British Tinnitus Assosciation Fundraiser (James Ivor Jones)

[Greg Clarke]

This was a reasonably high profile case in Wales recently. James Ivor Jones had a severe case of Tinnitus/Hypercausis and took his own life. His son has set up a page to raise funds to go toward Tinnitus research in the UK. Very sad case, if anyone is feeling generous, here's the link to the page

https://www.justgiving.com/Danny-It...taliano&utm_campaign=pfp-share&fb_ref=Default

I've no link/ association with any of the parties involved, just thought it deserved a mention and hopefully they can reach their target.

 

[Danny Boy]

This was a reasonably high profile case in Wales recently. James Ivor Jones had a severe case of Tinnitus/Hypercausis and took his own life. His son has set up a page to raise funds to go toward Tinnitus research in the UK. Very sad case, if anyone is feeling generous, here's the link to the page

https://www.justgiving.com/Danny-It...taliano&utm_campaign=pfp-share&fb_ref=Default

I've no link/ association with any of the parties involved, just thought it deserved a mention and hopefully they can reach their target.

If only he came on here. We could've saved him. I feel saddened that I couldn't have helped.

 

[preslys]

If only he came on here. We could've saved him. I feel saddened that I couldn't have helped.

He must try trobalt I am sure he will find some relief

 

[Danny Boy]

He must try trobalt I am sure he will find some relief

Sadly he has passed away. Killed himself because of tinnitus+hyperacusis. Really awful combination.

 

[preslys]

Sadly he has passed away. Killed himself because of tinnitus+hyperacusis. Really awful combination.

sorry I thought that he is alive
hope that god receive him in his vast paradis

 

[Danny Boy]

sorry I thought that he is alive
hope that god receive him in his vast paradis

RIP. Nobody deserves to suffer like we do.

 

[preslys]

@Danny Boy
it's very hard to live with tinnitus and hyperacousis
I spend all my time listening to music. but for some one who has hyperacousis he can not mask his tinnitus

 

[Danny Boy]

@Danny Boy
it's very hard to live with tinnitus and hyperacousis
I spend all my time listening to music. but for some one who has hyperacousis he can not mask his tinnitus

Well, he had really bad hyperacusis...Just rustling of plastic bags would be too much. That's horrible.

 

[Richard zurowski]

It's a sad case that some people do take there lives. As you stated Danny maybe if he had found this forum it might have been a different outcome.

 

[Greg Clarke]

Thankfully cases like his are rare. But it does go to show that information is lacking and so is empathy and understanding from the medical community. I understand this mans desperation.

It could've been any of us. I'm thankfully doing a lot better these days and this community is partly the reason for it.

 

[Danny Boy]

Thankfully cases like his are rare. But it does go to show that information is lacking and so is empathy and understanding from the medical community. I understand this mans desperation.

It could've been any of us. I'm thankfully doing a lot better these days and this community is partly the reason for it.

Same here.

 

[valeri]

Problem with this initiative is that money is going to BTA which we all know will NEVER EVER do anything to find a cure.
Tragic loss of another life