Do You Get Silent Days?

Discussion in 'Support' started by RaZaH, Nov 25, 2014.

tinnitus forum
    1. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Just wondering , been almost 3 years now and today is my first 98% silent day ?
      Yesterday I hadnt slept for 24 hours , blinding headache and screaming T.
      Today I got a lot of sleep and took almost 4 hours between asleep and awake with complete silence, it was heaven ! Then I woke up properly and I have 98% silence.
      Never , ever happened before ?

      I do not look forward to waking up tomorrow with my regular screaming T.
      Mornings have always been the worst for me, friggin sucks to start your day like that .
      I am sure that if my mornings would not be so bad my attitude towards T would be much better.

      Anyways , having a great day :)
       
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    2. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Let me rephrase that , I am having the best day ever !
       
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    3. Emil Mikalsen
      Curious

      Emil Mikalsen Member

      Location:
      Norway
      Tinnitus Since:
      10.2013 - concert
      That's great to hear, maybe they will keep coming in the future! :)
       
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    4. Telis

      Telis Member Hall of Fame

      Location:
      Calgary
      Tinnitus Since:
      11/2013
      Wow...sounds like you could loose it permantly one day!

      Lucky you weren't on retigabine yet. It would be mistaken for giving you massive improvement and everyone on the retigabine thread would be singing praises to the retigabine heavens and saying how it has to be the drug.....there is no mistaking it.
       
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    5. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      Just to know a day like that, even one day, is possible lifts my heart.
      Thanks for posting, @RaZaH. I am thinking there are more days like this in your future.
       
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    6. Larry OT
      No Mood

      Larry OT Member Benefactor

      Location:
      NJ
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      Volume, meds and motorcycles
      Glad it's a good day !
      Sleep patterns always affect my T,
      Like clockwork so to speak.
      Depends on the depth of sleep and hours and T's decision in cycle.

      So happy for your day. I hope there's more!
       
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    7. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      I have had relatively ok days before and always start imagining that "Now it's getting better!" and I am always disappointed. In this case I do not want to get ahead of myself here so I am just enjoying the day.

      :)
       
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    8. Telis

      Telis Member Hall of Fame

      Location:
      Calgary
      Tinnitus Since:
      11/2013
      Yeah enjoy it. I have never had a low day before. If I could just get one a month...man this would go a long way.
       
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    9. Christian78
      Alone

      Christian78 Member

      Location:
      Gothenburg
      Tinnitus Since:
      (Sep 2013)
      Cause of Tinnitus:
      progressive tinnitus, time of expiring in next 3-6 months
      I had once a silent evening. after it i got 300% strongest t, and now i use retigabine, I may say i get silent day almost every day.
       
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    10. Kopesy
      Balanced

      Kopesy Member Benefactor

      Location:
      England, United Kingdom
      Tinnitus Since:
      19/09/2013
      Cause of Tinnitus:
      Acoustic Trauma'?' (Unknown)
      Great news man! o/ I've also had a few 'silent days', longest was for about 8 days straight! It's odd how you mentioned it was really bad the day/night before as this has always been the case for my 'silent days' too..
      It's really possitive stuff though, I've heard that the more changes in your T the better chances of it getting better.
      Hope it stays silent for as long as possible, even better, forever! Keep us posted but don't spend too much time on here, enjoy the silence my friend :D
       
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    11. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      I'm not here ! :p
       
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    12. gary
      Transparent

      gary Member Benefactor

      Location:
      Macomb, MI. USA
      Tinnitus Since:
      07/2012
      Cause of Tinnitus:
      Who Knows
      RaZaH, that has happened to me also, about a year ago. Same as you about 98% silence. Goes to prove there is no reason why they all can't be like that. I did nothing different that morning. I still have my good and bad days, but nothing like the 98%er.....
       
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    13. erik
      Breezy

      erik Manager Staff Benefactor

      Location:
      Washington State, USA
      Tinnitus Since:
      04/15/2012
      Cause of Tinnitus:
      Most likely hearing loss
      No totally silent days for me. Some almost silent...yes, occasionally. Whether loud or quiet, go about your normal business and you will see in the end it doesn't matter that much. Sure I would like it to be totally gone but for some people and after some time, that may not be an option any more until a treatment is discovered. Until then all you can do is carry on...
       
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    14. Larry OT
      No Mood

      Larry OT Member Benefactor

      Location:
      NJ
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      Volume, meds and motorcycles
      I would love to have my brain chemistry checked out to find out why my T cycles from silence to catastrophic over a 4 day period. There must be something to the relationship from sleep chemicals that affect T.

      Has a research been done that can measure or detect brain chemistry with tinnitus sufferers? They know what goes on with various brain chemistry during sleep. How'd they get there? Isn't there some corolation?
       
