Could It Be Cochlear Hydrops, Ménière's?

Discussion in 'Support' started by Dominic1955, Nov 13, 2016.

    1. Dominic1955
      Artistic

      Dominic1955 Member Benefactor

      Location:
      Waverly, Pennsylvania
      Tinnitus Since:
      4/2/2016
      Cause of Tinnitus:
      Idiopathic hearing loss
      I need support, 7 months ago I developed SSHL in my left ear, this was accompanied by loud T and aural fullness and slight dizziness no vertigo this my hearing test , I received intratympanic and steroids orally for 3 weeks I am having occasional improvements in low tone hearing lasting one or two days with less T and fullness this a typical audiogram when I am better
      Any ideas?
       

      Attached Files:

    2. Jkph75

      Jkph75 Member

      Tinnitus Since:
      2/27/16
      Cause of Tinnitus:
      Unknown
      I think once your ear is injured anything can happen. Your audiogram doesn't look like a typical Hydrops one in that your high frequencies are really low. Did you say that you were a Dr? If so, you must know other drs to ask. I don't think half of us would be on here if we could get a Dr to be interested in helping us.
       
    3. Dominic1955
      Artistic

      Dominic1955 Member Benefactor

      Location:
      Waverly, Pennsylvania
      Tinnitus Since:
      4/2/2016
      Cause of Tinnitus:
      Idiopathic hearing loss
      @Jkph75, I am an internist and see very little ENT
      I was hoping to get some input from people in this forum who had similar symptoms and now have somewhat recovered.
      My otoneurologist told me it could be cochlear hydrops and it can progress to Ménière's but he is not sure
      Physicians seem to have no answers when it come to disease like we have T
      I am not sure what to expect from the rest of my life but it would be nice to know
      I have seen people with labyrinthitis go deaf and then after 6 month or year get stable with complete hearing loss and habituate to their T
      But with Ménière's it's seems impossible since it fluctuates so much
       
    4. DebInAustralia

      DebInAustralia Member Benefactor Team Research

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      Glynis has m...perhaps ask her

      Ian mac has hydrops ... ask him?
       
    5. Mario martz
      Creative

      Mario martz Member

      Tinnitus Since:
      02/2016
      You audiogram doesnt reflect meniers or cochlear hydrops,
      "Typically, the audiogram of someone with Ménière’s Disease slopes from right to left. Thus, the person with this audiogram will be able to hear high-pitched sounds better than low-pitched sounds in the left ear. The right ear hears perfectly"
       
    6. tinnitube
      Supportive

      tinnitube Member

      Location:
      Viña del Mar (CHILE)
      Tinnitus Since:
      08/2015
      Cause of Tinnitus:
      damn virus
      ... hello Im an MD also , ask for ECOG test , will measure the impedance of the cochlea , from outside . Its shows the pressure inside , so if its more than certain number , dont remember , like 30% ? and has a certain pulse , means hydrops ..

      any way , I meet a patient who recently had sshl , they did an angiography and discover a thrombus in the inner ear circulation , gave her steroids and anticoagulants , she got T also .
       
    7. Dominic1955
      Artistic

      Dominic1955 Member Benefactor

      Location:
      Waverly, Pennsylvania
      Tinnitus Since:
      4/2/2016
      Cause of Tinnitus:
      Idiopathic hearing loss
      IMG_1329.PNG IMG_1330.PNG @DebInAustralia, thank you I am looking at their posts
      @Mario martz , I am hoping that you are correct!

      @tinnitube , I am surprised that the patient had angiogram for T, when I developed SSHL I was told I probably had a ischemic event. Now I am getting fluctuations in hearing and when it drops I get fullness with increasing T. This I my latest audiogram from this am and I feel relatively well.
      The second hearing test is from yesterday when I was ill
      Any ideas? Could it be that the changes indicate improvements of my SSHL or does it indicate Ménière's?
      Dom
       
    8. tinnitube
      Supportive

      tinnitube Member

      Location:
      Viña del Mar (CHILE)
      Tinnitus Since:
      08/2015
      Cause of Tinnitus:
      damn virus
      .... meniere its called when you have vertigo, if not its calledhydrops, itt might look like hydrops or the early stage of meniere, the inner ear is very slow to show things, an ecog will show you inner ear pressure, a good idea is start betahistine minimum 48mg day, what does your otoneurologist think? ive seen this on patientsin general from 50 years old and above. let me know anything
       
    9. tinnitube
      Supportive

      tinnitube Member

      Location:
      Viña del Mar (CHILE)
      Tinnitus Since:
      08/2015
      Cause of Tinnitus:
      damn virus
      also look at your lipids also ive seen it correlates with strong history of allergies. keep allergies away if in doubt make an IgE total to rule out allergies
       
    10. Dominic1955
      Artistic

      Dominic1955 Member Benefactor

      Location:
      Waverly, Pennsylvania
      Tinnitus Since:
      4/2/2016
      Cause of Tinnitus:
      Idiopathic hearing loss
      My otoneurologist at Johns Hopkins university has really not giving me much input, I have few patients with Ménière's and their major problem is vertigo
      I just note fluctuating hearing really started to fluctuate about 6 weeks after my SSHL, could it be that there is healing occurring?
       
