Dr. Will Sedley Requesting YOUR Input — Predictive Brain Processing for Tinnitus

Discussion in 'Research News' started by Hazel, Feb 4, 2020.

    1. AUTHOR
      AUTHOR
      Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      • Like Like x 4
      • Winner Winner x 3
    2. HeavyMantra
      Bugridden

      HeavyMantra Member Benefactor

      Tinnitus Since:
      Steadily worsening since 2018
      Cause of Tinnitus:
      Unknown
      Dr. Sedley is great, I have been enjoying his online lectures as well as the Tinnitus Talk Podcast episode.
       
    3. HeavyMantra
      Bugridden

      HeavyMantra Member Benefactor

      Tinnitus Since:
      Steadily worsening since 2018
      Cause of Tinnitus:
      Unknown
      My tinnitus is fluctuating daily, and I have done several audiograms both on days when my tinnitus is very low, and when it's very high.

      When my tinnitus is loud, the test says I have hearing loss above 6000 Hz.
      When my tinnitus is silent, I don't have any hearing loss according to the audiogram. No hidden hearing loss either.

      Interested in your comment about tinnitus always occurring in areas of hearing loss. Do you mean that the pitch of the tinnitus matches the frequencies we have lost?
       
    4. Michael01
      Frustrated

      Michael01 Member

      Location:
      Grafton,NSW,Australia.
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown
      I don't suppose I'd be ale to volunteer myself for your studies if and when you need candidates?

      My tinnitus is very hard to cope with.
       
    5. SomeDay
      Balanced

      SomeDay Member

      Location:
      NL
      Tinnitus Since:
      1995
      Cause of Tinnitus:
      mental traumas / loud music, have it aslong I can remember
      I also would like to know how to participate in the research. I am from the Netherlands. I learned to live with tinnitus for the last 15 years through meditation and mindfulness but I would like to help find a cure for it!
       
    6. Kate Yukhnovich

      Kate Yukhnovich Member

      Location:
      Newcastle Upon Tyne
      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Unknown
      Hello everyone!

      My name is Kate, I am Will Sedley's PhD student at Newcastle University, researching tinnitus.

      We are looking for volunteers to participate in our new online study.

      Researchers at Newcastle University, led by Dr William Sedley, have developed a specific type of sounds
      intended to reduce the loudness of tinnitus when listened to regularly over a period of time. This is the first study to test the effect that these sounds have on tinnitus. The study is run entirely online, and takes a total of 18 weeks.

      For more information, and to sign up to the study, please follow this link:

      https://forms.office.com/Pages/Resp...Wq-Vv1TFUN05QQUlaWlUyUU45UUtWQVZVVU5YRkZIMy4u

      Please contact me if you have any questions!

      Best wishes,
      Kate
       
      • Agree Agree x 1
    7. HeavyMantra
      Bugridden

      HeavyMantra Member Benefactor

      Tinnitus Since:
      Steadily worsening since 2018
      Cause of Tinnitus:
      Unknown
      Are headphones required or do speakers work?
       
      • Like Like x 1
      • Good Question Good Question x 1
    8. BigNick

      BigNick Member Podcast Patron

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Unknown
      Submitted.
       
      • Like Like x 2
      • Friendly Friendly x 1
    9. Kate Yukhnovich

      Kate Yukhnovich Member

      Location:
      Newcastle Upon Tyne
      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Unknown
      Hi, speakers are fine to use for the study!
       
      • Informative Informative x 1
    10. MindOverMatter

      MindOverMatter Member

      Location:
      Norway
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Unknown (possibly stress related, and later sound induced)
      @Kate Yukhnovich

      When will this online study commence, and what is the deadline for signing up?

      I also sent you an e-mail regarding the study, so I hope you can check it and send me a reply. Thanks!
       
      • Agree Agree x 1
    11. GBB

      GBB Member

      Location:
      NYC
      Tinnitus Since:
      2016-2019 (Mild, Cured) 8/2020 (Severe)
      Cause of Tinnitus:
      Microsuction / Additional Acoustic Trauma in Close Proximity
      What if your tinnitus fluctuates between tonal and atonal, and different frequencies?
       
      • Like Like x 1
    12. L34

      L34 Member

      Tinnitus Since:
      June 2020
      Cause of Tinnitus:
      Unknown, but little dip at 7000 Hz
      I am also interested in participating.

      Anyone who knows some good articles to read, to try and understand why/how these sounds are supposed to work?
       
    13. Stakovic

      Stakovic Member

      Tinnitus Since:
      1998
      Cause of Tinnitus:
      Unknown
      What's sound therapy! It's just a waste of time.
       
