Episode 20: The Man Who Donated a Million Dollars to Tinnitus Research

[Nick47]

@HighleyTall, the above cocktail.

 

[Fields]

Are more Tinnitus Talk members going to attempt this protocol, after watching the Q&A with Dr. Djalilian?

My GP won't prescribe anything that hasn't made it into mainstream medicine, so I'll be talking to Dr. de Koning about it next month.

 

[Kumashi]

Hi folks,

Has anyone else tried this lately? How is it working for you? I have reactive tinnitus and loudness hyperacusis, and I'm considering signing up for this.

 

[Nick47]

and I'm considering signing up for this.

Signing up for what, the middle ear implant or NeuroMed?

 

[Kumashi]

Signing up for what, the middle ear implant or NeuroMed?

For NeuroMed.

I know a few people in this thread were trying the same cocktail of drugs on their own, and I wanted to hear if they are seeing any progress before I sign up.

 

[Nick47]

For NeuroMed.

I know a few people in this thread were trying the same cocktail of drugs on their own, and I wanted to hear if they are seeing any progress before I sign up.

You need to go to the NeuroMed thread, under Treatments, and ask there.

→ NeuroMed Tinnitus Program — Founded by Dr. Hamid Djalilian

 

[Kumashi]

You need to go to the NeuroMed thread, under Treatments, and ask there.

→ NeuroMed Tinnitus Program — Founded by Dr. Hamid Djalilian

Will do. Thanks @Nick47.

 

[LBE]

I applied multiple times to be part of this, and today I saw on the Clinical Trials website that the trial is now active and no longer recruiting. While I am sad that I was not selected, I am encouraged to see that things are moving forward.

 

[Nick47]

I applied multiple times to be part of this, and today I saw on the Clinical Trials website that the trial is now active and no longer recruiting. While I am sad that I was not selected, I am encouraged to see that things are moving forward.

@LBE, could you provide a link to the trial?

Have you confused this with the one run by Cochlear Ltd?

I'm not aware of any updates on the UCI trial.

 

[LBE]

Hi @Nick47! Here are the links:

• ClinicalTrials.gov: Acoustic and Electrical Stimulation for the Treatment of Tinnitus
• UCI Clinical Trials: Acoustic and Electrical Stimulation for the Treatment of Tinnitus

The application link on the UC Irvine website was still active at the beginning of this year, which was the last time I applied.

The description suggests that this may be the precursor to the middle ear implant.

 

[RHL]

Are more Tinnitus Talk members going to attempt this protocol, after watching the Q&A with Dr. Djalilian?

My GP won't prescribe anything that hasn't made it into mainstream medicine, so I'll be talking to Dr. de Koning about it next month.

I saw Dr. Djalilian last week and immediately started following his dietary protocol, which involves eliminating all foods containing tyramine, glutamates, histamines, and caffeine. I took Gabapentin before bed, and the next morning, my tinnitus dropped from around a 9, where it usually is, to a 2. It stayed at that level for two days until I attended an outdoor party with noise levels between 75 and 85 dB. After that, my tinnitus spiked again. I took Gabapentin at night and again the following night, and, to my surprise, it dropped back to a 2 by the next morning, where it has remained for several days.

This improvement occurred before I even began taking his recommended nutraceuticals, such as Magnesium and CoQ10.

As the tinnitus started to increase slightly, I practiced a 30-minute Samatha meditation (a more focused form of mindfulness), and suddenly, I could not hear my tinnitus at all — the first time in a year. It has now remained between 0 and 2 for the past 48 hours.

I am still experimenting, but I believe this short-term success is primarily due to calming the central nervous system. Gabapentin seems to help with that, the anti-migraine diet supports it (as do the recommended vitamins), and meditation is clearly beneficial. Since last week, I have also been extremely cautious about avoiding excessive noise (using earplugs in busy areas, airports, etc.), have steered clear of overly stimulating TV programs, and have practiced meditation frequently.

I did make the mistake of watching the Warriors-Wolves game, which raised my tinnitus from 0 to 3. However, I meditated again afterward, and it returned to a lower level.

Honestly, I did not expect to experience this level of relief so quickly. Time will tell if it is sustainable.