    11. tinnitube
      Supportive

      tinnitube Member

      Location:
      Viña del Mar (CHILE)
      Tinnitus Since:
      08/2015
      Cause of Tinnitus:
      damn virus
      it is my understanding that fluctuation on hearing represents fluctuations on inner ear pressure like some problem in reabsortion. so coming from almost deaff to fluctuations represents reabsortion is working, but this is so slow process itS difficult to get a clear diagnosis. betahistine will increasE reabsortion iN general is used here in chile by otoneurologist but is long-term
       
    12. Dominic1955
      Artistic

      Dominic1955 Member Benefactor

      Location:
      Waverly, Pennsylvania
      Tinnitus Since:
      4/2/2016
      Cause of Tinnitus:
      Idiopathic hearing loss
      Betahistine is not approved in USA
      Usually we prescribe diuretics but data does not show significant results
      I am on a strict low salt diet
      Thank u for your input @tinnitube !
      He also suggested that I may ischemia causing recurring fluctuations in hearing
       
    13. tinnitube
      Supportive

      tinnitube Member

      Location:
      Viña del Mar (CHILE)
      Tinnitus Since:
      08/2015
      Cause of Tinnitus:
      damn virus
      Dom , ive found this video very informative about inner ear problems , please have a look at it

       
    14. tinnitube
      Supportive

      tinnitube Member

      Location:
      Viña del Mar (CHILE)
      Tinnitus Since:
      08/2015
      Cause of Tinnitus:
      damn virus
    15. Dominic1955
      Artistic

      Dominic1955 Member Benefactor

      Location:
      Waverly, Pennsylvania
      Tinnitus Since:
      4/2/2016
      Cause of Tinnitus:
      Idiopathic hearing loss
      Yes I did see the video and the viral study
      Thank u
       
    16. Mario martz
      Creative

      Mario martz Member

      Tinnitus Since:
      02/2016
      This is very interesting... but, then it wouldnt explaing why antivirals help people....
       
    17. Dominic1955
      Artistic

      Dominic1955 Member Benefactor

      Location:
      Waverly, Pennsylvania
      Tinnitus Since:
      4/2/2016
      Cause of Tinnitus:
      Idiopathic hearing loss
    18. Jchapman78

      Jchapman78 Member

      Tinnitus Since:
      07/2015
      Cause of Tinnitus:
      Unknown
      My dad was able to get Betahistine from his dr (in colorado) - the catch is that you have to have it filled at a compounding pharmacy and pay cash. I believe it was about $75 for a 30 day supply (16mg 3x day).
       
      • Like Like x 1
    19. glynis
      Feminine

      glynis Member Benefactor Hall of Fame Ambassador Team Awareness

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      @Dominic 1955,
      Betahistine,Proclorperazine , Buccastem or Cinnarazine can help and low salt diet and diuretics are the first port of call for inner ear problems then injections in to the ear,sac decompression and so on....lots of love glynis
       
    20. valeri

      valeri Member Benefactor

      Location:
      Australia
      Tinnitus Since:
      09/2011
      My low frequency drone started during a cold so I always wonder if there's some correlation between everything mentioned previously.
       
    21. glynis
      Feminine

      glynis Member Benefactor Hall of Fame Ambassador Team Awareness

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Hi @valeri ,
      I have a drone sound in left ear and high pitch ringing on top in both ears and a nasty cold too....lots of rest and sleep for me this weekend.
      Missed out on a night out with friends as felt to rough.....lots of love glynis
       
    22. KeyLime
      No Mood

      KeyLime Member

      Location:
      Michigan, US
      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Cold
      @Dominic1955 Any update? I have the exact same problem...when my ear feels full, my hearing drops, when the fullness dissipates, the hearing comes back. I follow up with my ENT next week, but he didn't seem to know too much about hydrops...just said if I didn't have vertigo, it wasn't an inner ear issue.
       
    23. Coyotesheaven
      Depressed

      Coyotesheaven Member

      Location:
      Utah
      Tinnitus Since:
      02/18/2015
      Cause of Tinnitus:
      Acoustic Trauma/Vascular
      I have about the same configuration to your before audiogram, but not quite the degree of loss from what we know. I have some noise and illness-related high frequency notches, and a dip in both ears starting at 500 hz and below coming most likely from circulation problems.

      While your audiograms do not look like classical Meniere's, it says nothing on the contrary because Menieres and hydrops have so many presentations, even on audiograms. Low frequency loss is generally a red flag for M or EH, and you have some of that; but in atypical M can produce high frequency losses on top of that. You also have vertigo which is a clue to something, but it could just reflect asymmetry in cochlear/vestibular health and function between the ears.

      Meniere's can manifest as many problems; vascular, allergy (autoimmune), and reissener membrane rupture from high endolymphatic pressure. You should investigate all of these avenues if they have not already suggested some explanation for the sudden loss.

      The other thing that seems really odd is that your hearing seems...symmetrical if it were not for the flat loss in the bad ear. That is really weird for Meniere's...did they rule out all conductive causes (including obscure inner ear conditions and bony fistulae?).
       
    24. Dominic1955
      Artistic

      Dominic1955 Member Benefactor

      Location:
      Waverly, Pennsylvania
      Tinnitus Since:
      4/2/2016
      Cause of Tinnitus:
      Idiopathic hearing loss
      @KeyLime, around December 8 my hearing improved and lasted several weeks and my T was less intrusive, I was hoping that I was on my way to get better. Suddenly for no reason On February 2 be my symptoms came back! Marked decrease in hearing and very loud T ? So far no hypercusis or dizziness. I have no idea why this is happening
      It's very frustrating! It's 10 months since my sudden hearing loss.
      Good luck to you
       
    25. Dominic1955
      Artistic

      Dominic1955 Member Benefactor

      Location:
      Waverly, Pennsylvania
      Tinnitus Since:
      4/2/2016
      Cause of Tinnitus:
      Idiopathic hearing loss
      Any change with you ? Any better?
       

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