    14. Kate Yukhnovich

      Kate Yukhnovich Member

      Location:
      Newcastle Upon Tyne
      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Unknown
      Good afternoon,

      The study is ongoing and people can start the study at any time. I have received your email and will reply soon! :)
       
    15. ajc

      ajc Member

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
      @Kate Yukhnovich

      Maybe you can spend five minutes going over people's questions here regarding the study, and provide some answers?

      Like these:
      Also why don't you compensate for people's time, this is a very long study to take part in, a £100 gift card would be nice to get if you complete the whole study.
       
      • Agree Agree x 1
      • Funny Funny x 1
    16. Kate Yukhnovich

      Kate Yukhnovich Member

      Location:
      Newcastle Upon Tyne
      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Unknown
      Do you have a single dominant sound (in terms of frequency and tonality) that is fairly consistent over time, which you would be able to focus on for the purposes of this online study?

      If not, unfortunately at the moment you will not be able to participate in this study.
      However, there may be others that would better suit your needs.
       
    17. GBB

      GBB Member

      Location:
      NYC
      Tinnitus Since:
      2016-2019 (Mild, Cured) 8/2020 (Severe)
      Cause of Tinnitus:
      Microsuction / Additional Acoustic Trauma in Close Proximity
      I don’t unfortunately, it really cycles day to day, but thank you for taking the time to answer my question!
       
      • Like Like x 1
    18. Kate Yukhnovich

      Kate Yukhnovich Member

      Location:
      Newcastle Upon Tyne
      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Unknown
      The newly devised sounds are based on this model:

      An Integrative Tinnitus Model Based on Sensory Precision

      In essence, the sounds are meant to retrain your brain so that it does not focus on the frequency of your tinnitus, thus making it quieter.

      Here is a recent overview of sound therapy:

      The state of the art of sound therapy for subjective tinnitus in adults
       
      • Like Like x 1
    19. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Nonnatural energy source
      I signed up. When should we expect to be contacted about your study?
       
    20. Kate Yukhnovich

      Kate Yukhnovich Member

      Location:
      Newcastle Upon Tyne
      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Unknown
      Hi,

      I have now sent out replies to everyone who signed up over the weekend. If you haven't received an email, please let me know as there may have been an issue with the email provided on the consent form.
       
    21. friend74
      Doubtful

      friend74 Member

      Location:
      Germany
      Tinnitus Since:
      1994
      Cause of Tinnitus:
      Loud Music
      I got my email.
       
    22. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Nonnatural energy source
      Thanks. Got the email now.
       
    23. Rafalek73

      Rafalek73 Member

      Location:
      Poland
      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Hearing loss
      If I have hearing loss of more than 70 dB from 4 kHz upwards, can I still take part in this study?
       
    24. Frédéric

      Frédéric Member Podcast Patron Benefactor Advocate

      Location:
      Marseille, France
      Tinnitus Since:
      11/19/2012
      Cause of Tinnitus:
      acoustic trauma
      The role of prediction and gain in tinnitus by Dr William Sedley

      Dr Will Sedley is a Clinical Academic Neurologist who has done groundbreaking work in the field of tinnitus mechanisms. Here, he introduces and explains the concepts of prediction and of gain as they relate to troublesome tinnitus.
       

      Attached Files:

      • Informative Informative x 1
    25. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Nonnatural energy source
      @Kate Yukhnovich Is there an optimal amount of time you would like me to be using this per day?
       
    26. Mentos

      Mentos Member Benefactor

      Location:
      Cracow, Poland
      Tinnitus Since:
      03/2015
      Cause of Tinnitus:
      Noise induced, loud rock concert
      I submitted the form last week and I have had no reply so far. When can I expect a response?
       
      • Like Like x 1
    27. L34

      L34 Member

      Tinnitus Since:
      June 2020
      Cause of Tinnitus:
      Unknown, but little dip at 7000 Hz
      Anyone who has started the treatment so far?
       
      • Like Like x 1
    28. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Nonnatural energy source
      Yes.
       
    29. mikki_

      mikki_ Member

      Tinnitus Since:
      07/2019
      Cause of Tinnitus:
      Stress / High frequency hearing loss
      The audio-file pick up is not working

      upload_2020-11-28_16-28-10.png
       
    30. L34

      L34 Member

      Tinnitus Since:
      June 2020
      Cause of Tinnitus:
      Unknown, but little dip at 7000 Hz
      Too early to tell about the results so far, I know, - but is it okay to be part of the study? I mean, does it aggravate hyperacusis or is it somehow unpleasant?

      Thank you for answering (and participating).
       

Share This Page

Loading...