Episode 20: The Man Who Donated a Million Dollars to Tinnitus Research

Are more Tinnitus Talk members going to attempt this protocol, after watching the Q&A with Dr. Djalilian?

My GP won't prescribe anything that hasn't made it into mainstream medicine, so I'll be talking to Dr. de Koning about it next month.
 
Hi folks,

Has anyone else tried this lately? How is it working for you? I have reactive tinnitus and loudness hyperacusis, and I'm considering signing up for this.
 
I applied multiple times to be part of this, and today I saw on the Clinical Trials website that the trial is now active and no longer recruiting. While I am sad that I was not selected, I am encouraged to see that things are moving forward.
 
I applied multiple times to be part of this, and today I saw on the Clinical Trials website that the trial is now active and no longer recruiting. While I am sad that I was not selected, I am encouraged to see that things are moving forward.
@LBE, could you provide a link to the trial?

Have you confused this with the one run by Cochlear Ltd?

I'm not aware of any updates on the UCI trial.
 
Are more Tinnitus Talk members going to attempt this protocol, after watching the Q&A with Dr. Djalilian?

My GP won't prescribe anything that hasn't made it into mainstream medicine, so I'll be talking to Dr. de Koning about it next month.
I saw Dr. Djalilian last week and immediately started following his dietary protocol, which involves eliminating all foods containing tyramine, glutamates, histamines, and caffeine. I took Gabapentin before bed, and the next morning, my tinnitus dropped from around a 9, where it usually is, to a 2. It stayed at that level for two days until I attended an outdoor party with noise levels between 75 and 85 dB. After that, my tinnitus spiked again. I took Gabapentin at night and again the following night, and, to my surprise, it dropped back to a 2 by the next morning, where it has remained for several days.

This improvement occurred before I even began taking his recommended nutraceuticals, such as Magnesium and CoQ10.

As the tinnitus started to increase slightly, I practiced a 30-minute Samatha meditation (a more focused form of mindfulness), and suddenly, I could not hear my tinnitus at all — the first time in a year. It has now remained between 0 and 2 for the past 48 hours.

I am still experimenting, but I believe this short-term success is primarily due to calming the central nervous system. Gabapentin seems to help with that, the anti-migraine diet supports it (as do the recommended vitamins), and meditation is clearly beneficial. Since last week, I have also been extremely cautious about avoiding excessive noise (using earplugs in busy areas, airports, etc.), have steered clear of overly stimulating TV programs, and have practiced meditation frequently.

I did make the mistake of watching the Warriors-Wolves game, which raised my tinnitus from 0 to 3. However, I meditated again afterward, and it returned to a lower level.

Honestly, I did not expect to experience this level of relief so quickly. Time will tell if it is sustainable.
 

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