Finally Hit the Intolerable Threshold

Discussion in 'Support' started by gav01, Feb 12, 2019.

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    1. gav01

      gav01 Member

      Location:
      U.K.
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Loud Night club
      After years of tolerable tinnitus it started to get worse and worse the last couple of years. The past week the overall sound and noise level has gotten worse and is now intolerable. Waiting for the MuteButton but if that is no help I will be talking to my family and eventually make plans to visit Switzerland after saving money. I gave myself until 40 years old and it deems that this prediction was right. Unfortunately I am one of the few who may not make it through life.

      I have had thoughts of going to Switzerland on and off for about 6 months now but now a normal and enjoyable life is over.

      I am just venting and I don't want a pity party, I am just trying to show that for some life is hell.
       
      • Hug Hug x 12
    2. annV
      Fine

      annV Member

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
      You will be in for a disappointment.

      Another Tinnitus Talk member tried the Dignitas route and they said they can't help him for only having tinnitus. They don't kill people with tinnitus at Dignitas.
       
      • Agree Agree x 1
      • Informative Informative x 1
    3. Drone Draper
      Jaded

      Drone Draper Member

      Location:
      U.K.
      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      NIHL, ETD and work stress
      Just to let you know, the full assisted suicide including cremation etc costs 10,500 Swiss Francs. It’s 7,500 if you want to handle the formal things yourself.

      You’ll also need to be seen in person twice by one of the doctors they work with over the course of 3 months and join them; with costs 200 Francs as a joining fee and 80 Francs annual donation. It’s a very serious decision that will take a long time.

      I’m really hoping Neuromod can help you.
       
      • Agree Agree x 4
    4. another sean
      Studious

      another sean Member Benefactor

      Location:
      Los Angeles
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Long duration of low audio
      Why not try stem cells? There are stories of success with it here.
       
      • Agree Agree x 3
    5. Blue28
      Doubtful

      Blue28 Member

      Location:
      Europe
      Tinnitus Since:
      04/2016
      Cause of Tinnitus:
      Acoustic Trauma from Microsuction
      I know someone who has been turned away 3 times from Dignitas... Their tinnitus is intolerable.
       
      • Hug Hug x 2
      • Agree Agree x 1
    6. Drone Draper
      Jaded

      Drone Draper Member

      Location:
      U.K.
      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      NIHL, ETD and work stress
      • Agree Agree x 1
    7. HeavyMantra
      Depressed

      HeavyMantra Member

      Location:
      Sweden
      Tinnitus Since:
      01/2017. Worsened 10/2018
      Cause of Tinnitus:
      Headphones, sinus issues, HPPD?
      Why did it get worse?
       
      • Good Question Good Question x 2
    8. Allan1967

      Allan1967 Member Benefactor

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      I can second what AnnV said... Dignitas wont entertain it for tinnitus.
       
    9. Bam

      Bam Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Neck/stress
      Belgium is the only place that understand. They have several tinnitus patients euthanised each year and are fully aware of how utterly disturbing and horrendous it can get. You need to be European and become a resident and sign on with a doctor there to start the process.
       
      • Informative Informative x 2
      • Good Question Good Question x 1
    10. Eric N

      Eric N Member Benefactor

      Location:
      Montreal QC Canada
      Tinnitus Since:
      10/2012, 03/2016, 05/2017, 05/2018
      Cause of Tinnitus:
      noise + 3 major increases via (shouting / MRI/ flu+Tylenol)
      Sorry to hear you're suffering. Me too, my last hope is on mutebutton, I think about throwing in the towel on an hourly basis let alone daily, I'm not sure how much more my family members can take it as it's all I talk about with them, I hope it's at least desensitizing them to the idea.

      Assisted suicide should definitely be available but even so it takes such a long time to get through all the paperwork, I don't think I would have the energy to do it and luckily I don't have to. I have a lovely 80-meter waterfall nearby, very little chance of surviving that.

      All I can say is let's keep positive and hope MuteButton will work.
       
      Last edited: Feb 12, 2019
      • Hug Hug x 8
    11. Bam

      Bam Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Neck/stress
      This has to be a huge concern for Neuromod. A spate of suicidal failures just a few months after launch. Unfortunately there’s no avoiding it. You hype a product aimed at the most torturous affliction on earth and it doesn’t work for the most desperate..... It’s game over.
       
      • Agree Agree x 4
      • Like Like x 1
    12. Drone Draper
      Jaded

      Drone Draper Member

      Location:
      U.K.
      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      NIHL, ETD and work stress
      I do agree, but to their credit, they have had some caution with the hype. If you go on the patient's testimony page on their site, they all got some improvement, but only one proclaims for it to be totally gone.
       
    13. AUTHOR
      AUTHOR
      gav01

      gav01 Member

      Location:
      U.K.
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Loud Night club
      They don't kill people, you do it yourself.
       
    14. AUTHOR
      AUTHOR
      gav01

      gav01 Member

      Location:
      U.K.
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Loud Night club
      Lol good one. Where shall I go for that? do they sale it in the local pharmacy? I hope it isn't more than a couple of hundred £s (sarcasm).

      I work part time I can't afford to travel miles and splash out thousands.
       
    15. AUTHOR
      AUTHOR
      gav01

      gav01 Member

      Location:
      U.K.
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Loud Night club
      Assisted seems a lot of work and a lot of money from what you guys are saying, I think I would just save the money to cover funeral costs and do it myself but maybe publicly in the City so other people can see and then it will be in the news and the reason behind it. Otherwise heres hope for mute button.

