are random, and not significant. They are more powerful with the loudness of the noise. I have also experienced them with music, in general. Does anyone know what this might be?

      3. I used to tell my doctors about my muscles twitching, randomly, and that I correlated it with music. No one had an answer for me. Does anyone have any clue?

      I have been able to deal with T/H since 2001. Now, I have decided to treat myself, after doctors telling to "forget about it", telling me that normal sounds should not affect me, and yet, I get symptoms such as coolness on my scalp. The lack of empathy that professionals have, and the passivity with which those who are supposed to be helping is evil.

      I have made tremndous improvements with living with T/H, but I know that if I could overcome both, my life would be, greatly, improved. I go to the gym everyday, I teach photography, and I perform comedy. I will buy the TRT manual, and begin my therapy. Thanks.
       
    8. Engineer
      Creative

      Engineer Member

      Tinnitus Since:
      1/20/15
      Cause of Tinnitus:
      Most likely acoustic hearing loss
      Have you read the Jastreboff-Hazel book (you mentioned you were going to review the TRT manual), or:

      https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=5&ved=0ahUKEwiGvaK2vsnNAhWEVh4KHSOrCogQFgg9MAQ&url=http://studentacademyofaudiology.com/sites/default/files/journal/JAAA_11_03_05.pdf&usg=AFQjCNFA_m__blZ9YNZJFJnIpRrE6RIYXQ&cad=rja

      TRT makes no claims to patented noise by any means, and the devices worn are known as 'white noise generators'. The main benefits are that they can be worn constantly, don't block the ear canal, can be adjusted for each ear in volume, and the wearer can forget they are wearing them (this is the goal). They can be purchased as cheaply as $900 US if one shops around. Again, the sound is not so special (white noise in general), but the package and means of delivery is. One of the main complaints you will find on this forum is that ENTs and other mainstream medical professionals routinely dismiss T patients with little explanation or care for their overall well being. TRT counseling is exactly the opposite of this. My TRT pro has T, is an expert audiologist, has treated many people with T and H, and was fantastic. TRT is not a cure for T, but helps people to habituate, who otherwise would find it difficult or maybe impossible to accomplish.

      Best wishes, you will find many supportive voices on this forum, Trebor
       
    9. Rezident_Zinger

      Rezident_Zinger Member

      Tinnitus Since:
      2001
      Cause of Tinnitus:
      I fell asleep with my headphones.
      Thanks for the info, Engineer, but I have always wanted to see what the devices look like, but have not been able to locate an image. Do you have one?

      I have been listening to white noise, recently, bu even at the lowest level, it seems to bother me. I can listen to loud music, and be better.

      I switched to pino noise, because it seemed softer, but still I experience sensations throughout my body, which go away with avoidance of sound...so I am not too worried, but it seems that TRT might not be for me if this is the case, but I will still continue to entertain my options.

      Thanks.
       
    10. Rezident_Zinger

      Rezident_Zinger Member

      Tinnitus Since:
      2001
      Cause of Tinnitus:
      I fell asleep with my headphones.
    11. Engineer
      Creative

      Engineer Member

      Tinnitus Since:
      1/20/15
      Cause of Tinnitus:
      Most likely acoustic hearing loss
      The book is good. Its important to 'have the faith' when you are doing TRT. The book helps as it lays out a rational hypothesis to explain why the two components of TRT might work. (counseling + WNG usage)

      Here's some good WNG's. I own some over the ear pure tone devices. They are reasonably priced compared to buying them from an ENT or other. They ship from the UK anywhere in the world.

      http://www.puretone.net/pt_tinnitus.html

      I've heard other folks say they don't like the white noise. I get it. For me, it was fine and immediately distracted me from my T. I think the important thing is to have background noise that distracts you, at a lower level than your T. As you progress, lower the volume of that noise. Eventually, you are left with your T only, but you are fully habituated, and don't need the background noise. I'm at this point after about 17 months. Its slow, and there are plenty of 2-3 week setbacks that challenge your confidence. Its a rocky road. Be prepared for the setbacks. Don't let them sap your confidence. The purpose of the background noise is to lower the relative strength of the T signal, lower your anxiety, and give you a pathway towards habituating the T signal that would otherwise not have existed at full T volume without background noise. The TRT counseling is extremely helpful to building the patients faith that the process will work, and weathering the setbacks. Its part education, part coaching, part audiologist ... but an important element for most people that otherwise would not habituate on their own accord.

      Best wishes! Trebor
       

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