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    15. Telis

      Telis Member Hall of Fame

      Location:
      Calgary
      Tinnitus Since:
      11/2013
      I would take those low days as a great sign Larry. Somehow your brain is managing to suppress it at times, this should give you a lot of hope.
       
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    16. Kelli
      Question it

      Kelli Member

      Tinnitus Since:
      07/2010
      Cause of Tinnitus:
      viral infection
      Silent day? What is this? Lol :wacky:
       
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    17. Larry OT
      No Mood

      Larry OT Member Benefactor

      Location:
      NJ
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      Volume, meds and motorcycles
      @Telis

      Thanks Telis, it's kind of a mixed blessing in that the return is always insanely loud.
      Hey, it's great having quiet days, but Its hard for me to cope with the roller coaster as the anxiety builds knowing what's ahead.
      If I oversleep 7 hours the good day or two is gone and I'm back to noise.
      I am grateful and hopeful and try hard to take it one day at a time.
      I want to find a sleep neurologist that wants to test me to find what goes on and find a way to identify it since it's so extreme and periodic.
       
    18. DutchGuy

      DutchGuy Member

      Location:
      The Netherlands
      Tinnitus Since:
      07/2014
      Cause of Tinnitus:
      syringing, headphones
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    19. Relic Hunter
      Cynical

      Relic Hunter Member Benefactor

      Tinnitus Since:
      01/1990
      Never silent.
       
    20. Larry OT
      No Mood

      Larry OT Member Benefactor

      Location:
      NJ
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      Volume, meds and motorcycles
      At last a cure ; )

      Case report. The patient is a 63-year-old otolaryngologist who reported having tinnitus for about 40 years. He had a recent stroke, and recovered well. The stroke was located in the left hemisphere, in the more dorsal part of the corona radiate. It was involved in the body of the caudate and caudodorsal aspect of the putamen. Here is what is interesting about this. Fortunately, the patient recovered completely from his stroke with no damage to speech. His hearing also remained unchanged. The one thing that did change, however, was his tinnitus. It disappeared completely.
       
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    21. jazz
      No Mood

      jazz Member Benefactor

      Location:
      US
      Tinnitus Since:
      8/2012
      Cause of Tinnitus:
      eardrum rupture from virus; barotrauma from ETD
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    22. Larry OT
      No Mood

      Larry OT Member Benefactor

      Location:
      NJ
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      Volume, meds and motorcycles
      • Informative Informative x 1
    23. gary
      Transparent

      gary Member Benefactor

      Location:
      Macomb, MI. USA
      Tinnitus Since:
      07/2012
      Cause of Tinnitus:
      Who Knows
      Larry, I too have the T cycle 5-6 good days-5-6 very bad days. for me the T changes when I go to sleep and awake. I can go to sleep with very bad T, awake and the T is not bad. For me something is going on while I sleep, on three occasions I was having a good day, good as in it's very noticeable, but not really bad, then I took a nap for an hour and woke up to T being very bad. No more naps for me on a decent day.
       
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    24. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      I slept for a few hours , woke up to ... 98% silence. Usually I get a random reset like you mention @gary , sometimes worse, sometimes better. This time , the same as when I went to sleep.
      I am trying to sleep but the silence is deafening and my brain is in full on T search mode, weird.

      I am now trying to sleep but I fully expect a reset when I wake up.
       
    25. OddV
      Assassinator

      OddV Member Benefactor

      Location:
      USA
      Tinnitus Since:
      09/2014
      Cause of Tinnitus:
      Ear Infection
      Hope it's permanent @RaZaH
       
    26. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Its not , but I am enjoying the moment for sure.
       
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    27. Telis

      Telis Member Hall of Fame

      Location:
      Calgary
      Tinnitus Since:
      11/2013
      Wow. This is great news. Hope it continues for you.
       
    28. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      There´s at least a 98% chance that my 98% silence will turn back into 98% T.
      I am not getting my hopes up.
       
    29. locoyeti
      Sunshine

      locoyeti Member Benefactor

      Tinnitus Since:
      2/2014
      i think you hit on something profound here. i had a suspicion about the connection between sleep and t, and my experiences with retigabine have definitely given me even more reason to believe in this connection. whenever i have naps on retigabine i get small spikes (i have to will myself to resist the soporific effects of the drug). sometimes when i wake from my naps, i feel this strange sensation of my tinnitus being behind a wire fence, just waiting to get loud, and all it takes is me getting up and moving around for that sensation to subside. hard to explain the phenomenology. if i get inadequate sleep in the night, it seems to affect the quality a bit. it might have something to do with brain waves. i was skeptical of the thalamo-cortical dysrhythmia explanation of tinnitus, but my experience with sleepiness and this drug make me wonder. i haven't done much research on this but i imagine it to be quite obtuse (i think the existence of gamma waves in the brain are still controversial). food for thought.
       
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    30. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      There is without a doubt a connection to sleep and waking up, a roll of the dice if you will,
       
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