      I don't talk about my thoughts to my family anymore as it's easier not to and just a burden to them.
       
    16. AUTHOR
      AUTHOR
      gav01

      gav01 Member

      Location:
      U.K.
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Loud Night club
      All I can think of was the ****ing idiot who's car I was in had his music loud, it wasn't stupid loud but the base was vibrating my drums a bit, I had earplugs in although probably only reduced 5db soI am guesing I was hearing . I was in there for about 10 minutes only and the noise from teh speakers themselves felt a comfortable level with the plugs in so I hope it's just underlying stress, but the noise is pretty harsh in my ear now and loud where as ebfore is was loud but not like this.
       
      • Hug Hug x 1
    17. Julien87
      Happy

      Julien87 Member Benefactor

      Location:
      France
      Tinnitus Since:
      2006
      Cause of Tinnitus:
      Noise exposure (concert)

      You think it is what caused your worsening in the last couple of years or is it a recent event?
       
    18. AUTHOR
      AUTHOR
      gav01

      gav01 Member

      Location:
      U.K.
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Loud Night club
      @Julien87 It has gotten progressively worse over the past few years but it shot up another 25% since just over a week a go.
       
      • Hug Hug x 2
    19. Ken219
      Frustrated

      Ken219 Member

      Location:
      New York Area
      Tinnitus Since:
      Summer of 1990
      Cause of Tinnitus:
      Noise exposure?
      @gav01 have you ever been insitutionalised? Have you been on Xanax, Prozac, Ambien? What have you tried to cope?
       
    20. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I hate to admit it, but I have thought about this a lot. If Neuromod is a failure, I think many people will take it as the final straw. Many people have expressed Neuromod being their last and final hope. I really hope something else like Susan Shore comes down the pipe sooner than later because we know that works from @kelpiemsp's experiences.
       
      • Agree Agree x 5
    21. another sean
      Studious

      another sean Member Benefactor

      Location:
      Los Angeles
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Long duration of low audio
      then how can you afford assisted suicide and travel thousands of miles? if you are really serious about this and you still want to live then you should be finding every means possible to afford a possible cure to save your life. find another job to work from home, study online to work a different career, start a go fund me. sell a damn kidney if you have to (no sarcasm) .

      there are ways to fight back but if you don't have the will then im sorry to hear that and wish you luck in search for peace. but I hope you dig deep and fight back.
       
      • Agree Agree x 2
    22. Bam

      Bam Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Neck/stress
      As I said it’s unavoidable. That’s not to blame Neuromod. It’s not their fault. They’re trying to help. And they are. Right now the hope they are offering is keeping people like me alive. But once it’s released that hope either turns to utter joy or the darkest despair.
       
      • Agree Agree x 7
    23. Vicki14
      Panicky

      Vicki14 Member Benefactor

      Location:
      Scotland
      Tinnitus Since:
      January 2016
      Cause of Tinnitus:
      Stress
      Apparently it’s not considered as a chronic illness!!!!!!
       
      • Agree Agree x 1
    24. AUTHOR
      AUTHOR
      gav01

      gav01 Member

      Location:
      U.K.
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Loud Night club
      Because I know it will work. I'm not one to waste my money like many who have tinnitus have.
       
    25. AUTHOR
      AUTHOR
      gav01

      gav01 Member

      Location:
      U.K.
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Loud Night club
      No I am not crazy and most of those medications make tinnitus worse for people in the long run.
       
    26. dayma
      Tolerant

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Some of those drugs can help you. Have you seen a therapist to help you cope? You may want to try this. This does NOT mean you can't be seeking Neuromod solutions or other stuff. It's just one path to help cope with the suicidal feelings.

      No, therapy is not going to help with the T. It can help deal with the emotions that come from the suffering.
       
    27. MBH

      MBH Member

      Location:
      Upstate NY
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Overloaded stress
      Meds - Lithium
      Therapy - Go
      Fun - Find something that makes you happy
      Work - there is work that fits tinnitus
      Hope - Susan Shore or MuteButton
       
      • Optimistic Optimistic x 1
    28. Ken219
      Frustrated

      Ken219 Member

      Location:
      New York Area
      Tinnitus Since:
      Summer of 1990
      Cause of Tinnitus:
      Noise exposure?
      @gav01 Sorry I didn't mean to give the impression that you are crazy. The medications, etc is what help me cope when I thought all was lost. I attribute the help allowed me to adjust to my Tinnitus. That was 30 years ago and I am still here. I feared the medication at first. The meds help! It is well documented! G-d bless.
       
      • Agree Agree x 1
    29. Steve G

      Steve G Member

      Location:
      Australia
      Tinnitus Since:
      20th November 2016
      Cause of Tinnitus:
      Slap to left ear
      F#@K Tinnitus!

      I hate it so much.

      Mine is screaming in my brain today.

      I pity the poor souls before us who had nobody to communicate with, at least we can reach out and try and help each other on this forum. I am thankful for that.
       
      • Like Like x 2
      • Agree Agree x 2
      • Hug Hug x 2
      • Creative Creative x 1
    30. AZeurotuner

      AZeurotuner Member Benefactor

      Location:
      Tucson, AZ
      Tinnitus Since:
      2010
      Cause of Tinnitus:
      Acoustic Trauma
      There's conditions out there that make tinnitus look like a walk in the park.
       

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