Anyone with Facial/Trigeminal Nerve Pain and/or TTTS Tried Carbamazepine?

Discussion in 'Support' started by Rojo, Feb 13, 2019.

    1. Rojo

      Rojo Member

      Tinnitus Since:
      October 2018
      Cause of Tinnitus:
      Neomycin/Xiflaxin
      I'm basically being forced to try psych meds for my "anxiety" so I'm trying to figure out what meds might actually help me, most antidepressants have gone poorly (citolopram, paxil, amitriptyline, remeron) the only one maybe left to try is nortriptyline. Taking suggestions there.

      For nerve pain/anti-convulsant/possible bi-polar I was considering trying carbamazepine since I get the facial neuralgia pain with sound and have tensor tympani syndrome along with throat spasms that give me a machine-gun tinnitus.

      Anyone got any experience? I see it suggested often but few people talking about it working for them...
       
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    2. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      Daily reminder that the word "hyperacusis" is not a specific medical diagnose but rather a vague term to describe several unclassified poorly understood conditions, defined as both noise induced pain and amplified loudness perception.There may even be two types of hyperacusis that cause pain.

      It also is evident that the trigeminal nerve plays a role in one form of "hyperacusis" and a lot of people falsely assume they develop TMD immediately after a acoustic trauma event or a tooth ache.

      I wonder how Jastreboff would address this hyperacusis with TRT, would someone with loudness hyperacusis be treated the same way?
       
    3. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      Microvascular decompression.

      Symptoms of facial, trigeminal or glossopharyngeal neuralgia (somatic sensory), hemifacial spasm, throat spasms (somatic motor), tensor tympani, tinnitus (special sensory) and some cases of essential hypertension and anxiety are caused by these vessels compressing cranial nerves V, IX–X, VII, VIII, and left X and medulla oblongata. Using microsurgical techniques, the symptoms may be relieved by vascular decompression. Quite successful.
      Use of B complex daily may bring some relief. Carbamazepine has some drawbacks and limitations for a fair amount depending on study. Study this drug before use.

      Taking a warm shower if you can tolerate the sound after you get up may help.
       
      Last edited: Feb 13, 2019
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    4. Gman

      Gman Member Benefactor

      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Ototoxic earwax drops
      Could that be why my trigeminal nerve low hum is sometimes pulsatile, other times constant and sometimes silent? If I rub anywhere on my eye/face/around ear that corresponds with it, I get a momentary louder hum and then a decrease for a while.
       
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    5. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      Yes. The facial nerve sensory complex connection to ear muscles and cranial nerves.

      Besides the above, the sternocleidomastoid, sinus, thyroid, trigeminal nerve, cranial nerves, occipital complex, C1 C2 leverage pressure and muscle pressure of a straighten neck have rights to visit anywhere above the shoulders.

      I added taking a warm shower after getting up may help if one can tolerate the sound.
       
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    6. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      It is my own personal hypothesis that noise induced trauma alone can lead to trigeminal neuralgia type symptoms.

      Any thoughts on this?
       
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    7. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      I think that's true. There a couple of studies that ready get into this. One study says that the neck must be hyperextended along with noise inducement and often caused while receiving dental treatment. They discuss the vertebral artery getting a temporary blockage of a second or two. It get's a little complex as nerves enter the brain react.
       
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    8. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      Would that mean that at least one type of noise induced pain is trigeminal neuralgia, should a subgroup of hyperacusis sufferers question to get that diagnoses?
       
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    9. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
    10. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      I had suggested to someone who was told that they have perfect hearing with severe somatic neck and jaw tinnitus for 3 years to try magnesium to see if they get a little relief. This person did and now tinnitus is completely gone, but TMJ is still a problem. I don't understand how unless the occipital nerve at the atlas was applying pressure to muscles or muscle pressure to other major nerves or cranial nerves. Magnesium can lessen stressed and tight muscles.
       
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    11. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      I take magnesium A LOT, and it did not stop my trigeminal nerve issues.
       
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    12. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      It didn't help me either. Maybe just a little when I first started taking it.
       
    13. Gman

      Gman Member Benefactor

      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Ototoxic earwax drops
      Nice one Greg. Badly written site, but I can identify with a lot of this, but not the ear hotness or face numbness.

      Same.

      https://www.biogetica.com/how-to-cure-trigeminal-neuralgia-with-natural-treatment
      This has got to be a scam.
       
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    14. Johan_L

      Johan_L Member

      Location:
      Sweden
      Tinnitus Since:
      05/2015
      Cause of Tinnitus:
      Noise induced
      How would a doctor diagnose where to perform vascular decompression? I have these symptoms flare up from my latest noise exposure.

      I agree. This is the "science" behind. https://www.sciencedirect.com/science/article/pii/S1475491607000161?via=ihub

      However.. if there is a 2% chance it works, I might try it. Hate being desperate...
       
    15. Gman

      Gman Member Benefactor

      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Ototoxic earwax drops
      But what are the active ingredients?

      If you try it, please let us know how you go.
       
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    16. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      MRI.
      Many forms of neuralgia exist for possibilities with tinnitus. In your situation it may be targeted on physical condition(s) such as I mentioned in post #3 and #9 above. The ears are basically responding (hyperacusis, TTTS) to the physical condition.

      https://www.researchgate.net/publication/42372446_Microvascular_Decompression_for_Tinnitus
      https://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-13-42

      In another thread today you ask myself and another to reply. Said from a medical provider - Botox provides a longer effect than a nerve block. This bring volumes of study information as to risk versus reward. There's hundred of single condition studies on Botox with consideration to effect and safely. With some condition(s) (areas) Botox can travel to unwanted desired places. From my studies, nerve blocks on most areas of condition is preferred. One red flag is always the views of a medical provider that performs certain procedures only, as that's their bread and butter.

      A link(s) for those with associated PT and other topic defined processing.
      https://www.hormonesmatter.com/pulsatile-tinnitus-whooshing/
       
    17. Marko Nakovski
      Bored

      Marko Nakovski Member Benefactor

      Location:
      North Macedonia
      Tinnitus Since:
      27.04.2017
      Cause of Tinnitus:
      Loud music
      @Contrast

      "It is my own personal hypothesis that noise induced trauma alone can lead to trigeminal neuralgia type symptoms.

      Any thoughts on this?"


      For example when the pain first appears in the ear, then continues to spread in other parts of the head because of it?
       

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