Im in the same situation as this guy is and it's hard to explain to people, everyone just kind of looks at me like I've lost my mind, doctors included. Ive even been talked down to here at TT, told that I'm spreading fear etc. it's a hard thing to talk about, let alone live with. No one really believes you so you feel even more isolated.
Or you get the crowd that thinks that you just need to tough it out, follow some safety guidelines, be reasonable and just do it, they don't understand the amount of pain and suffering that goes into going out for just a couple of hours, even to a fairly quiet spot. The ear pain gets so bad that I end up spending a ton of time in bed. I spent over a year in bed (20 hours) a day, eventually you say screw it and get out more and more, and then you are so set back and in more pain, your T keeps getting worse along with the ear pain but you don't care at times, you get out around people because you are so lonely that you want to die, but only to suffer further consequences. It's like you pay a price for anything you want to do, even things like getting up and cooking yourself a meal. It's absolute hell on earth. If I want out of isolation or even bed, I get beat down hard for it every time, I might as well be taking kicks to the head anytime there is a small noise.