- Oct 21, 2018
- 999
- Tinnitus Since
- 1997
- Cause of Tinnitus
- Ear infection
182,000 posts in the Support category. 4,000 posts in the Awareness & Fundraising category and I'm told people don't want to give towards tinnitus research.
Incredible dysfunctional thinking.
Thanks for the welcome.Hello @Allan1967
Welcome to Tinnitus Talk. Most, if not all, of us here are believers in the need for tinnitus research and many of us act on it. Hope you get to meet more of the members here. You'll find quite a diversity which makes for some lively discussion.
The Directors here are very interested in research and work in cooperation with BTA.
Check out the Tinnitus Hub website https://www.tinnitushub.com/.
TC
American Tinnitus Association. British Tinnitus Association.I just don't know who to donate to.
I don't disagree with you. Here on Tinnitus Talk, I have a sense that momentum is gathering.More needs to be done. I've read all these posts 20 years ago but written by others. Only way forward is if we use social media to bring us together and have a moment's clarity where we realise that by ALL OF US giving a little at our end... At the other end it will amount to a lot and that can hopefully bring a cure closer to us.
No more research on 'How this bothers me' or sending leaflets to GPs telling them not to be such dicks when a patient comes in... money towards research for a cure.
I'm on the north side of 60, so I don't think I should put all my eggs in one basket. What if it turns out that hearing is only partially restored and tinnitus remains in my brain? I really rather a cure than CBT or TRT.There's no one to donate to. Frequency Therapeutics isn't taking donations and they are probably about to cure most tinnitus cases. A better thing to do is promote awareness of this company and their drug.
Hearing loss from noise damage is most of tinnitus. Fixing that should fix tinnitus. There are 16 human beings on this planet right now that have the drug in their ear and we will know soon enough.
This whole thing that tinnitus is in the brain is ridiculous. Of course it is in the brain, because you have bio mapping of what you used to be able to hear. When the signal is removed, your brain is looking for the signal. If you can restore the signal the tinnitus will more than likely disappear.I'm on the north side of 60, so I don't think I should put all my eggs in one basket. What if it turns out that hearing is only partially restored and tinnitus remains in my brain? I really rather a cure than CBT or TRT.
But, the brain reorganized itself when the signal was lost. The loss left a gap in the tonotopic map in the auditory cortex and other neurons filled in the gap. How will it get un-filled?This whole thing that tinnitus is in the brain is ridiculous. Of course it is in the brain, because you have bio mapping of what you used to be able to hear. When the signal is removed, your brain is looking for the signal. If you can restore the signal the tinnitus will more than likely disappear.
I am not going to donate my entire net worth, and a $10, $100, or even $1,000 donation is not going to make any difference.people don't want to give towards tinnitus research.
I was hoping you would respond to thisI am not going to donate my entire net worth, and a $10, $100, or even $1,000 donation is not going to make any difference.
It's easy to have dysfunctional thinking with tinnitus lol182,000 posts in the Support category. 4,000 posts in the Awareness & Fundraising category and I'm told people don't want to give towards tinnitus research.
Incredible dysfunctional thinking.
Even those that aren't as bothered by it need to start contributing.Those that have tinnitus and are bothered enough to want a cure, and have the financial means, really need to start contributing to their own cause.
I totally agree. However, my dad has what I deem severe tinnitus, and he is not bothered in the slightest. Not sure how I'd motivate him to start contributing.... lol. I'm sure he would if I asked though.Even those that aren't as bothered by it need to start contributing.
Hint: I'm talking about big celebrities with tinnitus. They have MORE than enough money to donate. Just because they're celebrities doesn't mean they can't contribute.
(William Shatner doesn't count lol. He's the ATA's lackey.)
But I'm not holding my breath for these people to contribute.
I'll watch that TED video and I'll donate.Well, if everyone donated $10 or $100... who knows what is possible. Unfortunately, they just don't which is part of the reason why we are where we are today.
Several tinnitus projects "on the go" - that you might consider donating to -
Other organisations I consider to be worthwhile -
- Danny's Fund - scholarship that is currently accepting applications
- Prof. Rauschecker - currently trying to raise $50,000 USD for his research - there is a thread about this in the "Awareness & Fundraising" section
- Prof. Tzounopoulos - currently accepting donations towards his research - thanos@pitt.edu
- Tinnitus Talk - to assist with costs of running this forum that is so valuable to so many
- Hearing Health Foundation
- Tinnitus Research Initiative
It is my personal view that aside from the lack of awareness of the suffering tinnitus causes, the lack of financial support towards tinnitus charities and research initiatives is a large reason why we have no progress past masking, CBT and mindfulness.
We have a unique opportunity here as a group (and we did have with Danny's fund) to come together, raise as much as we can and choose together a worthwhile cause to donate to. I don't think we even raised 5,000 pounds.
There in lies the problem. Those that have tinnitus and are bothered enough to want a cure, and have the financial means, really need to start contributing to their own cause.
@Bill Bauer, @coffee_girl, @Zeneth
But, the brain reorganized itself when the signal was lost. The loss left a gap in the tonotopic map in the auditory cortex and other neurons filled in the gap. How will it get un-filled?
Plus, the connection between the cochlea and the auditory cortex involves 3 or 4 neurons arranged sequentially or end to end. Those connections would have to be reestablished. I can't imagine all that will happen after just replacing a few hair cells.
Does Frequency Therapeutics say anything about that?
However, my dad has what I deem severe tinnitus, and he is not bothered in the slightest.
This is true and whenever opportunity presents itself, take it. To effect change requires strong beliefs and persistence.Thank you all. Not only do you need to donate but now you all need to spread this. We need a shift in thinking.
The apathy you describe is utter insanity.Nothing ventured nothing gained, as they say. Unfortunately, tinnitus sufferers very rarely make the leap and donate to a tinnitus cause, and this is a big problem. We need scientific research to make the breakthroughs we all want to see, but this isn't going to happen spontaneously. Researchers need to be backed if we want a better chance of seeing great things happening.
As an example, you could safely say the majority of the community would love to see an effective treatment or cure, but on Danny's campaign the percentage of people who donated was 0.2%. We easily generated over 60,000 unique views and out of those people around 150 donated. This suggests that people just aren't prepared to back anything that increases our chances of something good happening. I hear it a lot when people say, "my donation won't change anything", but doing nothing will make that a certainty. At this point I refer you back to my opening sentence.
In the 90's, AIDS was a death sentence, but scientific research has changed this completely. The difference here is that they had loads of donors and campaigners and look what they achieved. If we all continue to think like Bill Bauer than nothing will ever change.